Hang in there, you will get better - Inner Ear Disorders Message Board

suzyisdizzy · 01-02-2008, 11:17 PM

Hi everyone!
I haven't posted in a very long time because I have been doing quite well, and you know how supersticious it can be posting a positive post. I'm gonna do it anyway. I want to help those of you who feel like you will never recover.
I was right were you are. BIG TIME! I got dizzy 4 1/2 years ago. I was so dizzy, so badly for so long that I could barely stand it. I had a lot of the usual tests, MRI, blood tests, rotational chair, etc, and I never did get a true diagnosis. My opinion now, is that it must have been some kind of a virus...or possibly BPPV. Heck, maybe even MAV...but I am now leaning towards the virus probably more than anything else.
I just want to be a ray of light for those of you who are suffering. I want to let you know that it is possible to get better. It is slow slow and SLOW going. There are days where you are almost back to normal, and then bang, you are bad off again. But s-l-o-w-l-y over time you will get better. It may happen in a couple of months, or in a couple of years. But you will get better. Hang on!

charlotte67 · 01-03-2008, 06:03 AM

Suzy so gald you are better...can I ask you how long you felt dizzy!

Bravo!

gloria2936 · 01-03-2008, 06:21 AM

Hi Suzy,

Good to hear from you again and better yet that you are doing so well. I always wonder about those who I haven't heard from in a while. My doctor gave me a 2 - 5 year prognosis. He says he has seen this all before and from his experience he believes it to be damage to the CNS caused by viruses/infection or in my case a very severe allergic reaction to an antibiotic taken for a sinus infection (1st and only sinus infection I ever had). I do remeber how ill you were in your posts so it is very encouraging. Thanks for posting.

Best,
Gloria

suzyisdizzy · 01-08-2008, 12:33 AM

Great to hear from you too!
I do hope you are feeling better also.

In regards to the question about how long I was dizzy for...it is hard to say exactly because it would get a bit better, and then worse again. It was also so horrible in the beginning, that lasted about one year, then in year two a slight inprovement and this is year 4 1/2 and I am at about 98% normal. It was slow going, but I got here. I pray that someday soon I will be back to 100%.

It is such a slow healing that many get worried that they will never be well again. I just ask that you try not to worry and it will come.

gloria2936 · 01-08-2008, 07:09 AM

Hi Suzy,

I was wondering if you took any meds during your 4 1/2 year ordeal? I am a little over the 3 year mark and like your recovery history, have had gradual improvement along the way but still suffer relentlessly every day. I am considering an AD but don't want to cause any other problems or somehow possibly slow my recovery process down.

Thanks,
Gloria