Thanks for replying everyone.
We never made it to the movie, it was sold out. Maybe a good thing, but I did go for a run, then spent several minutes lying in the grass with my head spinning (not shocking vertigo, I would call it mild). But it only lasted for that short bit of time, and then I moved on.
In answer to some of your comments and questions, I too, question my diagnosis. Meniere's disease has 4 standard symptoms, I have two of those, possibly a third (hearing loss), but it didn't show on the standard test. So what about those other 1 to 2 symptoms? I did see an ENT, but tomorrow I see a Neuro Oto, so this will be my second opinion.
Ilia, I wonder too about our similar symptoms. I am going to ask about BPPV and vestibular dysfunction tomorrow. I think my ENT ruled that out when I didn't respond to that Dix-Hallpike maneuver. Due to the fact that it took almost three months to be seen by the ENT, my worst symtoms had gone away, so I couldn't "demonstrate" very well for her. My family practitioner saw a great demonstration of my ailments, as I couldn't stand straight to save myself, however, that and a few minor finger-nose touching tests were about the extent of her testing before she referred me on.
Ilia, do you have times when you feel normal? Does the dizziness always trigger when you move your head in certain ways? I guess for me, I feel more obvious dizziness when I am lying down, and turning my head too fast can also trigger it. I haven't had severe vertigo but once, at the onset of all of this. I guess you could characterize my syptoms as a buzzy head, motionsickness, occasional mild vetigo, chronic tinitus, occasional lightheadedness, and frequently, things moves about a half second behind when they should. I agree, these don't sound like all the classic Meniere's symptoms expected from what I have read. But I guess the speculating isn't necessary, I will see someone tomorrow who specializes in the ears, so maybe he will have some better answers.
The toughest thing about Meniere's as a diagnosis is the idea that I would have to live in fear of more severe vertigo attacks at any time, and that I might lose my hearing. The idea that I would have to live with this garbage for the rest of my life is unnerving. I am a 34 year old healthy, active, homeschooling Mom for goodness sake! It doesn't fit into my day to have this nonsense going on! It's hard to find deep meaning as to why we are all afflicted with something so incredibly annoying and unpleasant. It could be worse, I tell myself that every day as I look around at others, stricken with far more debilitating diseases. However, when I am in the midst of my discomfort, that doesn't comfort me all that much. I know you all can relate.
Julianne |