For those of you who have that feeling that sometimes you are walking on a trampoline, does your neck feel really tight at the same time? Do you get a headache/neck ache after the worst of the bouncing is over? This has been my primary problem today. I was all ready to get out and get some things done and then I started bouncing so now I'm too afraid to go out!
the bouncing feeling is the migraine my dear. That goes away with the meds. I promise. I have a LOT of visual symptoms that have not gone away, but the rocking/disequibrium/trampoline-walking feeling is completely gone on topamax for me (or any migraine med that works for you). The tightness in your neck/back is most likely from either walking unnaturally as a result of the odd feelings which tense up your muscles, or from simply tensing your muscles as a result of anxiety from the feelings. I know because I've been there with this. It feels good to walk anywhere I want and not feel that anymore. But I have so many other symptoms it doesn't matter really lol. Unfortunately, I'll have to find another med. The topamax induced asthma in me and I need to get off it. But I have proved that this is a migraine condition and I'm now working out some other preventatives. You'll see. Get on a high enough dosage of a good migraine preventative with at least a 75% rating (topamax or effexor are the best for this purpose) and if the symptoms get better, you know what you have. This is how I proved it to myself. Now I just have to find a med that allows me to breathe :-)
Yep, I weaned from the Verapamil and haven't yet started the Inderal so in the interim I'm back to the bouncing!! It's awful.
Sorry to hear about the asthma! Have you tried Verapamil? I'm almost tempted just to go back on that versus try the Inderal. I can tell now that it must have been helping and I was only on it for six weeks and without side effects.