Gwen,
Lets see, I first got sick 2 1/2 years ago. Started with a really bad cold, nothing like I had ever had before. My head was really stuffed up, ears were intolerably pluged and ringing, I was having virtego, disconnected feeling, and panic attacks just to name a few symptoms. I was diagnosed with sinus infection and put on antibiodics.
Then started the series of doctors I saw over the next years. I began to see my primary who did every test imaginable on me and everything came back normal. I saw a nerologist, an endocronologise, 2 ENT doctors, I've had an MRI, CT, and chest X-Ray done all normal. Along with all sorts of blood work and what not. Just in the past 7 months has my doctor told me that I sometime had Epstine-Barr virus, which I figure is what i had to begin with.
No one has been any help at all. I just started looking up my symtoms in the past few days on the internet. Decided that since I had all the symptoms for "lab" and I had a major viral infection that, that is probly what I have had.
It has been awful though, all the symptoms i've been reading that other people have talked about fit me perfectly. Dizzy, disconnected, vision problems, hands tingling every so often, tinnitus, etc. i've been diagnosed with ETD by one of my ENT doctors but she basicly told me there was nothing I could do. It has been a very frustrating struggle.
I was in college when this all started and did so poorly my last years becasue of it. It is so great to know that i'm not going crazy though and that there are other people out there like me. Such a relief.
The only thing I don't get is if I do have lab why hasn't it gotten better? I've read that it is suppost to get better in 6- 10 months. I just hope I don't have to deal with this for the rest of my life. The hard part is living day to day no one understanding what I feel like. So, thanks for listening and understanding. Rose
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