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Old 09-28-2008, 02:20 AM   #31
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Re: Swaying when standing

Hi there

I don't know if this would be any use to you but when i started my vrt with a therapist that is the first thing we worked on. I had to stand still with shoes off on a hard floor, feet together and eyes shut, i had to stand for 1 minute (time it) and practice it as much as you can, it honestly does get better i had an improvement over 1 month, then progress to balancing on one leg with eyes shut.

Luisita

 
Old 09-30-2008, 02:22 AM   #32
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Re: Swaying when standing

Quote:
Originally Posted by kellysavage View Post
I have ALSO had these dizzy/balance/falling sensations for going on 3 months now. I have seen specialists too, ent's and a neurologist. They did the eng test which is supposed to rule out inner ear, which it DID, well than what else would be causing this if it wasn't inner ear? That doesn't make sense to me. I also have tmj, and have always had migraines. Nothing has changed in my life to make this happen. My next step is to go to a vertigo clinic (even though I am not experiencing vertigo, room is not spinning). I also am feeling great while in a moving car, it's the sitting and standing that are a problem. I have also lost weight, had a loss of appetite, and been on valium and mecilizine for a long time, and while they help, doesn't take it away. I had a mri to rule out a tumor. I have been told I have abnormal sinuses, and my reg. doc explained that my abnormality shouldn't have anything to do with my symptoms.........
interesting that you have the same sort of dizziness going on. I have a question for you, do you feel better or worse in the day/with light, night/in the dark, and do you feel better or worse standing still with your eyes closed vs. eyes open? Or is it all the same? I'll give you an update on what I am doing if it's any help. I have talked to many doctors about trying to get a preventive migraine med like richard suggested to me earlier but they have been rather reluctant to write the prescription until I have had all these tests done and it's taking forever, i'm sure you guys know how it is, each doctor referal is like another two weeks of not getting better = ( very frustrating to say the least, but I am very fortunate that I have good insurance to get me through this while they try to figure this thing out. I am currently in line to see a Neuro Otologist at UC Davis. I had an ENG which was fine, my ENT also sent me to do this evaluation at the rehabilitation center at the hospital, it's this thing called a Balance master, and it tests your system to see how well the SomatoSensory, Vestibular, and Visual systems are working. If you haven't done this you might want to try it I think i've been pointed in the right direction. I was doing very, very well scoring above average for my age on everything until they did the test for the vestibular system and I straight up failed.

This is all so interesting because Richard mentioned Vestibular Migraine, which is the system that the machine shows i'm having problems with, and also i'm in line to see the exact type of doctor he told me to see. I'm willing to bet money at this point that he's right, so while waiting to head to Davis I'm trying to just find someone that will let me try some of those meds to see if they help....I'll give you guys an update when I get more info, hopefully it will include the words "i'm better"

-Derek

 
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Old 10-12-2008, 12:21 PM   #33
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scottyboy10 HB User
Re: Swaying when standing

Do you have any Mercury Fillings ?

 
Old 10-12-2008, 12:25 PM   #34
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Re: Swaying when standing

I have the same feeling. I have jsut arrived in Downers Grove , Chicago to do a Dental Clinic with a very special person named Dr Hal Huggins to have my Mercury Fillings removed. I havve just read his book "It's All in Your Head". I have 8 fillings and 2 root canals and we will be doing 2 hour semonars each day for 2 weeks on repair and recovery. Dentists could hav put something in your body by leakage.
Get back to me.

Scott

 
Old 10-12-2008, 04:26 PM   #35
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violet6 HB Userviolet6 HB User
Re: Swaying when standing

Let us know how this goes, Scott. I've heard of folks attributing lots of illnesses to dental work. My dizzies started the day after a root canal. On the other hand, I'm not sure that further dental work (to remove existing fillings and/or teeth) is the answer. I think that the numbing process is what caused my dizzies (through either the stimulation of the trigeminal nerve or the activation of a virus that attacked my inner ear). Removing teeth can lead to trigeminal neuralgia. However, I am interested in the filling theory and would love to hear what your experience is. Please keep in touch about it & good luck!

Violet

 
Old 10-14-2008, 04:16 PM   #36
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scottyboy10 HB User
Re: Swaying when standing

What about this swaying feeling i have? not with every heartbeat or everystep but a slow sway from back to forth and not side to side. I can't walk to the store/shop or even up the hallway. What could it be and it is not getting any better ?

 
Old 10-15-2008, 07:14 AM   #37
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violet6 HB Userviolet6 HB User
Re: Swaying when standing

scottyboy--could be migraine associated vertigo...seems lots of folks have a swaying or rocking sensation with that. Best to see a neurotologist, get inner ear testing; they may also recommend an MRI to rule out other possible causes.

violet

 
Old 10-31-2008, 08:17 PM   #38
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teleusa HB User
Re: Swaying when standing

I just went through this thread and I have the swaying which feels like imbalance while walking/standing/sitting and can relate to most of the scenarios mentioned like standing in line, patterns on carpet... I have had these symptoms for the last two years. Recently I was diagnosed with sleep apnea and have started using CPAP since September 2008. The problem with swaying or weakness( feeling of inability to stand) has not gone away. Some days I feel better than others. I am not able to attribute the symptoms to diet/sleep or any other factors. I have been checked out by the neurologist and ENT specialist. The blood work came out normal. I will have to talk to my doctor about migraine medication as suggested in this thread. When I was in ER for 3 days, the doctors had put me on a beta blocker, which had improved the swaying/imbalance symptom at that time. However, my PCP did not prescribe the beta-blocker since my BP was close to normal.

 
Old 11-01-2008, 08:19 PM   #39
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Re: Swaying when standing

Tele,
Just wanted to mention that I also did a sleep study. It was normal. Please keep us updated on what you find out. That would be one symptom I would be thrilled to loose.

CK

 
Old 11-02-2008, 06:05 AM   #40
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Re: Swaying when standing

CK--
How are you? I've been thinking about you & have been thinking the meds must be helping! I've noticed when people start using a med that works, they post a lot less . I hope that's true for you!

Violet

 
Old 11-02-2008, 06:07 AM   #41
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violet6 HB Userviolet6 HB User
Re: Swaying when standing

teleusa--I think that if the bb worked for you then that may well be a great sign that does point to migraine and also shows you your way out. definitely talk to a talk with expertise in this...some neurologists (some don't seem to know the different ways migraine can appear such as variable vertigo presentations), or even better a neurotologist, ..and see what they think.

good luck!

violet

 
Old 11-03-2008, 05:22 AM   #42
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cknmbbl HB User
Re: Swaying when standing

Violet,

I wish!
My daughter is back home and I have been keeping busy with her and her appointments. By the time I am done with that I am beat. I am pushing myself more then I have in the past. I'm not sure if it helps or not. I actually went to a play on Saturday night. I was so dizzy and felt like I couldn't keep my head up. I stayed though. Still don't know that it was worth it as yesterday was bad, but I did it.
How are you doing? Any better? Where are you with the meds?

CK

 
Old 11-03-2008, 05:43 AM   #43
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cknmbbl HB User
Re: Swaying when standing

Violet,

Please know that when and if I kick this thing you WILL know. I will be on these boards giving hope to whoever needs it. Just like others have done for me.

CK

 
Old 11-03-2008, 08:02 AM   #44
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violet6 HB Userviolet6 HB User
Re: Swaying when standing

Hello, CK--

I wish the meds were helping even more, but I am very proud of you for going to a play!! That is wonderful--I think it is good for the spirit to get out there, even if our body feels worse for a little while (within reason, of course!).

I also feel like I am pushing myself a lot, but sometimes I get tired of it...it's just such a struggle every day! I've been taking the prozac for two weeks now. Too soon to tell, I think, what effects it might have (can take 4-6 weeks, may go up at least to one higher dose). The good news is that I can tolerate it well, so we'll see. My mood can certainly use the improvement even if it doesn't touch the dizzies. I've still been having the same amt of headaches...some of the weird perception feelings may be abating slightly. I might try to add some verapamil or maybe topamax after another month or so.

I hope your daughter is doing well!! I know that you are dealing with alot right now.

Take care, CK!
Violet

 
Old 11-06-2008, 11:10 AM   #45
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teleusa HB User
Re: Swaying when standing

Violet and CK,
I went to my PCP and requested a betablocker. I have not been diagnosed with migraine or vertigo by the ENT. I was prescribed atenolol 25 mg. I have been taking this for the last two days. There has been a lot of improvement with the swaying/imbalance symptoms. Hopefully, it will keep improving and become manageable within a few days.

Thanks,Teleusa

Last edited by teleusa; 11-06-2008 at 11:12 AM.

 
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