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Old 05-24-2009, 01:44 AM   #1
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Donssinus HB User
Unhappy please help! still can't get answers

I have been dealing with pain, popping and pressure in my ear canals for a year and a half now with no relief. When I press right in front of my ear (where the mandible connects) it is always sensitive and hurts and the pain and pressure in this area and the ear canals varies from slight to horrible but is always constant.

This is a constant thorn in my side along with reoccurring sinus infection to various degrees over the year-and-a-half.

I want to cover all bases here because I still am leaving the possibility of TMJ-related issues open and hope to get some feedback from people.

Here's some background:

-These sinus and ear issues came on ONLY after I had my lower wisdom teeth removed in Nov. 2007. Never had I experienced ANY of these symptoms before my tooth extraction.

-I do have allergies to grass pollens and dust, but have had them all of my life and never had these kind of symptoms associated with them. My allergy symptoms have always been consistent (just itchy, sneezy, eyes watery stuff)

- Dentist and Oral Surgeon (whom I went back to see) refuse to believe this has anything to do with my previous extraction. Both see no other glaringly obvious signs of TMJ other than the ear pain, pressure and popping. I have ruled out a visit to a TMJ specialist up until now, simply because my insurance doesn't cover it and I don't have ANY jaw related pain, teeth clenching or any other symptoms that are so common in TMJ patients.

- I have been to 4 family practitioners, 3 ENT doctors and a naturopath during this whole year-and-a-half ordeal. The family practitioners were early on when I just thought I was getting sick often (which.....well, I was with the sinus infections) and they spent most of our visits throwing antibiotics at me and telling me to neti pot (which I now do religiously, but with little relief), but no answers for the ear troubles.

The first ENT doc was no help. I had no signs of infection and she just acted like I was being a hypochondriac. She was extremely rude and didn't even seem concerned enough to CT scan me. I let it go for awhile, quite burnt out on always feeling sick and not getting any relief.

I went to a second a month or so later. This guy seemed more thorough and had the CT done. It showed that I had a significant deviated septum and very small nasal passages, but no answer on the ears. He just assumed the ears could be residual pain from the sinuses. He, of course, recommended surgery but also admitted it might do nothing for my ear pain and pressure. Within a week of the CT Scan, he dumped my insurance carrier and I was unable to see him anymore (which was okay cuz' he was a little introverted and weird)

The third doc I hunted down on my own off of Internet reviews. I was pretty sick with a sinus infection when I went in, but was mainly concerned about the ear discomfort.He was outraged at the infection I had at the time and put me back on antibiotics and had me re-tested for allergies. 2 weeks later when the allergies came up the same and I had gone through the antibiotic, he seemed surprised I was still having trouble and just said that surgery is an option but was very unclear about what I should do about my ears. He didn't go over the CT Scan with me (which is my fault) but did validate that issues were showing up on scan.

He sent me to a colleague who was a neurologist (and, no joke here, HIGHLY intoxicated on something at the time) who insisted I get an MRI right off the bat to eliminate anything "out of the ordinary". I did get the MRI, but never returned to him for obvious reasons.

My family practitioner received the results from the MRI that were clean of anything abnormal and has put me on a strict regiment of steroid nasal sprays for the time being (I was a bit lax on when I used it last time I tried the steroid sprays so I'm gonna try it again- although, I can't imagine it will help my ear pain and pressure.)

The naturopath visit was out of desperation a month ago. He's done what you can imagine he WOULD do. Put me on a strict gluten-free, no-sugar, no-dairy diet and had blood work done (and of course, tried to sell me a bunch of his supplements ) Blood work showed good health and although I feel a bit "lighter" from the diet, it's done nothing to change the feeling in my ears and in fact, the sinus infection I got last week was the worse one I had all year.
I do take Grapefruit Seed Extract, Oregano Oil and NAC regularly as natural supplements in hopes I am thinning mucous membranes.

So, that's where I am at.
I think my next moves are to get into another good, recommended ENT doc for a thorough opinion on the CT Scan and MRI and then a good (and sober) neurologist for the endoscopy I have been reading about on these boards.. Any other ideas or feedback?

Should I see a TMJ specialist even though I have absolutely NO jaw pain or dysfunction and it's going to cost me out of pocket?

The only other thing I can add is that I do often times feel run down and lethargic (especially when the sinus infections come on) and that I DO get these sinus infections every couple weeks to a month or two.

I have had a couple bouts of feeling "foggy" in the head and even times of disorientation. In fact, I even had headache, disorientation and nausea out of nowhere 3 weeks ago, but then it was gone.

Again, let me reiterate. Coincidence or not, I never had any of theses symptoms until after my bottom wisdom teeth were removed.

What I will say is this. This is starting to really affect my mental health and my overall happiness and even my relationship with my girlfriend. I know many of you out there can sympathize. Some days it can weigh on you like a ton of bricks and it's hard to keep on a game face. I want to be back to my old self again, but it's so difficult when you always feel crummy and defeated.

PLEASE HELP!!!!

 
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Old 05-26-2009, 01:28 PM   #2
Newbie
(female)
 
Join Date: May 2009
Location: Milford, NH
Posts: 2
Angel Hayner HB User
Re: please help! still can't get answers

Quote:
Originally Posted by Donssinus View Post
I have been dealing with pain, popping and pressure in my ear canals for a year and a half now with no relief. When I press right in front of my ear (where the mandible connects) it is always sensitive and hurts and the pain and pressure in this area and the ear canals varies from slight to horrible but is always constant.

This is a constant thorn in my side along with reoccurring sinus infection to various degrees over the year-and-a-half.

I want to cover all bases here because I still am leaving the possibility of TMJ-related issues open and hope to get some feedback from people.

Here's some background:

-These sinus and ear issues came on ONLY after I had my lower wisdom teeth removed in Nov. 2007. Never had I experienced ANY of these symptoms before my tooth extraction.

-I do have allergies to grass pollens and dust, but have had them all of my life and never had these kind of symptoms associated with them. My allergy symptoms have always been consistent (just itchy, sneezy, eyes watery stuff)

- Dentist and Oral Surgeon (whom I went back to see) refuse to believe this has anything to do with my previous extraction. Both see no other glaringly obvious signs of TMJ other than the ear pain, pressure and popping. I have ruled out a visit to a TMJ specialist up until now, simply because my insurance doesn't cover it and I don't have ANY jaw related pain, teeth clenching or any other symptoms that are so common in TMJ patients.

- I have been to 4 family practitioners, 3 ENT doctors and a naturopath during this whole year-and-a-half ordeal. The family practitioners were early on when I just thought I was getting sick often (which.....well, I was with the sinus infections) and they spent most of our visits throwing antibiotics at me and telling me to neti pot (which I now do religiously, but with little relief), but no answers for the ear troubles.

The first ENT doc was no help. I had no signs of infection and she just acted like I was being a hypochondriac. She was extremely rude and didn't even seem concerned enough to CT scan me. I let it go for awhile, quite burnt out on always feeling sick and not getting any relief.

I went to a second a month or so later. This guy seemed more thorough and had the CT done. It showed that I had a significant deviated septum and very small nasal passages, but no answer on the ears. He just assumed the ears could be residual pain from the sinuses. He, of course, recommended surgery but also admitted it might do nothing for my ear pain and pressure. Within a week of the CT Scan, he dumped my insurance carrier and I was unable to see him anymore (which was okay cuz' he was a little introverted and weird)

The third doc I hunted down on my own off of Internet reviews. I was pretty sick with a sinus infection when I went in, but was mainly concerned about the ear discomfort.He was outraged at the infection I had at the time and put me back on antibiotics and had me re-tested for allergies. 2 weeks later when the allergies came up the same and I had gone through the antibiotic, he seemed surprised I was still having trouble and just said that surgery is an option but was very unclear about what I should do about my ears. He didn't go over the CT Scan with me (which is my fault) but did validate that issues were showing up on scan.

He sent me to a colleague who was a neurologist (and, no joke here, HIGHLY intoxicated on something at the time) who insisted I get an MRI right off the bat to eliminate anything "out of the ordinary". I did get the MRI, but never returned to him for obvious reasons.

My family practitioner received the results from the MRI that were clean of anything abnormal and has put me on a strict regiment of steroid nasal sprays for the time being (I was a bit lax on when I used it last time I tried the steroid sprays so I'm gonna try it again- although, I can't imagine it will help my ear pain and pressure.)

The naturopath visit was out of desperation a month ago. He's done what you can imagine he WOULD do. Put me on a strict gluten-free, no-sugar, no-dairy diet and had blood work done (and of course, tried to sell me a bunch of his supplements ) Blood work showed good health and although I feel a bit "lighter" from the diet, it's done nothing to change the feeling in my ears and in fact, the sinus infection I got last week was the worse one I had all year.
I do take Grapefruit Seed Extract, Oregano Oil and NAC regularly as natural supplements in hopes I am thinning mucous membranes.

So, that's where I am at.
I think my next moves are to get into another good, recommended ENT doc for a thorough opinion on the CT Scan and MRI and then a good (and sober) neurologist for the endoscopy I have been reading about on these boards.. Any other ideas or feedback?

Should I see a TMJ specialist even though I have absolutely NO jaw pain or dysfunction and it's going to cost me out of pocket?

The only other thing I can add is that I do often times feel run down and lethargic (especially when the sinus infections come on) and that I DO get these sinus infections every couple weeks to a month or two.

I have had a couple bouts of feeling "foggy" in the head and even times of disorientation. In fact, I even had headache, disorientation and nausea out of nowhere 3 weeks ago, but then it was gone.

Again, let me reiterate. Coincidence or not, I never had any of theses symptoms until after my bottom wisdom teeth were removed.

What I will say is this. This is starting to really affect my mental health and my overall happiness and even my relationship with my girlfriend. I know many of you out there can sympathize. Some days it can weigh on you like a ton of bricks and it's hard to keep on a game face. I want to be back to my old self again, but it's so difficult when you always feel crummy and defeated.

PLEASE HELP!!!!
Hi,

I had ALL of your symptoms and I had Lyme Disease. All three of my
ELISA Lyme Tests came back negative until I found a wonderful Doctor who did the Western Blot test and it finally came back positive. The problem with these tests is that they may come back negative when in fact you do have the Lyme bacteria. I never found the bulls eye rash and had no idea I was exposed to Lyme. I have been on treatment now for about 8 months and feeling SO MUCH BETTER...almost back to normal. I really hope this helps you!

 
Old 05-26-2009, 03:49 PM   #3
Newbie
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Join Date: May 2009
Posts: 8
Donssinus HB User
Re: please help! still can't get answers

Whoooaa.
This is a new one.
Serious, or are you just pullin' my chain here?
Wouldn't Lyme Disease show up in a Blood test?
I would have to assume your white blood cell count would be off or something would show you are fighting it.

My blood tests have come back clean.
Other than my good cholesterol being a bit low, everything looks of normal health.

 
Old 05-26-2009, 03:57 PM   #4
Newbie
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Join Date: May 2009
Posts: 8
Donssinus HB User
Re: please help! still can't get answers

Yeah, after doing some research, I don't think it is.
You gotta understand, I've been dealing with this for a year and a half.
From what I read, if Lyme Disease goes untreated, you really start going downhill quick (paralysis and eye issues, so on and so forth). Not to mention, I have no rash like symptoms, fever or muscle and joint pain.

There also is NO mention of ear related issues as symptoms.

 
Old 05-27-2009, 06:13 AM   #5
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Join Date: May 2009
Location: Milford, NH
Posts: 2
Angel Hayner HB User
Re: please help! still can't get answers

Quote:
Originally Posted by Donssinus View Post
Yeah, after doing some research, I don't think it is.
You gotta understand, I've been dealing with this for a year and a half.
From what I read, if Lyme Disease goes untreated, you really start going downhill quick (paralysis and eye issues, so on and so forth). Not to mention, I have no rash like symptoms, fever or muscle and joint pain.

There also is NO mention of ear related issues as symptoms.
Hi!

Yes, I also had this for 2 years before they diagnosed me finally. I had no treatment and the Lyme got worse over say months, but it was gradual. The things you are speaking of, paralysis, etc...happen over a long period of time. I never had the rash, as I said, and did not have fever or muscle or joint pain. I'm sure I would have if this had continued. I'm not saying this is what you have, but I had the EXACT same symptoms you had for two years and the Western Blot test confirmed I had Lyme. As I said I have been on treatment now I feel almost 100%. If my test had not come back positive, they still would have treated me for Lyme as my blood tests, cholesterol, hearing, CT Scans, MRIs etc... ALL came back normal and you can get a false negative on the Lyme Test....just trying to rule this out as an option for you as I couldn't have lived that way!!!! I will send you a link for a forum about the people who are suffering with Lyme that have the same symptoms:

 
Old 02-01-2010, 12:57 PM   #6
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Join Date: Feb 2010
Posts: 2
dianne777 HB User
Re: please help! still can't get answers

Quote:
Originally Posted by Angel Hayner View Post
Hi!

Yes, I also had this for 2 years before they diagnosed me finally. I had no treatment and the Lyme got worse over say months, but it was gradual. The things you are speaking of, paralysis, etc...happen over a long period of time. I never had the rash, as I said, and did not have fever or muscle or joint pain. I'm sure I would have if this had continued. I'm not saying this is what you have, but I had the EXACT same symptoms you had for two years and the Western Blot test confirmed I had Lyme. As I said I have been on treatment now I feel almost 100%. If my test had not come back positive, they still would have treated me for Lyme as my blood tests, cholesterol, hearing, CT Scans, MRIs etc... ALL came back normal and you can get a false negative on the Lyme Test....just trying to rule this out as an option for you as I couldn't have lived that way!!!! I will send you a link for a forum about the people who are suffering with Lyme that have the same symptoms:
Hello, I have had severe ear pain for 3 1/2 years. I was recently diagnosed with Lyme's Disease. I have begun a two year antibiotic treatment of tetracycline. In the meantime, I take fiorcet and neurtin like candy to help control the pain. You do not have to have a bull's eye rash, joint or muscle pain to have Lyme. There are over 150 different symptoms to this disease and mimics SEVERAL other conditions. Ask for the Western Blot test. I was positive for that. Ironically, I was negative when had spinal tap done; however, once I did a little research it was discovered that the test is only accurate 40% of the time because the disease actually hides in the cells. Best of luck to you. Hopefully you have found cause, treatment, and cure since you posted this message!
Dianne

 
Old 02-01-2010, 01:01 PM   #7
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Join Date: Feb 2010
Posts: 2
dianne777 HB User
Re: please help! still can't get answers

Quote:
Originally Posted by dianne777 View Post
Hello, I have had severe ear pain for 3 1/2 years. I was recently diagnosed with Lyme's Disease. I have begun a two year antibiotic treatment of tetracycline. In the meantime, I take fiorcet and neurtin like candy to help control the pain. You do not have to have a bull's eye rash, joint or muscle pain to have Lyme. There are over 150 different symptoms to this disease and mimics SEVERAL other conditions. Ask for the Western Blot test. I was positive for that. Ironically, I was negative when had spinal tap done; however, once I did a little research it was discovered that the test is only accurate 40% of the time because the disease actually hides in the cells. Best of luck to you. Hopefully you have found cause, treatment, and cure since you posted this message!
Dianne
Hi Angel,
Would you mind sharing with me your treatment for Lyme? I would like to see if it's consistent with mine. And, if mine doesn't work maybe I will discuss your treatment with my Dr.
Thanks!
Dianne

 
Old 11-17-2010, 01:26 AM   #8
Ear Pressure 1
Guest
 
Posts: n/a
Re: please help! still can't get answers

Hi,

did you get your ear pressure solved, OP?

I had a rhinoplasty and septoplasty and since than have had a feeling of pressure in both ears of equal intensity. This problem is stumping the drs.

Hope to hear back from you

 
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