I really dont even know what to think or do anymore, and that's why I've turned to the net.
I've been to a 'million' doctors and had tests done ...ENG, CAT Scan, hearing, pressure, tonnes of things...I've been to an ear specialist, my Doc (about 7 other GP's) my eye doctor, a reflexologist and I'm going to a nurologist and Natruropath within the next 3 weeks. I'm disgusted and dont know what to do. Everyone in my family thinks I'm 'nutty' and have a psychological disorder but my mom and grandmother. (they've thought Lupus, MS, heart disease etc... but I'm not sure)
The other night my heart was a 130 resting and I went to the ER with my mom, they did an EKG and said my heart was going WAY to fast but I was wasting their time nothing they could do.
My GP said an ear infection at first then she said inner ear..nobody seems to think there is anything wrong with my inner ear or any other part of my body.
I practiaclly trashed my 3rd year of university because of this and haven't been to my job since end of Jan or seen any of my friends...everyone has abandon me..and I feel like I need some insight if anybody might know what I have by these symptoms...
I might as well list them...
It all all started at Xmas time...having werid out of body detached sensations..like I know I'm me but I feel as if I'm not incontrol..I know I'm walking but I dont really feel as if I'M walking. it's the most difficult thing to explain. I know I'm talking but I dont know what I'm saying ahead of time and I make sense but I dont think it sounds like me talking (EXample would be when you talk into a microphone in a crowd) ...totally out of body...depersonalization.
Had a panic attack once or twice until mid Jan...then one night after x-country skiing I turned PALE PALE white and had the depersonalization and it never went away. I was about to go to Florida and and still felt ill ill ill so I went to the doc and she tested me for mono, thyroid etc... negative...
gave me zithromax got to the USA got double sick went to hospital and had two more ear infections took anibiotics ended up alergic to them.
I have a almost fluid feeling in my right ear yet all tests say I dont.
sarp pain every once in a while in same ear (no ringing) sometimes when I talk my ear pluggs and I hear a quick echo but it goes right away.
I dont have vertigo, but I have a motion sickness when I walk..not spinning just icky blah
sensitivity to salt
depersonalized ALL the time
pain in right eyebrow area when touched/pushed lightly.
when I cry my sinuses gets really full and it feels like mucus is going into ear and pugging it but only when I cry. body feels cold all the time, turn ghost white for no reason, and fingernails purple...scary purple. heart rate always too fast just getting up to go to the bathroom
faint, lightheaded when I stand up, walk or move too fast.
Flouressent lights make everything amplified and I feel like I just have to leave right then, I can't breathe and everything gets dark and I feel even more detached and light headed...I'm flat out SCARED!
get motion sick spcaed out feeling when I drive a ride on lawntractor or after I ice skate and take the skates off to walk home.
My throat is very sore on and off and white spots apear and disapear on my tonsils (the doc said they are clogged pours) cause they go away as fast as they come.
I jsut dont even know what to think or do...cause my symptoms are something unlike what most people can grasps I guess and it causes them to dismiss me, meanwhile being 21 my life is going to ...yeah anyway if someone could PLEASE give me some insight to what the happening to my slowly going body I'D APREACIATE IT SOOOOOO MUCH. Or even what tests I should get or which road to take now.
The symptom which is the most disturbing is the depersonalization and the senstivity to flouresent lights making this worse.
I'm not a Doctor, but I've suffered from panic attacks and OCD for almost 20 years.
Most of your symptoms sound very much like what a person having a full blown panic attack goes through.
You might want to check out some of the posts on the Panic Disorders board.
You have lots of symptoms, and it could be more than one thing is going on, but one thing I'm pretty sure is happening is anxiety and panic. I have also experience that out of body, depersonalization, and it is a classic anxiety/panic symptom. Also a floating feeling, imbalance and dizziness is very typical of anxiety. It's very wierd and very hard to describe. I had several episodes back in 1994 of the out of body experiences. I also had a few out and out panic attacks, usually in the middle of the night, and it all developed into a classic case of depression. I also had problems with lights, particularly florescents. It's amazing what anxiety will do. So if you're feeling dizzy from some other illness, anxiety will undoubtedly compound the problem.
A very kind gynecologist directed me to a psychiatrist, and as soon as I realized what was going on I started to feel a bit better. The psychiatrist put me on Zoloft. She explained that it would take several weeks for my body to adjust and that I would even feel worse before I felt better. She was right. Even though it lifted the depression almost immediately, it made me feel hyper, nervous, and uptight (took a little clonapin to get me through it). But I stuck it out, and got up to 100 mg (backing down to 75 when I felt too manic and happy). She wouldn't let me quit. That's important. Finally, after 4 weeks, I woke up one morning and felt really great, possibly for the first time in my life. I have been on Zoloft for almost 10 years (up and down depending on relapses) and go to a great psychiatrist who treats be for Generalized Anxiety Disorder. This runs in my family, along with panic disorder and depression. I was a "star responder" to Zoloft. My twin sister takes Prozac. Sometimes you need to try a few drugs before you find the best for you. If you try this, please give it a good chance to work - don't give up on it too soon.
Good Luck, and I know you will feel better. Anxiety plays a role in most illness, and it certainly hasn't helped my bout with lab or whatever it was.
My advice to you would be to see what the nurologist has to say and maybe even another ENT doctor for a second opinion. You may have a inner ear problem that is being missed diagnosed and as fustrating as it is for you I would suggest investigating that some more. It is my opinion that doctors sometimes are quick to diagnose you with a panic disorder and put you on medication with out considering the physical factors which may be the cause.
I currently have some of the same symptoms that you do and since being diagnosed with an inner ear disorder the panic attack symptoms and ear fullnes have been the most devestating. I am as you are, very fustrated however I am determined to completely rid these feelings of panic and anxiety that my ear condition has caused once and for all.
My guess is that there is something going on physically which has caused massive anxiety. Some of your symptoms sound like anxiety BUT not all of them. Read my posts on this board about tempero mandibular joint disorder - this could explain why your ears feel full even if they haven't got fluid in them, it would also explain the temple pain - I have experienced major anxiety with this disorder. Like you, I was a 'mystery' until my dentist pointed out I could have this, some people experience all of their symtoms as dizzines/ear pain/temple pain/ear fullness etc, NOT jaw pain. I was very, very disconnected when I first got this, and problems with flourescent light are both a symptom of depersonalisation and tmjd. I don't know that you have this, but it's definitely worth looking in to.
Absolutely DO read 'Hope and help for your Nerves' by Claire Weekes (Might be called something different in Canada.) Just do a search under her name. Loads of people on the panic/anxiety boards talk about this book as life changing - she teaches a brilliant way of learning to control anxiety symptoms which, I know, can be totally terrifying. Also
consider trying an anti anxiety medication. I know this is frustrating as some of your physical symptoms may not be caused by anxiety and you need to get to the root of what's causing them BUT you also need relief from the anxiety you are suffering. Once you get that under control it will give you a clearer picture of what else is going on.
Most importantly - you WILL not always feel like this, you will get better - the cognitive symptoms are awful and when you feel them you think they will never go BUT they can and will, the book I recommended would help a great deal with this.
What do I do?? 
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