I just joined the group today. I've posted in a few threads, but thought I would put all my symptoms out in a new one. It all started early summer (late June). I suddenly was feeling light headed, a little ear discomfort, and getting what I thought were "dizzy spells" feeling like I'm going to pass out. I saw my reg. doc, who said I probably have an inner ear infection, and put me on antibiotics. Also gave me meclizine. After the 10 days of antibiotics, it started getting worse again. I went back, had to see a diff. doc (mine wasn't there that day). He gave me a different antibiotic, and did look in my ears and did the fluid pressure test thing, which hurt, but said it was normal. Sent me off with same diagnosis. After another 10 days, it got significantly worse. So I was refered to a ear nose and throat doc. Who put me on valium, and set me up for an mri 3 weeks later. The valium started giving me side effects, mood swings, forgetting things, panic and anxiety, so I went to the er one night when my symptoms were worse, and got a cat scan which ruled out a tumor, and went back to the reg. doc the next day and got lorazapam for anxiety. They also sent me to a different ent who did a hearing test, and a few other simple tests to rule out inner ear. While he thought he ruled out inner ear, I was refered to a neurologist, and the neurologist did the ent test to confirm or rule out inner ear. The mri came back fine. Blood tests for lyme disease, thyroid, anemia, and pottassium were fine. So I'm waiting for the results of the eng which was very uncomfortable and caused left ear and head/neck pain. After that I've been told by the 2nd ent doc that he can send me to boston to a specialist for "people like me who are hard to diagnose and don't have a common problem". So any guesses out there? I'm not working much from this, and trying to take care of my 8 yr old type 1 diabetic girl who has also been sick all summer (with no results of cause) which is a job in itself.
I forgot to post my symptoms: falling or leaning to the left side, feeling of being pushed or leaning over forward, side, and back, it's worse when I move around too much, worse just sitting or standing, and worse while reading. I feel my best when riding in a car. The motion somehow helps. I have had migraines since as long as I can remember, and have always had motion sickness, and nausea. Other than that, pretty healthy. I have had loss of appetite and weight loss as well.
There are a lot of people on this forum that are whole lot smarter than me when it comes to all of this junk, but I wanted to say I had the falling sensation--mine was to the right or backwards. Worst when sitting or standing. Car motion is wonderful. I am currently diagnosed with "migraine syndrome" and am on Verapamil daily. Some of the dizziness has gone away but the additional symptoms are still there in full force, if not even more pronounced. Things like objects vibrating in my field of vision, weakness in my feet (more right than left) and right hand, less appetite, some weight loss, and a constant feeling that everything is "off". Depression and anxiety were problems for me before all of this but have become more acute since this started in November 2007.
I know other people will chime in with more info for you!
It is probably related to your migraines. Look up migraine associated vertigo. There is lots of info on this site. Also, check out the book Heal Your Headaches. There are other things it could be, but with a normal MRI, no inner ear issues, and a migraine history, MAV is very likely. It is usually managed with meds, diet, and exercise (mostly meds).
thanks for all that info, I will def. look it up, and I have tried to change my lifestyle already, eating better, cutting down on salt, caffine, and all that, I'm still on the meds, and still not feeling great, but just getting through each day the best I can.
So today my neurologist had the nerve to tell me I have anxiety, and need to see a psychologist. ARE YOU KIDDING ME??? My balance/dizzy problems that started 3 months ago, have nothing to do with anxiety. My life is the same as it has been, and while I always stress, and have migraines, anxiety is only something I have experienced while taking valium, and when I was worried I had a tumor...this spell lasted 3 days. And seeing a psychologist is supposed to CURE this issue I have had for 3 months?? So get this, after all that being said, she calls me back and tells me she went over the mri again, and discovered my sinuses are abnormal. Could my problems REALLY be from a sinus issue? I've tried looking it up, with no explanation. I do see my reg. doc tomorrow, and will see what he says about this, but to tell me to see a psychiatrist is RIDICULOUS, and is not going to solve my symptoms.
That is so ridiculous and unfortunately many of us have heard this as well from uninformed docs, and even from some informed ones! They don't understand how scary and difficult to deal with these vestibular symptoms can be. Sinus problems could be causing some dizziness...docs disagree about this. You might want to look into visiting the Massachusetts Eye and Ear Infirmary...I think others in Maine have done so. They are experts on dizzy issues and will point you in the right direction. It still sounds like migraine is involved to me, but they will know!
after thinking that it was a sinus issue, my reg. doc went over mri results again, and it's only a cyst or polyp at the bottom of my sinuses on my right side cheek, so that couldn't be the cause to all this. He is going to send me back to the ent, who can refer me to a vertigo clinic....even though I don't exactly have "vertigo" but in that category I suppose. Thanks for the advice still, I will update when I know more.
well after having new neck/shoulder muscle pain, and headaches everyday lately, I went to the doctor and found out I have an enlarged thyroid. I'm wondering if this is a RESULT of a virus that made me dizzy, and now effected my thyroid, OR the thyroid was the problem all along, but just didn't show when they did the first blood test. The doc also ordered an ultrasound to measure how enlarged it is. I'm not as dizzy as before, but still wake up some days (1-2 a week) feeling dizzy...still have a few of the valium left that I was on before.
i haven't read all the posts but i wanted to comment. i have similar symptoms to you and i have a perilymph fistula. most doctors don't know about this inner ear problem and including most ENTs. please read up on them and if you think you have one you'll need to search out a good dr. good luck.