I am new to Healthboards and hope I can get some help. When I talk or when others talk to me, I get this vibration/reverberation apparently in both ears. Watching television or sitting in a restaurant or anywhere with ambient noise has become difficult. Other symptoms are fullness of the ears (aural fullness) and hyperacusis where certain sounds seem very loud. Riding in a car produces a constant roaring sound from any road noise only while the car is moving.
I have been to local ENTs as well as the famous House Ear Clinic in Los Angeles. They diagnosed me with Cochlear Hydrops, an inner ear problem. However, I question this diagnosis. I do not have the typical tinnitus associated with CH where one hears noises when there is none. I AM FINE IN A QUIET ROOM!
A MRI has ruled out any brain tumor. Audiology tests show some age related hearing loss, mainly at the higher frequencies. I tried a hearing aid for 2 weeks which only seemed to amplify the vibration. I have been on a diuretic and low sodium diet for 3 months which has not helped. My ENT has just started me on a medication called Betahistine (Serc) which is not sold in the US. Ordered it from Canada.
If anyone has had similar problems or has any success in treatments, please let me know.
I have the exact same problem as you! For me, it started after a 3-week cold. Since the cold was so severe, I thought the vibrations would just take some time to go away, but it still hasn't 1 year later. Also, when I go running I get clicking sounds.. Did you experience that? It's all driving me crazy!!
Have you found your solution yet? I read a few places around the internet that GUAIFENEX is the way to go. Did you try that?
Like you, I would not characterize it as hydrops/tinnitus, because the vibration is only there when I speak myself, or around certain sounds: deep bass, traffic, especially buses/trailers. My mother has hydrops (meniere's disease), and my symptoms are not similar at all.
I have not checked HealthBoards for awhile and hope you are still active. From my research, it sounds like you might have Patulous Eustachian Tube (PET). Look it up on the internet and check the symptoms against yours.
My local ENT believes I have PET but the Doctors at House Ear Clinic in Los Angeles question this diagnosis since I do not have the classic symptoms. My next step is to see a specialist in Boston, Dr. Dennis Poe, to confirm the diagnosis. Unfortunately, he has no openings until next February.
Please let me know if you have found out anything new. Good Luck.
The descriptions of PET sounds exactly like what is happening in my ears. I read that it's often linked with sudden weight loss, and in fact, for me, it started just after losing weight and starting exercising.
I'll bring this information to my doctor, and see what can be done. Seems like there's little to be done about it, though, except gaining weight and stop exercising. Hope you find your solution, and please let me know.
I also had a 10 pound unexplained weight loss about the same time I started experiencing my symptoms last November, although I believe I did not start noticing the weight loss until after my symptoms. I have since gained back most of my weight with no improvement. I just started trying a nasal saline solution called PATULEND.
I have done a lot of my own research in recent journals and there are several possible treatments besides weight gain, including minimally invasive surgery such as done by Dr. Poe in Boston. Also a procedure called Autografting of Cartilage to narrow the eustachian tube.
Do you have any other symptoms besides the vibration and clicking sounds? I also am experiencing hyperacusis, which is the amplification of certain frequencies, e.g. dishes clattering or a motorcycle going by. Also a roaring noise while driving. However, I do not have the classic symptoms of hearing my own breathing or clicking noises. Stay in touch.
Do you hear any other strange sounds like your heartbeat, eyes moving, joints moving, etc?
Did you have any head trauma when the symptoms started?
I do not hear any of the sounds you describe. Also, my tympanogram was normal. That is why the Doctors at House Ear Clinic do not believe I have Patulous Eustachian Tube. However, two nasopharyngoscopies (fiber optic scope looking down my throat) by my local ENT showed bilateral opening of the eustachian tube entrance. House Ear Clinic did not believe this was definitive for PET but saw no harm in treating it as such until further testing could be done by Dr. Poe in Boston. My most annoying symptom is an echoing/vibration when I talk or hearing sounds from TV, people, etc.
Thanks for treatment information. I've tried using Yogic nasal irrigation, which helps against the 'fullness' feeling of the ears, and excess fluids/mucus. Sometimes pressure builds up, just as if on an airplane, and the irrigation helped for that, but the clicking can get more intense.
I do hear my own breathing, sometimes it can be quite loud, like wind just on the inside of the ear. When in bed or in a quiet room, I can also hear my own heartbeat and joints moving. Often I get clicking noises, especially when running/exercising. Certain sounds I perceive very intensely, while other sounds (like other people's voices, buses, and deep vibrations) are muffled.
I've heard that the nasal spray called (Plus) Nasonex may decrease/relief symptoms
Your symptoms are definitely more classic to PET than mine. I am having trouble with Doctors agreeing on what my problem really is. When I finish trying this PATULEND nasal solution, I can try the medications you suggest. Are there any specialists on PET you can visit in the Amsterdam area?