Advice From Dizzies Please - Inner Ear Disorders Message Board

willsmom · 09-27-2003, 05:24 PM

Hi guys - hope you are all ok

Right how do you guys cope out and about - I have decided after a few months of doing nothing much outwith the house to try and get back into the swing of it.

So I tend to feel not too bad and then all of a sudden I can get really strong feelings that I am unsteady and woozy and lightheaded and kinda like the world is swaying a little. So I tend to tell myself that all is ok and I am oing feel fine - but it still freaks me out and I can end up feeling really dizzy for a couple of hours and the ok again. There is no real pattern to it so thats why I stopped going out much but I really am bored with that approach so I am going out again.
It is a little easier that I thought as I do have spells feeling relatively normal - its just when the dizzies strike it is quite over whelming - how do you cope best and can you relate.

thank you all so much and I really hope that you are

free!! xxxxxxx

dizzy572 · 09-27-2003, 08:42 PM

I am only on week 4. Tried a couple times......I didn't drive though.....Steve, my mom or my son drove.
Sometimes I didn't do to bad. Last Sunday I went early in the morning to the market......got to the back of this large market and got to feeling really wierd.........managed to get out of the store and told Steve to take me to the ER. They gave me blood tests.....cat scan of head and sinus's and they said all looked ok. How can all look ok when I feel this way. Just 5 weeks ago, I was doing everything that every other normal human being does......and now.......I seem to have to rely on others for things......and I hate it.

dizzyinmissouri · 09-27-2003, 09:20 PM

Are you doing any balance exercises? I talked to a therapist at a balance center in Chicago and she said it was essential for me to be doing balance exercises to get back to normal. I have been doing them for about 1 1/2 weeks and I do feel alot better. Going to the store was better for me this week than the week before and I am much freer with moving my head around. She told me it could be up to a couple of months before I start to feel normal and not to give up and to be regular with the exercises. With the improvement I have felt I am not about to stop. They really don't take that much time. She explained to me that some people compensate after inner ear problems just with every day movement but there are those like me who have to do extra. She said I need to do some of the movements daily even after I get back to normal cause the brain can decompensate, which is what I think happened initially this round of vertigo that hit me in July. I had a bad virus in my inner ear 9 years ago and was SO sick with vertigo. I think nine years later on July 12, something (maybe bad sinus condition) caused decompensation. I think going on the meclizine for a long period was a mistake. Anyway, next time it hits I will do things alot differently.
Does any of this make sense?
Well, hope this helps somehow.

NoodyPooh · 09-28-2003, 06:54 AM

Dizzy527...Get an ENG done...I, too, had all the tests...Blood work, Cat scans of my head and sinus's...all came back normal...Only after I had my ENG done did they finally know it was inner ear related.....I understand about being dependent on your family...I didnt drive at all for 10 months and shopping in the stores was a nightmare...Mine turned out to be BPPV...My advice, have your ENT set up ENG tests...Good Luck and hang in there.