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Old 09-13-2012, 12:49 PM   #41
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florida31 HB Userflorida31 HB User
Re: Strange symptoms, waxing and waning...

whoooops ! forgot to say I'm on day 4 of the new meds and can't say I've noticed a massive change ,not sure if there doing anything or not ! or is it just time making the difference !

 
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Old 09-13-2012, 01:21 PM   #42
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Re: Strange symptoms, waxing and waning...

Hi tee time,

So I went and saw the neuro physio yesterday. It was also a really bad day. Had to have my mum take me in, ear plugs in to drown out the noise, sunglasses on to avoid the bright lights, I find hospitals as unbearable as walking into a supermarket. Couldn't walk unaided as I was walking as if I was drunk and had the severe nausea.
So I tell the lady my story and how I've had every test done, MRI, balance, hearing, caloric etc. then she asks me my symptoms and which side I tend to lean to. This is where she found it really odd. Because I was diagnosed with vestibular neuritis with 53% permanent damage to left inner ear but all my behaviour patterns were determining that it should be my right. Really strange.
At this point I am on the verge of being sick as the nausea is really bad.
She puts me on the bed and did the Epley maneuver for my right ear and apparently my eyes were flickering extremely which she determined to be BPPV in my right ear. So she finishes and I sit up feeling worse than before. I take a seat and gradually I'm starting to feel better. I was in a state of shock. So she gives me instructions for when I go home. I've followed them exactly and have woken this morning feeling very different. Everything looks different, I have no nausea, I don't have the ill feeling I have had for 6 months. I seriously hope that this is it.
So my diagnosis is that I have had two separate issues going on in two different ears. BPPV in the right ear and vestibular neuritis in the left ear.
She said she had never seen this before and found it quite strange.
I just need to watch myself over the next few days because she is hoping that she didn't disturb the left ear.
So basically, my brain has been getting so many mixed messages.

Thank you for checking up on me and I will definitely give an update in a few days. Fingers crossed.
I hope you are having a good day today. Keep up the walks. Fresh air always does wonders for us.

 
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Old 09-13-2012, 01:53 PM   #43
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Teetime01 HB UserTeetime01 HB UserTeetime01 HB User
Re: Strange symptoms, waxing and waning...

Hi Florida,

Ouch! I hate the dentist too I feel for you, tooth pain is the worst. I'm sorry you've got this on top of everything else. Make sure the dentist knows your meds in case he needs to give you anything. Hopefully you can eat and drink this weekend without pain. Maybe you'll start seeing improvement with the meds next week. At least you're not having any bad side effects.

Great that you went for a walk especially with the tooth pain Slow and short is better than not at all. Thats good that you pushed yourself. When I started walkig with my hubby, I only walked to the bottom of the driveway. Just build up more tolerance and confidence slowly. And celebrate the small successes!

We moved from Pennsylvania, it's almost 2000 miles. Can't even imagine how cold and snowy it's going to be here during the winter We're both a tad homesick. But it's really pretty out here.

Hang on there and keep posted about your tooth...good luck!

 
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Old 09-13-2012, 05:14 PM   #44
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Teetime01 HB UserTeetime01 HB UserTeetime01 HB User
Re: Strange symptoms, waxing and waning...

Hi Snowflutter,

I'm glad to hear that it seems you're on the way to a diagnosis and hopefully many good days ahead. It sounds like you had a nightmare time trying to get through your appt, but good that you managed and the doctor thinks she has a solution. It's strange that you have an issue in both ears...as if one wasn't enough, but at least it looks like this doctor is on top of the problem. With both ears sending conflicting info to the brain, your head must be spinning all the time.

I hope you have another positive day and on on the road to recovery. Check back in and keep us posted on your progress. Good luck!

 
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