Ponyboy, please read my post in the MS forum.
- MRI does not usually confirm or discount MS, in fact there is little that can apart from really bad symptoms and/or direct evidence of de-myelination. The "bands" that people talk about in spinal fluid analysis are a good indicator of immune reactions but not definitive of MS by any means. My neurologist showed me my brain scan and that of MS patients and they looked very similar, BUT then he showed me scans of other conditions and there is little difference, he is world class and he wouldn't give me odds at the time! Your medic said 98% so that is 50:1, I wish he had said that to me!
- There are only theories about the mechanisms of MS. MS is a symptom of an unidentified illness so the long road to diagnosis starts with eliminating everything else that can be identified. I'm sure you have a problem that is not MS but you need the tests to establish what exactly it is.
- I spent 6 months with a "likely" diagnosis that has now changed (not sure for the better or worse) and it is no fun to have it in your mind day and night. Please don't go there.
- If you aren't paralysed, walking strange or suffering vision changes then get it out of your mind completely until someone confirms what is wrong.
- Even MS can come and go (check out R/R MS), it is not always as bad as people think. I have an aquaintence with MS and OK he walks strange but he can walk and he plays the meanest board games I know. He has been suffering for a long time (too embarassed to ask how long) but he is by no means finished yet and I suspect he will outlive all of us.
Don't worry until you have the facts.
I wish I remembered where it came from but -
"Anticipation is 50% of the pleasure but 90% of the pain"