Vestibular Neuritis 2012
It all started last November 2011, i got married a month earlier, had a fantastic honeymoon, went back to work for 2 weeks and then woke up one morning feeling awful. I got out of bed, after having fevers overnight, and felt very dizzy, unbalanced and nauseous.
I went to the doctor and she said i had a virus, affecting my inner ear and to give it a few weeks and it would clear up. I also had terrible sinus pressure and feelings of congestion. A few weeks passed and i felt worse, went back to another doctor for a second opinion and she thought i had labrynthitis. I asked for a referral to an ENT doctor as i felt i was getting nowhere.
Finally saw the ENT doctor in December and after initial consultation she felt i had no problem with my ears at all, but i insisted, that it felt to me that it was ear related, and she sent referred me to have an MRI scan and balance and hearing tests. MRI came back clear and hearing and balance tests showed that i have a small deficit in my R) ear, and i was diagnosed with vestibular neuritis.
The ENT docotr suggested i start vestibular rehab therapy VRT and i referred myself to one in the area.
It has now been 5 months since this all began and i am still suffering.
I feel as though i am on a roller coaster, have good and bad days, but NEVER without symptoms of dizziness, i feel like i am on a rocky boat. I am a nurse by profession and have been off of work for nearly the whole 5 months as my job involves a lot of moving, bending, turning etc and i was unable to manage.
I feel so isolated with this, and its so hard to explain to your friends and family how you are feeling. I dont bother talking to my friends anymore about it as i feel they just dont understand, and i dont want to look like i am complaining all the time. I have a fantastic supportive husband and family and find them my main support. How do others cope with this condition???
It is mentally and physically exhausting.
I have been doing VRT on and off for the past 5 months and feel i am getting nowhere at all, i have booked in for a second opinion with a specialist in the field and see her next thursday, i am hoping she can help me.
I am 28 years old and want my life back, this is so depressing. Please let me know how others are finding this condition and how they cope with feeling like this 24/7? I dont know what to do anymore. Any advice or encouragement needed.........