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rosetta29 08-26-2012 02:22 PM

working?
 
Hi, in week 4 of suspected labyrinthitis. Seeing ENT September 12. Feeling about 60% "normal" - no recent true vertigo attacks, but still have the tilty feeling, can still not run or go to spin class, have bouncy vision constantly and headache/mild nausea by every afternoon. The fatigue is killing me, though - napping an hour every afternoon, then asleep again by 10 every night.

Here's my question for you fine folks - have been working half days now for two weeks (had to convince my doc of that one, she wanted to wait till I saw ENT) - and am wondering if I should push it and work full days till I see the ENT, or stay at half days till I see her? Part of me thinks I can do it - but I don't want to push too hard...just trying to balance "getting on with it" with some common sense.

Thoughts?

florida31 08-27-2012 03:59 AM

Re: working?
 
Hi
I am now on week 6 coming up :( with poss Labrythitus and am not at work at all as still unable to walk properly (very odd) and frustrating,I am back to docs on the 3rs Sept and will be asking to be referred to ENT as its just ridiculous as cant even go out on my own,do shopping etc,do anything in fact,attempted to try and eat out last week and that was a disaster as table was too low and cant put my head down so half the food landed on the table or in my lap :(.please please keep us informed everyone of yr tests and experiences as I find it so helpful and feel less alone,good luck with yr app.

rosetta29 08-27-2012 04:30 AM

Re: working?
 
[QUOTE=florida31;5046179]Hi
I am now on week 6 coming up :( with poss Labrythitus and am not at work at all as still unable to walk properly (very odd) and frustrating,I am back to docs on the 3rs Sept and will be asking to be referred to ENT as its just ridiculous as cant even go out on my own,do shopping etc,do anything in fact,attempted to try and eat out last week and that was a disaster as table was too low and cant put my head down so half the food landed on the table or in my lap :(.please please keep us informed everyone of yr tests and experiences as I find it so helpful and feel less alone,good luck with yr app.[/QUOTE]

hi again, thanks for the reply. If you can walk without feeling sick or falling, keep walking. I found when I first started walking the dog again my bouncy vision/tilty feeling was horrible (although I could walk in a straight line with a lot of effort)...the more I did it (once or twice a day in short spurts), the easier it got. Now I can walk the dog for 45 minutes without feeling too exhausted. If you read these boards, you see most people are encouraged to be as active as possible to allow their vestibular system/brain to compensate.

I am going to try to work a full day today. We'll see how it goes.

Keep me posted of your progress as well. Best of luck.

sunandthemoon 11-09-2012 06:33 PM

Re: working?
 
I'm in my 5th month and haven't worked at all during this time. My FMLA will run out next month and I'm not sure what to do after that. I work in receiving at a grocery store which is very physical. I've been to more drs in the last 5 months than I have in the last 5 yrs! Originally the diagnosis was vn but now my pt is thinking it sounds more like mav. I've held this job for 13 years and don't want to just give it away but I don't see a way to do it at this point in time. It's so discouraging.....

florida31 11-12-2012 11:58 AM

Re: working?
 
Hi there
I am so sorry to here its been going on sooooo long and still no definate answer for you.
I have made good progress and am back to work full time just this week.
I have been on some meds called Betahistine and it does make a small difference which is better than nothing and I am able to do far more.
I am going to see a physiotherapist this week to see what action to proceed with as had the initial 2 weeks ago and she needed to go away and research and discuss with her colleagues before starting any treatment.
I do hope your all on the way to recovery as I am :), slowly slowly.

sunandthemoon 11-12-2012 05:36 PM

Re: working?
 
Thx, ya..kinda sucks! I have an appt at another neuro for a 2nd opinion on 12/19. Seems like a long wait but ive waited this long I guess. Otolarygologist said I should see a neuro otologist, I wonder if anyone knows of a good one in the Seattle area? Have to figure out what to do with the job situation...and soon!

florida31 11-13-2012 01:19 PM

Re: working?
 
Well lets hope one of those specialist can get to the bottom of it ! ,I'm very grateful for the improvements I'Ve made so does make me think it's Labrythitus as predicted by the doctor.
I havent seen anyone as yet and I'm in the uk so no help to you lol.

I soooo hope things improve for you very soon as its soooo hard and difficult not being able to work.x

sunandthemoon 11-15-2012 11:02 AM

Re: working?
 
Thank you...me too! :) the new neuro called with a cancellation yesterday so I ran! He thinks labrynthitis that doesn't want to go away. He started me on a course of prednisone so...fingers crossed! I'm so glad things have looked up for you, what a horrible thing to have happen to us, that no one else understands :(

florida31 11-15-2012 11:26 PM

Re: working?
 
Oh well that was good luck.
I was on Betahistine but took myself of it 6 days ago as like to come off it periodically to see how I go ! which was a stroke of luck because I had my first physio appointment yesterday and came away with a set of exercises to do to help retrain the brain that its ok for my body/head to be in certain positions ! and they suggested i start this weekend when I'm not at work,going to be a challenge as they are positions of leaning to the floor to pick things up and rolling over :( these are at the bottom of the list of exercises and have to work up to them.
The physio also said she thinks its Labrythitus to that hasnt gone away after 16 weeks now,so fingers crossed for us all.x

sunandthemoon 11-16-2012 09:12 AM

Re: working?
 
Thinking good thoughts for you. I've been doing vestibular rehab for about 6 weeks. I guess our brains are being stubborn!! Yes good thing you went off the meds, I've tried not to take anything at all for a while now but guess it was another one of my attempts to fix myself...who knows, think I've tried all kinds of things! Be careful getting back up after rolling over! Good luck!

florida31 11-16-2012 02:27 PM

Re: working?
 
Hi
Thank you.
If I'm honest I'm dreading attempting the exercises but will try over the weekend,however I;mj having teeth problems and in pain at the moment so gona be difficult,hey hoe.x


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