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Old 08-07-2003, 02:05 PM   #1
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Hi Subs - my gosh you sure do know your stuff about these inner ear problems - how come?

I would really appreciate your advice - ok - brief background - 2 years ago had sudden and sever onset of extreme vertigo/imbalance combined with nausea etc etc. Diagnosed with Lab's it persisted to the extent that I could not get out of bed for 9 weeks unless crawling. Got a lot better but lots of motion sensativity together with a persistent feeling of walking on a matress etc etc. It has basically waxed and wained coming and going. But over the past year I have had some symptom or other every day albeit some days better than others. What concerns me is that I have read all the links and yet nothing specific fits my problems.....this worries me a little.not least as I just want to put a name to this problem in oredr to see an end to it at some point. I currently feel really not to bad at all (dizzy free more or less) when I ma semi-reclined or seated say in the sofa with my body and head supported. However problems start whenever I move around - I bvasically feel that my fine sense of balance is gone - basically I feel a combination of lightheadedness with the enviroment occasionally 'jumping or shifting - it appears to actually visually shift too'. I get odd feeling of falling through space or exagerated senstaions of movement. I can make my head dizzy if I look down for sustained periods or shift my head around alot. Likewise I find watching shifting objects - cars/TV if shaky etc can disturb me and make me feel icky. But the most annoying feature and somewhat distressing is the persistent imbalance when waliking or standing. Have you heard of this problem before? I have had an MRI scan so we can safely rule out anything ghastly - even though I know this the symrptoms still freak me. It has gotten to the point that i feel genuinely afrraid to move around alot - prefering to stay either sitting or layiong down in order to feel symptom free - is this making things worse? I get so aftraid that I ma going to loose my balance altogether (not falling) just having no sense of balance at all. This of course has never happened but I find it distressing to still feel this way. My consultant says that it is deff, inner ear likley VN after effects that will in time burn out albeit he couold not give a time limit. He said that myinner ear is over senstaive (whatever that means) hence the imbalance. Have you heard of what I ma describing? any ideas as to what could be wrong? I ma scared and feel a bit lost. Thanks

 
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Old 08-07-2003, 04:48 PM   #2
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........"What concerns me is that I have read all the links and yet nothing specific fits my problems".....

......"My consultant says that it is deff, inner ear likley VN"........


----You do not see it in the below links---I sure do??

[url="http://www.medical-journals.com/r03vn.htm"]http://www.medical-journals.com/r03vn.htm[/url]


or here:

[url="http://www.tchain.com/otoneurology/disorders/unilat/vneurit.html"]http://www.tchain.com/otoneurology/disorders/unilat/vneurit.html[/url]

I think your consultant...may have called it correctly....for most of us....it is not a alway upward set of improvements over time....for you it is that and them some with the baby and etc......what has it been 12 days 14 days...whatever...????????

In the first article....if it is VN---then there is some nerve damage...nerves grow back very very slow...and then need to be trained/retrained...which can not happen until they re-grow enough to be there to train/retrain........


Do not think you will find and excat match...did you get an ENG done????---you know what the lightheadiness is from---brain is working overtime to sort it all out---vision thing---goes with the vestibular prob as in "Fuzzy Vision" write up....etc....


...."He said that myinner ear is over senstaive (whatever that means) hence the imbalance".....

Think he means " brain has not compensated yet"---it will!

Think it is good to push---but only to the point where----it is productive


My guess(just a guess)you are pushing very hard---after the birth---to get back---it will come---but with time---and for each of us the time will vary.

Oh-by-the-way...VN(with BPPV) is excatly what they said I have---and every one of the things you listed and I mean all---I have/had.

Anyway that is my guess.....if it is VN...nerve growth...is prob the pacing element in getting back in balance...I think.....

Ask your Consultant---at what rate---do human "Nerves" usually grow/regrow?


 
Old 08-08-2003, 04:59 PM   #3
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Hi Subs30 - Thank you ever so much for your comforting words they really helped me soooooo much. I read your links which as ever were excellent. I was out of my bed today and sat outside for the best part of the evening and felt not too bad. Like I said before it is mainly standing and walkin that makes me feel off balance. Did you ever feel that your eyes focused at different rates or were a bit fuzzy? I have read the link on tis which was most reassuring - just wondered if you had noticed it yourself. I have not had and ENG done - I deffinately will. I take on board your comments about pushing myself ...I think you are right..thanks. I did not know that nerves could regenerate so thats another great point I will be asking about that too. i sometimes wonder if I should get anothet MRI done - what do you think - my last one was 18 months ago? Hope you are OK - last question - how did you reduce/cure the imbalance senstaion? thanks for your time and assistance.

 
Old 08-08-2003, 08:05 PM   #4
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....."Did you ever feel that your eyes focused at different rates or were a bit fuzzy?".......

Yes and in addition to that--- for the first two weeks after the start of it all---I saw double----if I looked at the TV I saw two TV's side by side---but one was a little above the other---when I read an article in the paper/book/mag I had to hold it off to the side so that my nose would block one eye---I found that holding it to my left---worked the best.


...."I did not know that nerves could regenerate so thats another great point I will be asking about that too.".......


Yes in most cases they can---but they take a lot of time---I was not joking about asking your consultant(Doc)how long(avg)....think you will be amazed.

---But don't let the answer slow you down


---remember if had lost your entire left vestibular system(which you or I did not)---your right would take over---with time---and compensate---geeze---I hope the Doc is a neurologist---but an ENT should know also.....


.........."i sometimes wonder if I should get anothet MRI done - what do you think - my last one was 18 months ago?"........


That is up to you and your Doc---if you feel its necessary---for your peace of mind then do it---not sure about costs there------here about $3,000.00 plus $$ to have it read.....mine was taken about 11 months ago---showed nothing.....My Primary Care Doc ordered it---she looked at it---nothing----the ENT Doc looked at it---nothing---the neurologist looked at it---nothing---in fact he said it was "unremarkable"---never thought I would like that word--so much!!


...." last question - how did you reduce/cure the imbalance senstaion?"......


Well I have not "cured" the imbalance senstation---completely---yet---but it is reduced.


I'm not sure how I did it---I just kept moving---and one day---in the 10th/11th month---I noticed that---even if/when I got the senstation---it was like---the feeling you get---from riding a roller coaster, etc....it was like "wow" instead of---making me feel ill


Now---in the 12th month--it is greatly reduced---and still a "wow" like feeling---sort of fun!

I'll leave you with a few "one line-r's" from the two web sites in the post above...note the one on BPPV.....:


........."The term "neuritis" implies damage to the nerve, and "neuronitis', damage to the sensory neurons of the vestibular ganglion. There is actually evidence for both.".......

....."In spite of the limited pathology that would suggest involvement of the entire vestibular nerve, there is reasonable evidence that vestibular neuritis often spares part of the vestibular nerve, the inferior-division (e.g. Fetter and Dichgans, 1996; Goebel et al, 2001) although not all agree (Lu et al, 2003)"...........


......"Furthermore, it is common to have another dizziness syndrome, BPPV, follow vestibular neuritis. Presumably this happens because the utricle is damaged (supplied by the superior vestibular nerve), and deposits loose otoconia into the preserved posterior canal."...........


........." In most instances, it is most cost effective to see a neurologist prior to obtaining an MRI. Blood tests for diabetes, thyroid disorders, Lyme disease, collagen vascular disease and syphilis are sometimes performed, looking for these treatable illnesses. However, it is rare that these are ever positive."..........

Oh---

....."Hope you are OK"........

Yep I sure am Thanks

---think we will both be "ok"---and beat it!!


 
Old 08-08-2003, 09:41 PM   #5
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subs-

can never thank you enough for all this great info... thanks....

navelis -jill
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