Bilateral Vestibular Loss/Hypofunction: Updates and experiences?
I have been suffering from BVL for 11 years, some of which I was symptom free. However, for the past 2 years all my symptoms have come back (mainly the visual ones, such as oscillopsia and permanent "unsteady" sensation, triggered mainly by visual/movement stimulation) and although I sometimes have "better" days, I always seem to relapse sooner or later which has caused severe limitations in my life.
I have read/participated in some threads in the past related to BVL and I was wondering how everyone has been doing and would also like to hear about "new" member's experiences with this condition.
Please feel free to ask for more details about my personal story...I think I have pretty much seen every specialist (even in different countries) and done all sort of tests...it has been quite a long journey!