jdny33

Hello All

I am really having an issue with doctors either not knowing/understanding what a vestibular disorder is or they are insulted that everytime I see a new doctor I bring my own records and reference material. I finally found an Army NP who knew exactly what is was but she left before I could get to her. She said it is seen in combat ied or bomb blasts. They are reversable. Unfortunatley because of the severe blow to my frontal lobe I am not and will live with this forever. Confidence is shot. Brain and left eye and ear do not work together. PT doesn't work and I have a migraine 24/7. They have tried anti seizure meds but nothing and now they are trying furinol and elavil. I am on klonopin and adderrall ir. I feel socially inept. If I am in a crowded room I do not understand what's being said and have to get out. So I am becoming a hermit. Personality has changed drastically. When I explain to friends and family they just say suck it up and take an aspirin. Am I the only person with this. Very embarrassing especially when speaking because I cannot hear my own voice and sometimes what I think I am saying does not come out correctly. If I get upset or nervous I cannot speak or communicate. Mu Neuros anser to that was don't get mad or nervous. I was not happy with the advice. And as he tried to exit I challenged him to be a better doctor and help me. He said we will talk next time and then I receive a letter stating he can no longer be my dotor but I have a Chronic and serios health condition and should seek medical attention immeduiately. Is any one have any similar issue or answer. Sorry for the long and drawn out post. Just so much to tell. Thank you all for your time.