Patulous Eustachian Tube - Inner Ear Disorders Message Board

Jay Werner · 05-12-2003, 02:18 PM

I am a suffer of patulous eustachian tube of five years and seek anyone who may have this same rare ear disorder. I have seen many ent doctors without any good advice or solution. May symptoms are fullness in the ears with crackling and popping sounds. I've been told that the eustachian tube is always open which is the reason for the loudness of my voice. Under any sort of duress my ears pop open and my voice gets extreemly loud as if my vocal cords are right next to my eardrum.
This has been very difficult to deal with since the loudness is so distracting that it effects my concentration and speaking ability. I totally avoid social engagements and dread holding staff meetings as my job requires. I am very curious to know if anyone else has this disorder and what may be the cause.

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Jay Werner

eman22 · 05-25-2003, 01:13 PM

Your answer to your problem from what I have been told is Dr. Dennis Poe in Boston MA. From what I have been told he is the EXPERT in PETD and all other ETD problems. I myself have an appointment with him this month. I have spoken to many people who have our problems and they all confirm that he is the doctor to see when all others cant seem to find a solution.
I don't know if this helps, but if your like me, any news is good news. ETD problems are maddening and most ENT are unable or unwilling to help.

Jay Werner · 07-21-2003, 08:40 AM

Hello Asian eyes,
I'm still receiving post from Healthboards.com. Tell me about your symptoms, how long and and what you do for relief.

Jay

Jay Werner · 07-23-2003, 01:24 PM

eman22,
I'm interested in talking with Dr. Poe and possibly setting up an appointment. Do you happen to have his
Phone number? Also, let me know how your appointment goes.

Jay

eman22 · 07-24-2003, 09:53 AM

Due to the fact that the moderator wont let me pst phone numbers on this site, you will have to do a search for Dr. Dennis Poe. He's real easy to find. Just do a google search under Dr. Dennis Poe, Boston MA. Unfortunately I had to cancel my apt with him last month and I rescheduled for Oct 2nd! Be prepared to wait a LONG time to see this man. All I can say, is that from talking to SEVERAL people, he is THE man to see for P/ETD problems. I guess I'll just to have to see for myself.
I have made and appointment with a doctor from the Johns Hopkins Medical Center in Maryland. Dr. Carey is his name I beleive. Anyways, He is one of the few ear doctors that I was told look for specific problems that others tend to over look. At this point, I just want to see someone who specializes in eustation tube dysfunctions, PERIOD! Im hoping there are some answers I can get other than "I can't find anything unusual."
I will let you know how my apointment goes next Wednsday. Like you all, talking on this site and sharing ideas and treatments have been a real source of comfort for me. Hopefully I will be able to gather some treatment options that may help everyone else as well.
Take care