Very unfortunately I am new in your board
Wish I had never had to look for a board like this one...
For me it started in march this year, severe spinning, the room going round couldn't sleep in any other position than sitting, I totally freaked out and was to the point I nearly went to ER. Went to the doctor and in a sitiing position he layed my head down on one side and threw me over to the other. He did this a couple of times, just prescribed regular aspirin and in a week, end of story. Happy me. It was probably just BBPV.
Well mid-august, here we go again. But this time different story. I have had so many symptoms by now that it's difficult to remember how it all started. I had a spell of weakness in the legs and the feeling of being off balance nearly falling over, heart racing, panic, don't know what a stroke is like but felt like that was it. Anyway just a short while didn't last very long.
A couple of days later, it started again, but this time got the vertigo, headache and severe nausea. After a couple days this was not going to go away.
Went to the doc again, who threw my head from side to side again. But this time nothing; no improvement. Nausea still going, vertigo, headache, or rather like a slight burn that could be anywhere in my head, felt funny things with my heartbeat too, like arythmia. Back to the doctor again, who now prescribes Betahistine dihydrochloride (BD) and sends me off for a brain scan. Brain scan turned out normal and the BD was helping me a lot. A pill in the morning managed to get me through to lunch time where I would get the headache and the off balance feeling again and so on untill evening.
I then go to an ENT, who plugs cameras on my eyes and performs all sorts of tests, Epley, spinning teh chair around etc. I mainly reacted positive on the caloric test, taking me about 1 min 52 to recover from the spinning on one side versus 1 min on the other. Diagnosis: Vestibular Neuronitis
Anyway I manage to get through a month and a half of this, but then the BD wasn't helping anymore. Constant feeling of being off balance and a headache, not really feeling like vertigo anymore, I felt like I was not quite there, being in a parallel world. Then the symptoms changed, not only did I feel off balance but I felt like I was weighing twice my weight, as if someone was pushing me into the ground. Laying down on the side, I would feel as if someone was trying to push me over on my back. This heaviness only lasted for a week, but the off balance feeling continued with the headaches, no nausea.
The off balance /headache hasn't left me for the last 2 months and a half now, have had all sorts of symptoms in my ears as well from liquid filling up inside on one side, ringing for a couple of minutes, popping etc. Feels like I am constantly driving up a mountain in a car. I also can't take too many people or noise around me. The very rare spells where I have been feeling better have only lasted 1 hour or so and when it happens it's like I'm alive again !
Then last week, I get the light tipsy legs svere loss of balance and heartbeat again, as if I am going to stumble over. Continued walking straight concentrating thinking my brain was tricking me. Totally frightened me again and went straight back to the doctor 2-3 hours after the attack. He did an ECG, and it was totally normal. Had a blood sample taken, everything totally normal...He is now sending me to a neurologist, and in parallel I have taken an appointment with a Traditional Chinese Medidine therapist because I don't know where to turn anymore...
Anyway I am feeling so so terribly sad and am still worried that it's a wrong diagnosis ...
Will this ever stop !
Thanks for all the posts on this board, at last I feel as if I'm not alone