I only just logged on and got your message re ME and candida. Very very interesting. I do believe this is fungal related, and my 5 days ago put me on Nystatin, I felt yucky for 2 days but now i'm feeling a bit better, ie the fog is lifting a bit and i'm able to cope better. I do believe mine is fungal rather than MAV as it started slowley and built up over a year, and especially when i was pregnant, I really don't think migraines operate like that they just come on not this slow start. Pregnancy is known to inflame candida. It also got worse when one of the many gp's i have seen put me on a course of antibiotics, also my yogi diet was mainly carbs and lots of them which i know is bad for candida. I have also felt like there is alot of gunk in my eustachian tubes. It all leads to candida, my gp thinks it started with a virus, stress etc then pregancy and the more stressed i became the worse it got as i didn't know what i have had for so long. i am still taking herbs and i do hope soon i will be better. i really really trust the guy in perth but needed the drugs to help. thanks for your info you really have had a rough time. how are you feeling now?? do you ever thing that your immune system has been lowered by ME and thats why you caught another virus?
Always great to hear from you. Glad the nystatin seems to be helping. And yes hormones play havoc with candida. I used to be desperate around period time and avoided antibiotics like the plague as candida loves those.
Do I think M.E lowered my immune system? Yes and no. I certainly wouldn't describe myself as fantastically healthy, lol, but If I 'm honest I think the biggest culprit for me is stress. I got M.E during a v. stressful period of my life and I got this just after some big stress. In between the M.E and the lab I had my first bout of tmjd - without question a clenching induced stress related condition. I think I learnt a lot of things from illness the first time round, but the one thing I didn't learn was how to go easy on myself, workwise, how not to drive myself to the point of ill health. If anything, once 'freed' from the ME, I chose to drive myself harder to make up for lost time. It has finally, finally taken dizziness to make me look long and hard at the stress in my life and to think about changing it. This is what I have spent the last 2 weeks doing.
I guess at the moment my health is very up and down, I had a good phase, then a very bad phase and now I'm somewhere in the middle. I think at the moment it is the psychological factors that are really hard. I do feel robbed of time, this was easier in my twenties, but for me anyway, harder in my thirties. I want to move on with my life, all be it in a different way from before, and I'm very upset that I can't yet. And if I'm honest, in my darkest moments, I'm worried that I might never be able to now, that this is how I will be. I suppose I'm also angry that this isn't the first time I've been ill, but equally humbled by the knowledge that some people are born in to a life time of ill health, or are much sicker than me. In many ways I am very healthy.
Sorry, Kippers, I'm rambling, strange isn't it, even just through communicating on a health board you can really feel you've got to know people. I intend to post my e mail address at some point, I am going to see whether it's possible to alter my info to include it. Hopefully one day we will all move on as we are fantastically healthy again, but I would hate to lose touch with the people I've got to know on here.
Keep in touch, Kippers, let me know how the nystatin goes. I've also been thinking of you with regard to the loss of your friend. I realise you may not want to talk about it on here, but grief, especially in the initial stages, is really tough, I so hope you're ok.
Also wanted to ask, are you thinking about trying the anti candida diet? Funnily enough, out of all the foods that used to make me ill, dried fruit was the absolute worst - to this day I can't eat a mince pie or a piece of fruit cake and I also can't drink carbonated sugary drinks. Other than that my diet has been back to normal for years.
best,
hbep.
[This message has been edited by hbep (edited 08-18-2003).]
Thanks for your speedy reply. I would love your email address if you post it??
I understand totally about not thinking you will ever be better, I've had many a day like that. I actually just got some info on panic and anxiety and it basically says that if you have a physiological symptom that really frightens you, you then associate that symptom whenever you are in the same situation again. For me, being alone or teaching yoga, as my first ear popping experience was teaching a relaxation during a yoga class (can you believe it) and I had to keep going as you can't just leave people hanging in the middle of a relaxation. So now I don't like being along so much and I don't like teaching. Anyway I'm going to work through this as the literature says no one has ever died from an anxiety attack!! thank god for something.
I have a theory about my sinus fungus infection. Before I got sick I used to do this practice where you pour water up one nostril and let it come out the other to clean out the sinuses (strange but true). When we went to Byron Bay I was run down and I probably kept doing this practice (can't remember), well if the water had been contaminated with spores or I didn't let the water drain out properly it might of started the infection??? Also last November before this got really bad, I did the same netti procedure and 1 hour later I felt awful, I suppose making my sinuses even wetter was not a good idea?? Re diet I'm not doing the anti Candida diet but the blood type diet, but I have cut out sugar and wheat and dairy (although the last 3 days I have strayed a little). I always feel better in the morning and worse in the evening, I feel ok now but yucky last night. I just believe what the guy in Perth said, and its strange that he didn't mention diet as I think he would of if he thought it was a consideration, but my GP here wants me to get my immune system working optimally and that means cutting out any foods that could cause and intolerance. I must admit when i eat sugar i have a lot more aches and pains through my body.
Enough on me, oh one last thing, re the friend who died, its a strange one because he is actually my ex who I lived with in London, so he isn't in my life but we had email contact. I wasn't in love with him at all anymore (thank god I here you say as I’m married with 2 kids) and when I left him I did my grieving then so I was more shocked then distressed about someone not being there for me on a day to day basis. Maybe I'm just blocking it out big time but I do feel ok about it now. hope that makes sense, and I don't sound to cold.
Have your ear sensitivies lessened (ie the loud noises etc) are you better equiped to deal with this, or are you still suffering from the anxiety? I'm interested in how this effects our confidence and how we try to cope with day to day life.
cheers and i hope you're enjoying the sunshine.
kippers
Fraid this'll be a short one as I am having a v. rough morning of it dizzy wise.
About your ex, no it doesn't sound cold at all, in fact I was pretty blown away when I read that as my friend who died was also my ex!!! Not a common experience I'd imagine amongst women of our age. And I totally understand what you mean about grieving them the first time around.
Woke up today and had my first ever bout of frantic visual spinning - just awful - still feeling ropey. I think I did a very stupid thing for a couple of days, which was doing some VRT which involved rapidly rolling from side to side. I stopped that but have felt worse since and think I might even have 'helped' myself develop BPPV. (Benign positional vertigo.) Not sure, I am so desperate about it I might phone the specialist today, see if this is possible, it seems to come on very badly when I lie on one side, and get better/nearly stop when I sit up. Sorry for rambling about this but am so upset at developing yet another new symptom at a year in. Yesterday was my years anniversary (I won't be getting out the champagne to celebrate.)
I know I've mentioned this before but the best book I've come across about anxiety is 'Hope and Help for your nerves' by Claire Weekes. (It might be Clare without an I) She talks about sensitisation to certain places, and how people start to avoid them etc... I am no longer getting the vibration in the ear in any major way, thank God. I hope I've seen the last of that, and it certainly helped me to get the anxiety under control - although not completely - I fail to see how anyone could be anxiety free with all this horror going on. I'd be so much happier if I stopped getting new symptoms.
Anyway, have to go, feeling really queasy. Just to say I am an excellent example of how it is possible to get rid of candida. I had it really, really badly, and I managed to kick it.
Anyway, I'll write again when I'm less unbelievably nauseous.
Sorry to but in folks, but just read your last post Hbep, it sounds awful!
Do ring the hospital, I'm sure they'll see you again if you've taken such a turn for the worst. If it is BPPV take hope from the "Epley Manouvre" post.
Hbep are you there?? 
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