Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi Quicny , just was wondering , anyway - i am still waiting to be seen by the doctor , not great days at all , god i wish i had the ability to do the epley to myself!
I hate myself for not having the skills and courage to do it , i really want to get out of that loop , you understand me I am sure - I can't stop thinking what will be if the Epley is success , i dream about it - i have so many other problems which are related to my condition but are not health issues like money issues that rise because of my condition , I am telling u , i wish i could have had your mindset for just 10 minutes and finish with that damn procedure
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Dear Quincy
I don't really know , I am afraid of feeling worst after it somehow , I am not even sure if i make sense to my own self -i am consumed by the fear of it i guess , u r right - i feel same symptoms when i lay down on the pillow , i guess the epley does not scare me that much and i know i have to get it to be out of the cycle i am part of now but basically i am afraid of the unknown and i even know i go no real reason to be, as I have mentioned in the past my trouble is a pure form of BPPV with no other pathologies on top but since it's been with me for so long it made me afraid of the unknown in a way , there is no real logic there and i am aware of it but fears are like that :-(
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
There are two...the Epley and the Modified Epley The Epley...can be done with a pillow and not over the edge of the bed.
I don't think you'd feel much worse except during doing it. Each level of movement will possibly have the feelings, and some stronger.
Put it this way...they eventually resolve, but you have to wait it out.
Lots of videos on it to explain...but you'll be having it done next week, so it won't be a biggie to wait since you're not in an extreme state at this point. Having it done with someone there to explain has a huge level of comfort as well.
One thing...ask the doc if you're having more problems if you can get in sooner than waiting for weeks.
Hang tough....looking forward to hearing about your experience with it.
q
__________________
It's all a matter of perspective!
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi Kapi
I have to say I know what you mean ! when I was really bad last year and remembering back how I felt I would have found it difficult to have had the Epley done,it's only because I am much better than I was that I had it done but also I was not expecting it either ! so maybe that was a good thing.
The doctor who did it once sent me off home to continue it myself so am guessing that no harm can be done,I googled the Epley and found the best pictures along with
written instructions so I then felt better about doing it,I have heard its really good for BPPV but have to say it doesn't have appeared to have helped me as yet but have only done it 3 times so will continue to try a bit longer but I would say have a go.
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Thank u Quincy and Florida31
great help you are ladies , I can't wait to get the Epley done , my case is SO bppv it upsets me even more i have to wait like that and suffer without any form of management , I can wait to get the Epley done just to clear my head of that terrible thing , I truly had enough of it , by the way Quincy , u stated before u had BPPV in 2 ears , what is the best strategy u think in case u r not sure what ear is involved ? would u do right epley side and then a left one ?
i'll tell u why i ask , because when my bppv started it took me ages to see the specialist and i started doing some reading and discovered the epley , back then i had no big questions regarding it , it just looked to me like a simple drill , well i was not keeping the correct angle when laying down , it seemed not to work , anyway - one day when i felt like i have to do it again , i just laid myself quickly and kept the 30 degrees down off the bed , it was on the left side and i was spinning like hell , what happened was that i was not even ready for that and freaked out , i counted 30 seconds and moved to next step and keep on till i finished the epley , my mistake was that i was still left with symptoms because i did not finish the epley right and did not let the vertigo subside properly , anyway after that i saw the specialist and he put me into left halpike , i felt weird but no true spinning and then after i struggled with that for ages i had the chance of seeing another doctor , i tired not to test myself anymore at home cause i was tired of it so when i came to the doctor she asked me , what is the ear involved and i have said : left , because i was sure it's the left but somehow i tended not get symptoms really with my left , that is why it took ages for me to be taken seriously , anyway - i suggested her to test first the NEGATIVE side , means the right cause i always suspected it , she put me into right side halpike , we waited a bit , i felt a build up and then it flared , i had a spin on the right side , it had latency and it lasted maybe 15 seconds but it was not violent , still it was a spin and she could not see eye movement so she felt a bit confused and that it the reason why i was left untreated , but i want to know what is your idea regarding the fact that i was sure it was on the left but it happened on the right , i myself not sure anymore - it's very strange of course i took into consideration the idea it might be 2 ears BPPV case and yet i am not even sure , i did not have any head injury or anything as such , i never had history of inner ear problems and no one in my family or extended one had , i am not saying it is impossible but i just wonder what are you thinking
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi Kapi
It sounds as if your unsure which ear its affecting so it would make sense they do the Epley for both ears ,it's not going to hurt and that way at least you know it's being treated.
I have still been doing it daily but feel no difference as yet after 5 days.
You talk about the Halpike ? what is that ? as havent tried or heard of it,need to do some reading up.
So when is your treatment Kapi ?,will be very interested to hear your experience.
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Dear Florida
I have to see the doctor next week and i will let you know what happened , yes they might have to epley oth ears although it's my right ear that gives me the trouble , i just said that when i was starting to understand my problem i was sure it was on the left but hard to say really , this is why the HALPIKE test was invented , this is basically the first step of the epley , the doctor turn your head 45 degrees to one side and drops u quickly into laying down with head extended in 30 degrees of the bed , if u start spinning that means that the side checked is the symptomatic one , the same test can e done to the other side , this way they can figure out which side is the trouble , on top of that if they get eye movements they can understand even more what canal is affected and even if treatment will be working , if they check the eye movements on each step - anyway , back to your case , i guess they epley can't do any harm to you and you have been doing it for few times already , if it does not work it might be that it's not bppv at all, as we know , not all dizzies are bppv and there are well defined characters to bppv because of the mechanics behind the probelm - if u do suffer with bppv u'll have a short spin that will subside after some seconds to a minute at each step of the epley or at least at some , which means - if u r put into the offending position and then u start feeling dizzy and it builds up and then subsides and stops after lets say 30 seocnds , 45 or a minute then it's bppv , if u r just feeling bad or weird or just spin and spin at that position with no real time frame or some kind of a pattern that co relates with BPPV then it might not be BPPV , so i guess u should find it out and if it's not bppv then VRT will be your answer and you should do it in my opinion cause it can give u your life back
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi Kapi...when I was first affected with BPPV at age 11, they didn't know what it was. I wasn't diagnosed until i was 22 by the doctor who knew what it was and was pioneering in the field of it. Treatments varied throughout the years. It was my right ear that was affected.
In 1999, I had continual BPPV symptoms and saw another doctor because mine was retired. It was my right ear, and the Semont did help for a short time, then back again. By 2000 in the summer, I went back to the doctor, and it was discovered that I had it in both ears...a disappointment to say the least. She realised that when she flipped me over to the left side, and the resulting nystagmus showed her it was both ears and both eyes reacting in different ways....sigh.
So, she couldn't treat me and sent me to another specialist...shich really burned me because I had to wait MONTHS...
It was that time I got the books I mentioned. When I saw the new specialist he did the Epley and set me up for further testing.
The right ear had resolved itself, but the left ear was still reactionary.
When you see the new specialist, he'll determine what you have....plus set you up for testing I would assume.
q
__________________
It's all a matter of perspective!
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
yes Quincy , seems like u have made a long road with that disorder , by the way , once u discovered how to cure yourself with the epley (even if temporary ) would u find that the duration of the episode affected the results or it did not matter ? , i guess that once u got used to doing the epley then u use it with first onset of symptoms , but when it was a new thing and u had months of being symptomatic , did u find it as an isntant relief ?
i mean , logic suggests it should be cause if u move the offending crystals back into the utricle then symptoms should resolve and u should feel fine - what u think about that from your exprience ?
thanx
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
without giving it too much contemplation, as soon as I'm symptomatic, I try the epley. On days when I'm a bit "off", meaning I'm feeling that I'm walking on pillows...I do the Epley.
I pretty much do it once if I'm off. If it continues, I sometimes do it another time. Yes, it helps. But, I also have sinus issues, neck issues, tight muscles, etc. The off feeling can also be helped from a massage and chiro adjustment.
When I have an actual attack, it could take days to get final relief. Sometimes it returns, sometimes it doesn't.
Remember that it also depends on where the crystals are stuck. There's a cupula where it can remain attached or in the canal itself.
I'm going to find my book and check out some of the info you need. Not all of us have resolution, but it sounds as though yours is pretty straight forward. But even if you have symptoms turning to one side, you might also turning to the other. I think it can also depend on where in the canals the "stuff" is at the time.
Make sense?
q
__________________
It's all a matter of perspective!
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi...don't thank me quite yet...I cannot find my books ANYWHERE! Now my brain is in overdrive of panic, lol...who the heck would I have lent them to? That would have been years and years ago.
The only possible thing is to look back on my posts and I can find the info I was going to share.
^^so much for that..they only go back a year ago.
When is your appointment?
q
__________________
It's all a matter of perspective!
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hello Quincy
well , what can i say ? i am not over it yet , i went to see the Vetibular therapist , very nice and determined woman who wants me to believe that i dont suffer anymore with xan active bppv and what she wants me to do is VRT exercises , i am trying to explain my point but nothing seems to help , i will see her tomorrow also , i am trying to tell them something is wrong and active but it seems to fall on deaf ears , at the meantime my ears r paying me back for doing VRT while still symptomatic with bppv , how did that happen ? well , when i went there couple of months ago i had the spins in halpike but no eye movements or at least nothing they could see with the naked eye , they applied one quick semont and when i came the week later i still had the short spins ( as it happens everytime i lay down ) but they did not wanna do a thing , they cancelled me as that stressed guy that started imagaining things, well i might be stressed but i still suffer an active form of BPPV and no one does a thing to help me with that!
now , because i was so presistent with my claims of having an active form of bppv my therapist promised me that the doctor will see me for epley BUT - this is the big BUT , i will have first to do VRT head movements and all that for few weeks , i don't understand it - it's like building a structure upside down , instead of clearing the canal and then working on any residuals they wanna do the other way around , after yesterday doing the vrt i felt so bad for all day long as i was constatly forced to trigger my bppv , i was so bad i could hardly sleep , i am afraid i won't able to get out of that loop , don't know what to do now , how to get that horrible thing sorted - I wish i could do the Epley to myself
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Oh no !
So it sounds as if they want you to do the exercises first before the Epley !
Thats what the physio gave me months ago and i have a whole sheet of A4 and have now started them again yesterday as feel the Epley hasn't worked for me at all,so maybe at this point you should consider getting the Epley of the net and getting a friend or family to help you do it if your not happy to wait and do the VRT.
Difficult one.
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
dear Florida and Quincy , my computer was not working , now i saw the messages , well yes , they do put me thru all these VRT exercises that are taking me nowhere as i am still symptomatic with BPPV but it seems like all i say falls on deaf ears , as i have said , because i did not present the eye movements they were looking for they concluded i am post bppv and need VRT which is far removed from the truth, every night i go to sleep i lay my head down , 20 seconds and boom , spins - more like subjective spin of the body , not so much of the room - lasts for short time and subsides , daily life is extremely hard like that , i am feeling trashed and weak very easy while i was always verey fit and active , really don't know what to do now :-(
Re: BPPV , can u please share expirence with the elpley - did it work for u ?
Hi there
Oh ! not good at all ,so how long have you got to do the exercises for ? and will they do the epley at all ? if not I would attemp to do it yourself,there are clear instructions on the net on how to do it and if you feel that strongly about it I would do it and get a friend or family member to help you.
Give it a go
,so how long have you got to do the exercises for ? and will they do the epley at all ? if not I would attemp to do it yourself,there are clear instructions on the net on how to do it and if you feel that strongly about it I would do it and get a friend or family member to help you.
