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Old 08-26-2007, 09:15 AM   #1
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dizzysal HB User
Thumbs up Meniere's Disease-Betahistine

Hi- I have dealt with meniere's disease for 15 years in some form or other. In 2000 I had my first bad bout of continual dizziness and vomiting. After seeing a number of specialists I was told to go home and wait for it to "get so bad you will beg for surgery". Well I went home and got online. That is when I heard about SERC (Betahistine). To make a long story short...I have a great general practitioner who took the interest in me to follow up on Betahistine. We found a pharmacy in Florida that formulates Betahistine for me. I started taking it at that time and within a week my dizziness was gone and my hearing came back. I had been told my hearing would never return. I took the meds for the next 3 years cutting the dose in half but having no recurrences. I stopped taking them in 2003 and was fine for 3 more years. In 2006 I was turning my head back and forth during a tennis lesson and I knew I had done something right away. Within days my ear became full and light-headedness returned. It wasn't super bad, but it was back. Come Feb. 2007 I was sitting in a restaurant feeling pretty good when I felt "the wave" and knew I was having a major attack. That attack left me bedridden for two weeks and unable to drive for a month. Betahistine wasn't working at this point. I spent the spring with my ear always on the verge of fullness. But I could still function. In July on the way to Florida in the car I had my "big attack". I was violently ill for most of the trip and spent 5 days in bed with my head perfectly still. I couldn't walk to the bathroom alone. I ended up bedridden for 3 weeks and home-bound for 3 more. Finally after a couple of failed attempts at Betahistine I decided it was the only thing that would work in the end. I started taking it last Sunday and am much better now. I can now move my eyes back and forth and can turn my head without spinning. I have better balance but my family has learned to stand nearby and lend an arm when I sway. I still cannot drive yet.
The meds that did not work:
meclazine-only made me more dizzy
ativan- did not stop the attacks
phenergan- this stopped the nausea, it is what I rely on when I am at my worst, but it does not stop the attacks from recurring
So I will keep you posted on whether I completely come out of this. I hope my hearing improves like before. Thank goodness I am in a position to drop out of life for 2-3 months because there is nothing else I could have done. I have to tell you that while it is discouraging it will pass. Thank goodness my family is supportive and understanding. Most friends want to know when it will be over...this will always be with me to some degree.
As a footnote, I have recommended Betahistine to many sufferers who have had great success with it. It can take a few weeks to work. It is worth a try. I have bad reactions to most meds but have never had any problems with Betahistine. Good luck to all who read this. You are in my thoughts and prayers.

 
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