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Old 05-30-2012, 02:15 PM   #1
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Labyrinthitis sickness

Hi I'm new to this site so hello everyone ive been diagnosed with labyrythitis since mid of feb been to ent and had the brain scan and even started vrt excersises Im waiting for vistibular testing next week, I've been on the long emotional journey anxiety depression dizziness that goes with this disorder, my question is after all these weeks I really suffer with nausea which I find worse than the nausea does anyone have the same problem? Because noone seems to mention the sickness any replys would be greatful

Thanks
Shelly

 
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Old 05-31-2012, 09:48 AM   #2
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Re: Labyrinthitis sickness

Hey Shelly....

I was diagnosed with VN almost two years ago and I definitely have always found the nausea a hundred times worse than the dizziness. I lost almost 10 pounds and had to force myself to eat, esp in the mornings. I had dry heaves many mornings and I came to dread the mornings. The thing I wish someone had told me way back when is to try to keep moving as best you can because it will help you heal faster. It's hard when all you want to do is lay around and just try not to feel horrific!! It WILL go away, keep the faith. The other thing I wished I had known sooner is that anxiety makes everything a LOT worse. Once I focused on not freaking out, wondering about the future, being scared of the mornings, etc. I seemed to get better quickly! It kind of surprised me to be honest. I thought ALL of my sxs were ear related, but now I wonder how much of sickness was made worse by my feelings about it all. Know what I mean?

It is super hard to deal with and get on with your life, but try to remember that you often start to feel better as fast as you felt bad. I've had many decomps and they SUCK but they always seem to leave quickly. I've had months and months of being at 99.9%. Hang in there!!! One day at a time!

 
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Old 05-31-2012, 11:56 AM   #3
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Re: Labyrinthitis sickness

Hi thanks so much for replying, this has got to be the worst illness ever the sickness is the worst, I'm so glad you can relate to it makes me feel like I'm not going mad, did you have good days when you thought that's it, it's going then like s ton of bricks it's back even worse, can I ask how long did you have it for, I'm having the vistibular testing nxt week I'm dreading it, did you have all the tests, when I mention the sickness to ent they look at me and say the sickness should of gone by now it's so frustrating, so glad you are on the mend intrigued to know how long you suffered

Thanks
Shelly xx

 
Old 05-31-2012, 03:31 PM   #4
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Re: Labyrinthitis sickness

It IS the worst... and I agree, when I would look on the boards it seemed like not very many people talked about the nausea. Not easy to function when you feel sick all the time.
I came down with it very quickly in July of 2010. It took months and months to get a diagnosis so I didn't start doing VRT for quite a while. Good that you're on that. That summer was pretty rough and then I basically would take three steps forward two steps back. Have a great week and then a crappy few days and then a couple great weeks and a crappy few days. I remember having a rough Christmas in 2010 but I was just in one of those down phases. I think if I hadn't laid around for days at a time and started VRT earlier I would have recovered quicker. I'm having a little decomp right now but no real nausea, just the dizzies. I don't let it stand in my way. The last decomp that I can remember was in October, but even then, it was mostly just yucky mornings and then fine for the rest of the day. I don't remember having nausea in the last six months or more to be honest. Most people don't have it last as long as me, from what I understand. The best thing anyone ever said to me was THIS WILL END... because I was scared and tired of feeling crappy. I have been doing everything... yoga, driving, step class, everything and I feel grateful for that. The only effects I still see are if I wear heels I will have mild dizzies for a few days and if I go for a long drive I will get there and still feel like the car is moving for a little while. That's it. There's hope, I promise!!!!!! Chances are, yours won't last as long as mine did. It's mostly the people who have had a longer healing time that hang out here. Know what I mean? Those who get over it quick don't usually come back, I don't think. But the members on this board really helped me when I was sad and frustrated. (So thanks for that, guys!)
Yes, it was up and down and very unpredictable. That messed with my head. It's so hard!! But just try to enjoy the better days and do what you can to get through the bad ones. Try to find a balance between doing enough (to help your brain compensate) and not doing too much (once I did way too much VRT, being super impatient) and the next day was brutal.
I did the ENG. I remember doing the water in the ears one, and another one that had to do with watching this moving digital sign thing on the wall. Sorry, don't remember what it was! They concluded that I did have damage in one ear.
I wish you well, Shelly! Hopefully someone else will reply to give you more balanced info because everyone seems to experience things differently. Just keep the faith that someday soon, all of what you are going through will just be a bad memory!! xox

 
Old 06-01-2012, 02:16 AM   #5
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Re: Labyrinthitis sickness

Hi there I can't tell you how much I appreciate your reply, It seems everything you say I seem to be going thru and you are proof that it will end, I know exactly shagging mean about the long termers posts someone I think I'm better not coming on the sites because it can really depress you, on one site I've been on theres a balance specialist who has said the sickness isnt normal for vn 3 months on it's more likely to be migraine accocisted was you ever told that ?

Thanks again xx

 
Old 06-01-2012, 02:19 AM   #6
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Re: Labyrinthitis sickness

Hi there I can't tell you how much I appreciate your reply, It seems everything you say I seem to be going thru and you are proof that it will end, I know exactly what you mean about the long termers posts sometimes I think I'm better not coming on the sites because it can really depress you, on one site I've been on theres a balance specialist who has said the sickness isnt normal for vn 3 months on it's more likely to be migraine accocisted was you ever told that ?

Thanks again xx

 
Old 06-03-2012, 01:01 PM   #7
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Re: Labyrinthitis sickness

Haha automated spelling on my phone just read my post back

Thanks shelly x

 
Old 06-03-2012, 03:05 PM   #8
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Re: Labyrinthitis sickness

Yeah, someone on a board told me that vestibular neuritis wouldn't last this long. But my ENT said initally it was either virus or MAV and came to the conclusion that it is VN. I do get a lot of migraines and always have. The ENG showed that I did have damage in one ear. When it comes down to it, I don't really care what it is as long as it goes away!!! lol

Keep pluggin' away, Shelley!!! You'll get there! Every day gets you closer to feeling great again.

 
Old 06-04-2012, 01:46 AM   #9
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Re: Labyrinthitis sickness

Thanks for the reply so you was never given medication for mavs x

 
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