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Old 08-26-2002, 05:00 AM   #1
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Post Not really dizzy but.......

more of an unsteady, swaying type of feeling. Went to ER about a month ago with it, they said probably fluid buildup in ears. Had a CT brain scan about a month before that because I was having a fullness type of feeling in my head(felt like head was filling with blood,then draining and a clicking sound I could feel and hear. Not in my ears, but in my head! When the clicking slowed down, the fullness went away. NO swaying, unsteady feelings with that though. Dr's had no idea what the clicking or fullness was. They told me I wasn't having a stroke,bleeding or tumors. I followed up with a Dr.(no insurance, felt like it was a waste of my money)who told me my ears looked fine. Said it was probably stress/anxiety. The only stress/anxiety I have is when I have these weird swaying,unbalanced feelings. It's really hard to explain this. Have you ever been sitting in a car and the car next to you backs out and you get a feeling like YOU are the one moving? Standing on a floating dock (attached to the shore) someone walks on it and you have to hold on for dear life 'cause you feel like you are going to fall off? Standing and all of a sudden it feels like the floor moved? If you have experienced any of these sensations, that is sort of how I feel without actually doing any of these things. I used to bend my head down to brush my hair then throw my head back (adds great fullness and body..lol)but there is no way I can do that now. I don't have these feelings all the time but enough times through-out the day to get on my nerves. Also, when I go to bed if I turn my head all the way to either side, I get a fullness and hard pulsating in my head again.If I look ahead, the feeling stops. I asked Dr's if a vein was being pinched and they said no...said they are very proctected against things like that. Sorry this is soooo long but I need some answers and need to know if anyone else has ever experienced ANY of these things. Thanks in advance.

 
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Old 08-27-2002, 07:33 PM   #2
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Dizziness can be a symptom of so many things. If you do not have an inner ear problem, have some blood work done. Thyroid dysfunction, post viral fatigue--epstein-barr can cause dizziness. Testing hormones and antibodies for certain viruses can give your doctor the answers.

 
Old 09-02-2002, 01:34 PM   #3
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Check out Mal de Barquement Syndrome

 
Old 09-03-2002, 08:25 PM   #4
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Thanks for your replies. I had bloodwork done and everything was fine. I also checked out the other conditon that was mentioned and that was for people who have been on a cruise. I haven't been on a cruise but I do have alot of the same symptoms.I thought for sure thats what I had until I got to the part where it said it happens after being on a cruise for a few days. Went to Dr.'s appointment last week and said I had fluid in my left ear. I don't think that is the problem because my ears were checked when this was happening and I was told they were fine. I just wish I could figure out what is causing these sensations. It sure takes the joy out of everyday living.

 
Old 09-06-2002, 09:02 AM   #5
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Hi LadyinNY,
When you mentioned the feeling of being in a car and seeing the car move beside you and it feels as though your the one moving......boy oh boy.....that's me! I year ago this past May was when it all started. I did go on a cruise and that's when it all started....never went away. I went to doctor after doctor and all my tests came back normal. This feeling of be unsteady/lightheaded was ruining my life. I then became depressed because I didn't feel right and didn't want to do anything or go any where and I'm an outgoing person! I finally started visiting the stress & anxiety board and learned a lot. I am taking amytriptyline (sp?) 25mg at night and boy do I feel better. It's an anti-depressant, but I'm not as dizzy anymore. Some days I'm 100%, but then there are those days when I still feel like the floor is shifting on me. I was going through a lot of stress during that period of time in my life so I just excepted that this was all stress and anxiety. I'm not saying this is the same case for you, but I just wanted to share my experience with you. I hope you feel better and figure out what's going on with you soon.
Take care!

 
Old 09-06-2002, 10:22 AM   #6
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OMG...I'm not the only one with this problem. What a relief. Ya know, my dr. says he believes its just stress and has prescibed xanax. 20 years ago I suffered severe panic attacks so bad that it developed into agoraphobia. I was trying to remember if I had this same type of feeling back then. It seems to me I did have this swaying, floor shifting, light headedness, etc.,back then. I have been going through alot of stress this past year. My mom passing away, starting my own business etc. I sure don't want it to turn into the panic attacks I suffered with for 4 years. I've noticed also that I have good and bad days. Some days no swaying etc. at all. Other days I have it all day long. You say you went on a cruise though. Maybe you have the Mal ??? (sp). Did you ask your Dr. about it? Anyway, I am so glad you replied. I feel better knowing I am not alone. Thank you p.s. I haven't taken any of the xanax yet. I wasn't really sure if I needed it.

 
Old 10-01-2002, 08:33 AM   #7
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Hi LadyInNY,
I am just reading your reply now, so I hope you get this. It does sound like you've been through a lot of stress lately and I am sorry to learn about your mother's passing. How have you been feeling these days? I am still on and off, but I am so thankful it's not like before. This did all start after the cruise so I was convinced I pick up some inner ear virus or something. The ENT checked everything and I was fine. I never did have an MRI done, but that's when I started visiting the Stress & Anxiety board to learn that what I have is depersonalization/derealization. I just feel as though I am outside my body looking in sometimes and that's when the lightheadedness hits.....strong! So, now I know when I begin to feel that way I take deep, deep breaths and tell myself it's "okay". Funny thing is, my ears still get full at times and that is why I had thought I had an inner ear problem......go figure. Well, I hope you doing better!

 
Old 10-11-2002, 11:43 PM   #8
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Hi LadyInNY,
Your post was awhile ago so I don't know if you've managed to get your dizziness treated successfully. I had the same problem starting early this year and found it very hard to describe it to my doctors. I went to see a neurologist because I had a stroke a few years ago and wondered if my dizziness is related. The doc didn't think so since my stroke has 'stabilized' but he did prescribe me Duxaril (almitrine/raubasine) and is used to treat dizziness related to hypoxia. It did help within 24 hours, as it did with his other patients who complained of 'unexplained' dizziness. I wasn't sure if the drug was the reason I felt better as I have other ailments but last week I ran out of it (I'm out of the country at the moment) and in less than a week my dizziness returned. The difficulty I had describing the dizziness is because it isn't the usual vertigo, the room doesn't spin, I don't lose my balance and I can turn over in bed with no problem. What I do have, I can only describe as going on INSIDE my head, the movement is inside my head and more like a gentle (but unpleasant!) swaying, like what you described about being stationary next to a car yet feeling as I'm the one moving, and I get this very heavy feeling in my head such that there is a dull ache. It's not a headache but the heaviness in my head, as if it carried a bucket of water inside, makes it hard for me to hold it up for long. Coupled with this dizziness I have fatigue and breathlessness which is due to a potassium problem though the docs said my dizziness is not related to the other two. Thr Duxaril did help, though, and you might want to check it up on the net for yourself. At first, I put it down to stress and anxiety and I still don't rule those out but the Duxaril helped by getting more oxygen to my brain. Elaine0706

 
Old 11-23-2002, 12:28 PM   #9
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HI, also have had swaying feeling for 6 weeks now, they say it is either BPV or Labrynthitis and that there is fluid in my inner ear. It's slowly getting better but v slowly. I hate feeling like this. Have you tried Cranial Osteopathy???

 
Old 11-24-2002, 04:43 AM   #10
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I've been dealing with these symptoms for two and a half years! Seen over 70 different docs, had thousands of dollars worth of tests, and still haven't gotten an accurate diagnosis. You start staggering like your drunk - I know the feeling. We are finally coming to the conclusion that this is inner ear related as other possibilities (MS, tumors, etc) have been excluded. You may have one or more different things. Some of the possibilities are: benign paroximal positional vertigo (seems to be brought on by certain head movements); labrynthitis, vestibular neuronitis, cervical arthritis, seizures, MS, Chiari malformation, or peripheral neuropathy. And the list goes on. As you can see there are many different things which can cause such symptoms. The key is in finding a good doctor who is willing to look at all the possibilities and eliminate each one through testing until they find the cause. It may be a long hard road; but dont give up hope. You are your own best advocate. And remember that when a doc tells you that nothings wrong because the tests say so - a lot of times it simply means that they cant figure it out. Good luck, and God bless.

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Old 11-24-2002, 05:05 AM   #11
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Have your symptoms lessened Lori? Any ear feeling or inner ear fluid buildup? Is it still there when you are sitting or just walking? Sorry for the questions...

 
Old 11-25-2002, 09:32 AM   #12
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I come back to these boards once in a while to see how everyone is feeling. These boards were a savior to me when I was going through exactly what you all are going through. I was "dizzy". Felt disconnected from my body and not with it. I had fullness and pressure in my ears and the clicking and pounding, etc. Went for every test under the sun, MRIs, CT scans and scopes and probes and drugs and bloodwork... you name it... I tried it. NOTHING worked. I was fine and the 10 different doctors I went to told me "I was fine." I can't tell you how many prescriptions for vallium and paxil I had but never filled.

After a year of hell. I found a doctor that told me I may have a condition called Eustachian Tube Dysfunction. Your eustachian tubes connect from the back of the nose to the middle ear. Apparantly if this tube becomes inflammed or infected, it will cause the symptoms we have and are experiencing. There is no one good test to check for ETD. However something called a tympanogram can indicate a eustachian tube problem. They are not always accurate, as I am living proof.

Anyhow, I received a simple procedure in the office where they put little tubes in my ears. The same kind kids get for middle ear infections. Let me tell you... 2 weeks after the procedure the fullness started going away, and 2-3 months later the dizzyness went away. Now, I can't promise any of you that ETD is what you have since there are so many possiblities. However, I hope maybe someone can benefit from my story.

You can email me if you have any other questions about my condition and treatment... I would be happy to help if I can. wchambers@hessert.com

Good luck to you all and don't give up... My thoughts are with you all!

Love, Wen

 
Old 12-10-2002, 10:38 AM   #13
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Wendy, my ENT said that if you had a problem with your E tube, when they use that equipment to check for middle ear pressure, it wouldn't come back normal. Is that right? Also, with ETD do you always had hearing problems?

 
Old 11-28-2004, 03:20 AM   #14
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Smile Re: Not really dizzy but.......

I have the same dizzy unsteady feelings almost every day for the last 20 years. Thought it was only panic and anxiety attacks, but now wondering if the unsteadiness gave rise to the anxiety. I did have some middle ear infections and they said eustachian tube dysfunction, so maybe that is the reason. I will see an ENT again this week and hopefully something will come of it. I had two brain MRIs recently and they ruled out acoustic neuroma and say the brain looks fine. There is still a hyperintense signal 7x4mm that they say could be a nonpneumatized portion of the petrous bone. I don't know what that means exactly. I do know that something is making me even more dizzy lately and it is really limiting me, like no gym for the last six months! If anyone has any thoughts or advice, I am open. Thanks you all!
Steve

 
Old 11-29-2004, 07:17 AM   #15
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Cool Re: Not really dizzy but.......

Hi,

I'm in NY too. I've had these symptoms (and others) since April 1995. Very distressing and anxiety provoking.

I too have had all the testings (some repeatedly) and been seen by many specialists. I have not received a firm diagnosis.

I also have had to find new ways to blow dry my hair and (sometimes) shave my legs - depending on how my symptoms are doing.

Ask your doctor first, but you may want to try mixing plain aspirin with a teaspoon or two of Children's Liquid Benedryl. I have found that this combination helps lessen the symptoms and take the edge of the headaches that usually accompany my wooziness.

xo

 
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