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Old 12-02-2011, 12:25 PM   #1
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dizzym2010 HB User
Bilateral Vestibular Loss/Hypofunction: Updates and experiences?

I have been suffering from BVL for 11 years, some of which I was symptom free. However, for the past 2 years all my symptoms have come back (mainly the visual ones, such as oscillopsia and permanent "unsteady" sensation, triggered mainly by visual/movement stimulation) and although I sometimes have "better" days, I always seem to relapse sooner or later which has caused severe limitations in my life.

I have read/participated in some threads in the past related to BVL and I was wondering how everyone has been doing and would also like to hear about "new" member's experiences with this condition.

Please feel free to ask for more details about my personal story...I think I have pretty much seen every specialist (even in different countries) and done all sort of tests...it has been quite a long journey!

 
Old 12-02-2011, 04:18 PM   #2
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Re: Bilateral Vestibular Loss/Hypofunction: Updates and experiences?

Hi yes, I've been experiencing dizziness and balance problems for about 2 years now. Have seen alot of doctors and been given various things to try. I still have no clear answer just alot of frustration. I would love to hear of your experience, please advise.

All the best
Marrie12

 
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Old 12-04-2011, 06:55 AM   #3
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dizzym2010 HB User
Re: Bilateral Vestibular Loss/Hypofunction: Updates and experiences?

Quote:
Originally Posted by marrie12 View Post
Hi yes, I've been experiencing dizziness and balance problems for about 2 years now. Have seen alot of doctors and been given various things to try. I still have no clear answer just alot of frustration. I would love to hear of your experience, please advise.

All the best
Marrie12
Dear Marrie12,
So you don't have a diagnose yet? What tests have you done? And what do the doctors tell you?

 
Old 12-08-2011, 07:39 PM   #4
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Re: Bilateral Vestibular Loss/Hypofunction: Updates and experiences?

Hi, no diagnoses yet, doctors vary on it's inner ear or stress. They tested my hearing it's fine, they said my ear canals look fine too. I haven't had a balance test yet. They did cardio workup said everything looked good. Blood work all good too. They also said it might be hormonal but no one has said anything concrete or tied it all in. If you have any ideas or help it would greatly be appreciated.

Thank you
Marrie12

 
Old 12-12-2011, 04:31 AM   #5
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dizzym2010 HB User
Re: Bilateral Vestibular Loss/Hypofunction: Updates and experiences?

Quote:
Originally Posted by marrie12 View Post
Hi, no diagnoses yet, doctors vary on it's inner ear or stress. They tested my hearing it's fine, they said my ear canals look fine too. I haven't had a balance test yet. They did cardio workup said everything looked good. Blood work all good too. They also said it might be hormonal but no one has said anything concrete or tied it all in. If you have any ideas or help it would greatly be appreciated.

Thank you
Marrie12
HI Marrie,
I definitely think you should do the balance tests (like the ENG, rotary chair and the caloric tests). they will help to identify if you have any inner ear disorder or not. It suprises me that the doctors have not checked that yet!! That is one for the first tests they do when the patient suffers from dizziness.
I would start with those and try to rule out as much as possible. Only then you can know if it is vestibular related or not. Let me know how it goes!!

 
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