willsmom

Hey - read your post - I do not have Mienieres but my house keeper doea and we have talked it over many times cause I have the dizzies so we frequently chat it over.

Any how her symptoms are this - sudden very violent attacks of vertigo (On set has no warning) very very intense when she litterally drops to the floor. She is then very unwell and vomits violently and has an extremely upset stomach (if u get what I mean - do not wish to be too graphic). This attack will last on average 24 hours sometimes a little more. After an attack she has mild imbalance for say 2/3 days and then its as if nothing is wrong again. Initially the attacks would happen frequently and then over the course of 20 years they tappered off. She took the medictaion SERK that she describes as a wonder drug that stopped the attacks and let her live normally. Aside from the attacks her most annoyoing symptom for her was the tinnitus - she said that at first it was mild and intermitent but as the hearing loss progressed with each attack so did the tinitus increase. This she tells me was the hardest aspect of the disorder along with the hearing loss. She is now pretty deaf and wears heraing aids but she has some hearing, she no longer has vertigo attacks (they say it has burnt itself out), she does not feel dizzy but still has persistent tinnitus. She has learned to cope with it all and is a happy person (honestly). You have to remeber that when she got this medications and treatments were not as advanced. These days they may try an opertaion to prevent serious hearing loss. She also said to avoid salt, caffine as they can increase fluid in the inner ear. Also stress - easier sadi than done - right. Well good luck with your tests!!Let us know how you get on.