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Old 07-28-2012, 06:02 AM   #46
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Re: VRT, Vestibular Neuritis & Success Stories

Thanks Nicole!
I had a tough week with symptoms. Just when I started feeling better, the symptoms were back. I guess I have to expect good and bad days. Of course, all this occurred while hubby was out of town all week! Another reason to be back on the east coast with friends and family. Thanks for your support! Have a great weekend...
Marcia

 
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Old 07-28-2012, 07:54 PM   #47
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Re: VRT, Vestibular Neuritis & Success Stories

Hi Marcia,
Yes! Back in March I felt horrible like that! I had a strange head chill and when I was feeling this way it felt like I was going to pass out. I also had the strange sensations in the chest where it felt like a chill/tingle feeling going through body. I hated that and when it happened while I was trying to sleep I would wake up and worry, what the heck is happening to me. I felt like I was losing my mind and that I was going to die. It was absolutely horrible and I would never ever wish this on anyone. I never felt so horrible. My mother was with me when it started and my husband also was away for work. He was in California and I was worrying about everything, so I started taking some Zoloft that I had been given in January. I believe this made things worse and has made it more difficult for compensation. I stopped the Zoloft at the end of April. I pray you and all of us will get better soon. I still have anxiety and worry/feeling that I might not be here or pass out. I need to over come those and also I need to start driving again. Please hang in there and keep in touch. Remember, I have heard of people taking up to a year or 2 to get over it. From others, I've read that it's one step forward, 2 steps back, or more. Very slow recovery but look at it monthly and you should think, hey, I am better than a month or two ago. Prayers for you and try to feel better. Try to relax and do something that makes you feel better. Hugs!
Nicole

 
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Old 07-30-2012, 06:42 AM   #48
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Smile Re: VRT, Vestibular Neuritis & Success Stories

Quote:
Originally Posted by biteneck View Post
Hi Marcia,
Yes! Back in March I felt horrible like that! I had a strange head chill and when I was feeling this way it felt like I was going to pass out. I also had the strange sensations in the chest where it felt like a chill/tingle feeling going through body. I hated that and when it happened while I was trying to sleep I would wake up and worry, what the heck is happening to me. I felt like I was losing my mind and that I was going to die. It was absolutely horrible and I would never ever wish this on anyone. I never felt so horrible. My mother was with me when it started and my husband also was away for work. He was in California and I was worrying about everything, so I started taking some Zoloft that I had been given in January. I believe this made things worse and has made it more difficult for compensation. I stopped the Zoloft at the end of April. I pray you and all of us will get better soon. I still have anxiety and worry/feeling that I might not be here or pass out. I need to over come those and also I need to start driving again. Please hang in there and keep in touch. Remember, I have heard of people taking up to a year or 2 to get over it. From others, I've read that it's one step forward, 2 steps back, or more. Very slow recovery but look at it monthly and you should think, hey, I am better than a month or two ago. Prayers for you and try to feel better. Try to relax and do something that makes you feel better. Hugs!
Nicole
Thanks so much for the support Nicole, it really means a lot to me. My husband got home from Spain Sat and left this morning for Delaware. It's been tough going through this alone and being new to VN, I don't know what to expect. it just seems so strange tht 2 weeks ago I was getting ready to drive and basically had no symptoms, I thught this was behind me. Now, I'm having really bad depth perception issues-looking down and walking is a problem, getting headaches, stiff neck and minor dizziness depending on how I move. It seems like things have gotten worse. I know I'm panicing when this happens - I don't know anyone here and it's a struggle when he travels. I guess I need to understand this is not a straight line to recovery. It's just so up and down. I've got a full week of work to do....4 friends from Pittsburgh aree coming to vist Thursday to check out our new place in MN. I'm hoping I can get the cleaning, cooking etc done before hubby is home Wed night. I know I can't go on the sightseeing tours with everyone, it's too much of a risk that I'll have problems. This is really frustrating. I know it's only been 2 months for me and you have endured this much longer...I hope your positive attitude rubs off on me. I'm praying we all recover soon and can enjoy life again with out symptoms and anxiety.

Thanks again for your eassuring words.
Marcia

 
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Old 07-31-2012, 06:40 AM   #49
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Question Re: VRT, Vestibular Neuritis & Success Stories

Hi
I have recently posted on here with poss Labrythitus and my symptoms sound very similar ! however the dizziness is soo bad I am off work sick as unable to do anything ! all I've had done so far is blood tests and on stemitel to ease the symptoms, i am waiting i ct scan and to do a 24hr urine sample,if all the bloods come back clear where do i go from here?so was wondering how you got diagnosed with this condition ?.
Things move very slowly here in the uk and I just want to get it sorted as feel awful being stuck in,unable to drive etc .

 
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Old 07-31-2012, 04:09 PM   #50
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Quote:
Originally Posted by florida31 View Post
Hi
I have recently posted on here with poss Labrythitus and my symptoms sound very similar ! however the dizziness is soo bad I am off work sick as unable to do anything ! all I've had done so far is blood tests and on stemitel to ease the symptoms, i am waiting i ct scan and to do a 24hr urine sample,if all the bloods come back clear where do i go from here?so was wondering how you got diagnosed with this condition ?.
Things move very slowly here in the uk and I just want to get it sorted as feel awful being stuck in,unable to drive etc .
Hi Florida31

First, let me say I am very sorry to hear about your condition and symptoms. If you think you have vestibular neuritis, get into an Otoneurologist or Neurotologist. They will run an ENG test which measures all aspects of your vestibular function. This test will conclusively determine if it's VN related or not. I will pray for you that you get relief soon. In some cases, people recover within a few weeks. However, for those of us on this thread, that has not been the case. Hang in ther and all the best

VNHOOP

 
Old 08-01-2012, 11:47 AM   #51
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Re: VRT, Vestibular Neuritis & Success Stories

Hi
Thank you so much for your reply.
I have no idea about that condition so am unsure what's wrong with me and today has been a very bad day,just so scared of what's wrong with me,at least if there is a diagnosis it can be dealt with,at the moment I'm in limbo and full of anxiety.
thank you so much for your advice.

 
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Old 08-04-2012, 08:08 AM   #52
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Re: VRT, Vestibular Neuritis & Success Stories

Hi Nicole: Every once in a while I check these posts to see how everyone is doing and if there is anything I can do to help/support someone. These posts saved my sanity!! I sincerely pray and hope everyone feels better soon. I am the one who was diagnosed with VN in July, 2010. I had been off of work from April until November, 2010. My whole life felt like it had been turned upside down and I felt that I was going to have a permanent disability that is how horrible I felt (the symptoms are terrible and actually hard to describe to "outsiders"). After my diagnosis, I started trying to research and thought I would be dealing with this initially just for several weeks and then maybe just a couple months. Everything that I read in these recent posts is EXACTLY what I also experienced. I know this is scary and difficult to deal with, though remember, in time your better days will outnumber the bad days and then eventually, the bad days will be gone. It is so strange how it fluctuates for so long for many. I could not stand the neck pain and strange head sensations. Sometimes, it felt as if I had a pony tail on top of my head that someone was pulling. I tried everything I possibly could to try to help. I even went to a chiropractor to try to relieve the neck/head sensations, massage therapist, accupuncture, herbalist (I tried it all). The car driving situation, grocery shopping was really challenging, though if possible, try to drive locally and have someone with you to help with the anxiety. I felt the more I exposed myself, it built up lost confidence. I understand that it is "easier said than done" for so many suffering from this, though do try to remain as active as possible. I totally get it...I would be fine for days, go out to dinner or the store and feel so imbalanced/out of body/panicky which is all related to the VN. I was given prescriptions initially; Antivert for the vertigo, Xanax and Valium to help suppress vestibular system and to decrease anxiety. I only took it for three days as I understand these drugs actually may delay the brain's compensation process. I also went for physical therapy. Interesting though that upon an 8 month follow-up with the otoneurologist, he was suggesting that I may have MAV (migraine associated vertigo) due to my continued symptoms. There really are no diagnostic tests for MAV, though more or less, process of elimination and description of symptoms. I was given a prescription for Effexor to trial for possible MAV. Effexor is an antidepressant (which I was completely freaked out about taking). I chose to hold off and not take, though am not recommending anyone do the same, if it could help! I am now over 2 years since my VN diagnosis and feel good! I went to a top otoneurologist in Chicago. If you want iinput regarding diagnosis and some great information, please check out Chicago Dizziness and Hearing. Wishing you all the best!!

 
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Old 08-04-2012, 09:00 AM   #53
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Re: VRT, Vestibular Neuritis & Success Stories

Hi
Thank you so much for your reply.
I am glad to say I have managed to get out for a short while today (not driving ) but great to get out as dizziness isn't too bad the last 2 days and am so happy to have some relief.x

 
Old 08-04-2012, 11:17 AM   #54
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Re: VRT, Vestibular Neuritis & Success Stories

Hi notdigging:
Thank you so much for your reply! The pressure in the head that I had on the sides is not there as much now. Still comes at times but not everyday that I can notice. It seems that you did not take anything medicine wise except the anxiety meds at first and let the VN ride out?

Do you remember when you were able to feel more like yourself in stores and the mall?

I really do appreciate your support and replies.
Here's to better health for us all!
Take care,
Nicole

 
Old 08-04-2012, 01:36 PM   #55
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Re: VRT, Vestibular Neuritis & Success Stories

Hi NotDigging,

Your success story is greatly appreciated, as well as the reassurance that the symptoms and anxiety are normal. I'm only 2 months into my diagnosis and at times feel as if this will never end. It's having to deal with feeling fine and suddenly having a relapse...two steps forward, one back -sometimes two steps back. I will reread your post many time to gather strength to stay positive and maintain my sanity. Thanks for checking in on us and sharing your story.

Here's to more success stories soon for all of us!

 
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Old 08-12-2012, 05:47 PM   #56
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Wink Re: VRT, Vestibular Neuritis & Success Stories

Hello Everyone

It's been a couple of weeks since I posted and wanted to check in. My recovery has somewhat stalled, bu I suppose I'm in one of those flat to slightly declining times. I have a question for some of you regarding one specific symptom I have. I am fine when I'm laying down but usually within a few minutes after getting up, my symptoms return. Has anyone else experienced this?

Thanks in advance

VNHOOP

 
Old 08-12-2012, 06:50 PM   #57
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Re: VRT, Vestibular Neuritis & Success Stories

Quote:
Originally Posted by VNHOOP View Post
Hello Everyone

It's been a couple of weeks since I posted and wanted to check in. My recovery has somewhat stalled, bu I suppose I'm in one of those flat to slightly declining times. I have a question for some of you regarding one specific symptom I have. I am fine when I'm laying down but usually within a few minutes after getting up, my symptoms return. Has anyone else experienced this?

Thanks in advance

VNHOOP
Hi VN,

Sorry to hear that you're having one of those down times. What specific symptoms are you getting upon rising? Are you having a major setback...dizziness, etc that you weren't having before? Another question...do you have allergies? I usually feel good upon rising and within the hour get a stiff neck, fullness in my ear and a headache. Some may be due to allergies from what I've been told.

My thoughts are with you...hang in there.

 
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Old 08-13-2012, 01:38 AM   #58
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Re: VRT, Vestibular Neuritis & Success Stories

Hi
Sorry to hear that,its so awful !I too am still not good and now on week 4 of being off work without able to do barely do anything,I did have a few days well half days last week where there was a good improvement but the last few days I've gone right back and been awful. I have an MRI on my head on Wednesday and am going to go back to the doc next week and ask to be referred to an ENT as I just need some answers.
My symptoms are the same when laying ,sitting,walking and am just constantly unstable on my feet,just so scary,not to bad when laying on my back but when i turn in bed i feel dizzy.
Hope this is helpful.

 
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Old 08-27-2012, 02:50 AM   #59
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Re: VRT, Vestibular Neuritis & Success Stories

Hi everyone

Just a quick update really ! not that there's much of one really.
I'm still very unsteady on my feet and as you all say am unable to look/put head down,unable to tilt head to the right side or roll over on right side in bed ,walking is still a big challenge and feel very unstable on my feet so still not back to work and the smallest activity exhausts me!.
Am still waiting for my MRI results but fear they will not get what they want from this due to me refusing the dye because that day was a real bad day and felt so unwell I nearly didn't make the appointment at all along with the panic attack i had there ! and really praying they get what they need from it,so I'm still a question mark on the Labrythitus ? and not even seen any kind of specialist ENT etc which will be my next ask on my docs visit on the 3rd.
I have to be honest and say there is some progress in that I dont get the head rushes come over me like I am gona black out ! and so thankful of that as they were constant even when still and without moving.
Please continue to post and reply people as its so helpful to us all suffering these awful symptoms.

 
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