Ok, last weekend I felt crappy...head fog, whirry head. Tuesday and Wednesday of this week I really have felt better. Today, I actually enjoyed a walk in the woods with my family (we are on vacation), yesterday we played at the beach..again, not perfect but so much better.
I felt my eyes starting to catch up a bit...still off, but not so bad.
Everyone keeps telling me it will start getting better. All I know is that I have to say thanks for pushing me on!
We both know how hard and long this battle is. I never thought I would have a day like yesterday. It was like my body sighed..and actually relaxed...that has not happened in months. I could focus on my family, not my dizzys...and that is amazing. I have learned much from this illness...
1. to live everyday...making the most of it!
2. Make your own luck
3. Follow your instincts...if you think your diagnosis is wrong...keep asking.
4. Stay as positive as you can
5. find a support system (this board has been so important)
6. when you have a good/great day...don't waste it...go, go, go...
Thanks all of you who give me support when I am down, and ^5's when I am doing well....
Hi Charlotte, glad to hear you are having good days now. My progress has been slow and complicated. As you know I did VRT through Paul in Portland, still do them but try to incorporate mostly in my daily activities. I had some anxiety with this illness which led to depression. While seeing some improvement from the VRTs early on I experienced a Migraine headache which sent me into a tailspin. The imbalance problem quickly returned. The depression increased too. My current Neuro still has not given me a prognosis, he hasn't ruled MAV as a possible cause, but I feel like at a stand still. The imbalance/dizzy feeling is present always, but the depression is better because of medication. I just never thought I would I would be feeling this way for 4 years!!
Skipper, honestly you are a trooper. I can't imagine anyone having the dizzys so long and not being depressed. I have not had anxiety with this thing (not sure why, my hormones could have helped). They don't think I have mav, which can clearly complicate things.
They expected me to be better at month 10-11....but I am feeling better after getting some full nights sleep. I bet being a new mom, the lack of sleep and rest really slowed me down.
Remember, we have a dizzy support group (free) 1 x a month. You are always welcome...it is right in Portland.