Two months ago due to sheer frustration towards the myoclonus/ muscle spasms in my ear (and eustachian tube dysfunction), I started smoking cigarettes again. Amazingly, smoking seemed to alleviate this problem. Then, I had a strong botox injection on both sides of the mouth. While this has 90% gotten rid of the muscle spasms, I now suffer intermittent patulous eustachian tube dysfunction in my left ear due to the botox that was meant to help me. Even the R/H eustachian tube acts up sometimes! The patulous ETD in my left ear is so bad that I had a pressure equalizing tube inserted to prevent sudden pressure changes and popping. Originally, I believed that smoking would help keep the eustachian tube closed. Now it seems that smoking may aggravate it. I am living a life of misery due to my middle ear problems and smoking is one of the few comforts I can enjoy. I would hate to have to give it up. Any other smokers out there who were forced to quit smoking due to patulous or regular eustacian tube dysfunction? My ENT said that smoking should't be a problem, but now I have doubts. I can't drink alcohol, I can't live any form of social life. Smoking is the only comfort I have left.
I was wondering the same thing. I just posted a topic under the "Allergies" section asking for allergy suffers, chronic sinus infection sufferes, and Eustachian Tube Dysfunction, to reply to let me know if they smoke or not since I too suffer from Eustachian Tube Dysfunction - ENT thinks it is Patulous ETD. I switched my brand of cigarettes about 1-1/2 years ago and am now wondering if that switch caused my problems. My father who is also a smoker switched to the brand that I smoke and he has had neverending sinus problems. I am just starting to link our problems with the cigarettes and am wondering if any other people out there who are smokers suffer these ailments because of cigarettes. Maybe the chemicals in the cigarettes is causing the problems? I'm not sure. I have been smoking a long time too and it is sooooo hard to quit - it's my only vice. But, if the cigarettes are causing my problems, then I would give them up in a second to be free of the suffering I undergo because of the ETD and allergies wouldn't you?
How long have you been a smoker? Did you have your symptoms before or after you started smoking? Did you switch brands? If so, from what brand to what brand?
For six years I hadn't been a regular cigarette smoker. I have now been a regular smoker for the past three or four months. I tried stopping one day and the patulous eustachian tube dysfunction got worse, not better! So I started smoking again. You brought up an interesting point in trying different brands. If I were to try a different brand, maybe there would be something in the smoke that would make the eustachian tubes stay closed. I live in Canada and smoke canadian cigarettes. The tobaccoo in Canada is different and doesn't taste as pure as American tobacco. I could buy American cigarettes, but they cost more. I now smoke Dunhill cigarettes that are made with Canadian tobacco. I may switch back to Export A Full Flavour as they have a stronger flavour and take five minutes, not seven to smoke in the now freezing outdoors. What brand do you smoke? American or Canadian?
Hi Nathan, Heyrae,
I'm not a smoker but I have PET on my left side which is making me really unhappy and has been for several years. Despite my efforts, I haven't managed to find any definite links between what makes my PET worse and what alleviates it....it just seems to have a mind of it's own, sometimes it vanishes for hours at a time with no signs or indication as to why it might suddenly be slightly betterÖ(and this is one of the things I hate most about it..not having any control, not knowing whether I can go out on a particular night or not until the very last minute).
I donít smoke..and I havenít noticed that going to smoky places makes it worse (but then I havenít been looking for a connection). I do however think that drinking makes it slightly worse - not at the time but *the day after*, perhaps that could be something to do with the cigarette smoke I breath in whilst Iím out as well. I have also finally accepted that stress *is* a factor, and tiredness, I was telling Nathan in another message that I recently went on holiday to Miami and found it was SO much better while I was there due to what I think was the lack of stress. Iíve also wondered if climate can effect it because Iím from England and as Iím sure youíre aware, weíre not exactly the envy of the world as far as our weather is concerned.
Heyrae, have you tried any nasal sprays for it? or medication?..there are some that stuff up the ET (like the opposite to a decongestant) Iím running out of energy now, I donít have the motivation to do any more research into it for the time being. Have you tried any of them?? Snorting pepper works apparently (temporarily). Please let me know what medications you've tried - if any, I donít want to go down the road of surgery again, I had two tubes put in and they didnít work..I think they created new problems. None of the doctors in england know of any medication I can take, and I don't know how to get hold of the ones I have read about on the internet.
Write soon, thanks, aja