I'm new on here but i've read some threads & it can be really helpful to talk to people on here. For the past almost 2 months i've been suffering with this dizzyness/vertigo sensation. Its not a spinning dizzyness its more like a rocking swaying feeling. It started off by just a slight rocking sensation when i was walking then one day we went on a car trip & the next morning when i woke up in bed i was on my right side then rolled over onto my stomach the over to my left side & i got really dizzy. I then got up to see if it would go away but it continued & i felt like i was being pulled to my right side as well, we went to the hospital & they did blood tests & neurological tests & said everything was fine & just diagnosed me with vertigo & gave me Serc to take. On & off since then i've been dealing with the same thing, we've been to several drs & spent days in hospital where they've done lots of tests & again cant find anything. My dr ordered an MRI just to rule everything out & put my mind at ease as he doesnt think it will show anything but its causing me a lot of anxiety - i went to have the MRI twice & i cant lay down flat on my back as i get really dizzy then even worse when i get up then it passes a bit so i havent been able to have the MRI.
For the past few days its been constant more when i wake up & it gets slightly better during the day i am now taking the Serc 3 times a day which might be why it slowly gets better...
Just wondering if anyone else has suffered with this due to some sort of inner ear disorder? most of the drs think it must an inner ear imbalance. We have an ENT appointment next week but its really runing my quality of life...please help!
Hi there, I don't really know if this will help you but I just wanted to say that I'm experiencing the same thing you are. Since November I have been dealing with the same horrible symptoms. I don't get too dizzy when lying down but I am so off balance while standing that I haven't been able to live my normal life at all. I got a note to be off work from my doctor for 1 month but I'm worried I won't be much better to go back in another 2 weeks. At first I l would only get dizzy once I'm a while like for a few minutes at a time but now I'm dizzy from the time I open my eyes at night until I fall asleep. My doctor gave me Serc to take 3 times a day amd same as you I find that later in the day I am slightly less dizzy than in the morning, but as of right now I haven't been able to go out with friends or go to work or even go to the grocery story by myself. Sometimes I can go into a small store for a few minutes but its impossible to go in a big store, maybe its just the lighting but I find in big grocery stores or the mall I get really dizzy. I don't even want to drive my car anymore. Right now I am waiting to go to the ENT specialist to see what they say. I hope they at least have a suggestion because I don't find the Serc helps that much. I have read some people on here say the have gone to chiropractors and physiotherapists and that the problem was actually in their neck, have you tried that? Oh and also I have a loud ringing sound in my ears, louder in one ear that the other, it changes volume randomly but never goes away. Hope you get better...
Thanks heaps for your reply, how have you been feeling? I actually went to an ENT last week who is also a head & neck surgeon. He tested me for BPPV which i dont have. He then found that the problem is in my neck. I've had a few incidents such as i fell off a tredmill & also got hit in the lower part of my neck/upper back with a big metal horsefloat door. He thinks this is whats caused my neck injury. He said i've quite badly damaged muscles in my neck which causes dizziness & lightheadedness & such. At the moment i'm taking nurofen as an anti inflammortarty, he did prescribe a steroid but i got a bit worried about taking it due to the side effects so im trying the nurofen for now. He also prescribed me 2.5mg of valium to take at night for 5 days to relax the muscles. It feels like the valium is working i've taken it for 3 nights so far. I still dont feel 100% but i feel like my balance has improved a lot & im not as dizzy. Now its jus still the lightheadedness/dull ache in my head & stuff. Im sleeping a lot better now too. Hopefully your ENT can have a look at your neck too, i didnt get any ear problems such as hearing difficulty or anything though so it could be possible yours is ear related? Let me know how you go! xx
Glad to hear you were able to find some relief! How are you feeling now? I still haven't seen a specialist yet, but I am kind of freaking out. The insurance company that covers us at work is giving me a hard time about going back to work but I still don't feel any better. Are you feeling well enough to do normal things? Do you go to work and do errands and stuff? I have been thinking it's possible that the problem is in my neck also since I work in an office and am sitting in a probably not very ergonomically correct chair all day, and also I am an illustrator so I sit at home on the couch or wherever leaning over, too. However, I don't know if my neck would explain having a ringing sound in my ears. Do you find the meds you are taking have actually helped?
Hey! I've been feeling not too bad since taking the valium at night, its a really small dose so it doesnt do a lot but i think it relaxes me a little. I hadnt had much dizziness till last night where i woke up & was a little dizzy but it was manageable & after 10 mins or so i went back to sleep. It could have been because i'd done a lot in the day time & carried some heavy things so i think that may have strained my neck as its quite sore today. Im still not back to normal yet but i think knowing its in my neck if i get a little unsteady when im out i can reassure myself & not have a panic attack like i was before, but i have been doing more like going out to the shops & taking my puppy to puppy training. The dr did say it will take a while for this to heal so im going to see how it goes & contact him again in the next few days. He didnt suggest any physio or anything but i think it might need more than just valium to get it to heal?
Those other people you mentioned who have said theyv had similar symptoms & it was their neck did it say how long it took them to recover?
Hey again! Glad to hear you are feeling better! I dont really remember exactly how long the other people I heard who said the problem was in their neck said they took to recover, it was just on some old threads on here related to vertigo, but if I come across them again I will post the link here so you can read. Im pretty sure that a few people had said once they had their neck issue corrected they got a lot better pretty quickly. I had a pretty good day today, I only felt a little bit dizzy a few times and it wasn't really too bad. I definitely know what you mean about once you know what is causing the problem the anxiety gets a little easier. I know once I went to the doctor and he told me I actually had vertigo and that it was a real thing, and I wasn't juts going crazy I felt a little less anxious. I am only going to the physiotherapist on Tuesday so I wont know much more until then. I have been wondering if maybe stress has been aggravating my vertigo or making it worse. I mean, wether the problem is rooted in the ear or neck it can't be good, right? I am sort of an anxious person by nature, and my job is sales and it's a lot of pressure, also I work at a call centre and I sit at a desk wearing a headset all day so taht could be causing a problem also. I might talk to my doctor about it but I have been thinking maybe I will have to look for a job that's in a different environment where it's not so much stress to make sales and stuff (I dont like that part of it that much anyway) or maybe not wearing a headset all day. It's good that the Valium is helping. You know some people go for a really long time having vertigo problems and they never find out the real reason so it's good that doctor was able to give you a proper answer. Since the problem seems to be in your neck, have you thought of getting one of those curved pillows so you sleep with your neck aligned properly? I know my best friend has had a lot of neck problems and she also sleeps with a pillow between her legs. I know it sounds weird but apparently it helps her!
Hope you keep having good days!
I stumbled upon this website and I am happy I did.
It all started on the Sunday before Thanksgiving 2012. It went after Thanksgiving and came back Dec 12th while I was working at a Dealership. The world isn't spinning, however, I feel like I am floating, swaying and just not myself. A person on the board described it as " When you are sitting beside another car, and the other car pulls away and you feel as though your car moved too" ---
It is usually worse in the mornings and afternoons and the symptoms subside by the evening. Lately, My sugar has been crashing and making my dizziness feel like I am walking in a tunnel. Therefore, I have been forced to carry snacks in my purse anywhere I go.
Doctors haven't been able to find a cause. They only prescribed me Antibiotics and nasal sprays that kind of helped, but I am not %100 myself yet. I went to an ENT and he checked my nose, throat and ears and everything came back normal. He said I have anxiety and prescribed me Antidepressants which I did not fill. I am rather disappointed that they would say it is anxiety when I am sure it has something to due with that, but it is not the main reason!
I am going to see a Dietitian and acupuncturist. Perhaps that can help. My Family members tell me to not think about it, but that's hard when you feel like a Walking Zombie!
I know exactly how you feel, I have had the same reaction from other people, try not to think about it, ect ect. Unfortunately, unless someone has not had this experience they do not understand how debilitating it can be. I have had the exact same symptoms as you have, only once about four months ago did I get the severe attack of the Spinning feeling people typically descrive with vertigo however, for about the last 5 months I have felt, groggy, disoriented and sea-sick, like I am walking around on a cruise ship in the middle of a crazy storm and I am constantly off balance. I was fortunate in that my family doctor knows about vertigo and has had it himself so he didn't just blow it off as 'anxiety', he prescribed me Betahystine however it hasn't helped that much. I am going to a dietician as well, if anything it would be a good thing to do I guess, it definitely can't help. Have you heard of Miniere's Disease? If you haven't you should read up on it. I am on a waiting list to see a hearing/ENT specialist, which is who you need to see to be diagnosed with Meniere's I beleive, however I am positive I have it. The symptoms of Miniere's are tinnutis, which I have (very loud dog whistle tpye ringing) pressure feeling in the ears, off balance or sea sick feeling and bouts of vertigo/nausea. People with Miniere's can have some of these symptoms or all. It can also cause severe fatigue as well just a result of the constant stress/struggle which I am definitely experiencing, I can sleep for 12+ hours now when before I was a very get up and go type person. It's not out of laziness, its just part of the disease. I hope you get help with the dietician however I Would suggest perhaps going back to the doctor, or perhaps seeing a different doctor for a second opinion. Sometimes with health issues you have to be persistent! I was wondering, how are you coping with day to day activities? Like going to the grocery store, etc? I have found regular activities like this almost impossible. I find the anxiety of walking around with this messed up feeling combined with the weird fluorescent lighting of a mall or grocery store just too much to handle. I have been off work for almost a month, I work in a fast paced office environment and this condition has pretty much written off my ability to concentrate on work. I am going back to the doctor for a follow up to the betahystine next week and hoping he will help me with continuing to stay off work for a while longer. Also I was wondering do you have the ringing or weird sounds or pressure in your ear, too? My tinnutis is so bad that unless Im completely exhausted I have a hard time falling asleep.
Good luck with everything
No, I've not heard of Miniere's Disease, however, I will look into it.
I don't get any ringing in my ears, but before the antibiotics I would get pressure between my eyebrows. Sometimes, rubbing that area in a circular motion would make me feel a little better. Also, my eyes would feel heavy and pulling my eyelid down would make it easier to drive. ( Weird, I know)
I have seen two doctors. The first one did NOTHING! He would tell me that I have to eat. Eat, really? Then I went to him again and he told me to come back 2 months later. 2 months later?? WTH. I feel dizzy NOW. I said the hell with him. Therefore, I called my DR that I used to see in 2011 and he did more tests than the DR before. It was like he cared, however, he gave me steriods and Antibiotics and he told me I would feel better soon, but I really haven't.
I can drive now, but around Dec It was pretty difficult. The hardest thing for me is going to grocery stores- well any store for that matter. The lights, the people. Even pushing the cart around makes me feel like I am floating and I try so hard not to think about it when I go shopping, but it is ALL I think about. I used to love shopping, now it is bothersome, like get in and get out as fast as I can. I sometimes feel people can tell that I am dizzy, and it makes me worry more. I went to the mall yesterday and everything was fine, but right before we left I felt lightheaded and I had to eat.
I also have IBS and I really don't eat veggies or that many fruits. I know my BODY is begging for nutrients. The Nutritionist recommended to me that I buy digestive enzymes so I can try to bring fruits and veggies back into my diet. I want to try that to see how I feel.
My Uncle gave me B Vitamins and I will start taking them tomorrow. We'll see if they work at all.
Aghh sucks we have to feel this way I'm still dealing with the symptoms. I saw the ENT around 2 weeks ago & when i was taking the valium i was starting to feel better so i started going back to doing some normal things like going to the shops which i still didnt feel 100% in but i did notice that some things were getting better like my balance walking does feel better i dont need to hold onto my mum every time i need to get up & walk somewhere. Then since yesterday i've had the "moving sensation" come back where it does feel like when you're sitting at traffic lights & the car next to you moves which makes you feel like you're moving, it does go away & just comes in short bursts. I also noticed after the ENT did a manuver on my neck muscles as thats the cause he's said for all these symptoms i did get some headaches which i was worried about, i consulted him about it over the phone & he said as long as they come & go & dont stay for like 24 hr periods or something its fine which is what they've done. But yeah the past 2 days i've been feeling the symptoms again which sucks cos they make me really anxious which makes them worse & i get upset & ahh. The Dr said its not going to be a quick fix & i just need to get as much rest as possible but its driving me crazy having to stay home all day going out is tough atm cos i feel so poorly
How are you feeling now? I totally know what you mean, it's so frustrating that the symptoms can come and go. One day I start to feel better and get excited, and then the next day I am back to feeling all weird and dizzy again. So awful. And its so frustrating because people don't really get how it is. I think my own mum even thinks this is mostly in my head, she tells me to "not think about it too much" or I won't "get over it.". ***? UGH. I had a good day today and was able to drive my car a bit but that's really all, I still haven't been able to go into the grocery stores, etc. Hope you're doing all right. Take Care
Just reading your posts there and I cant help but notice a lot of your symptoms are the same as mine. Ive been diagnosed with Vestibular Neuritis and ahve been dealing with it for 3 months. The symptoms seem to be the exact same as yours. In particular with VN that I think stands out from other VEstibular disorders is that you are off balance all day and it gets better into the evening. I have this exactly. Im in NS and seen an NET about it. He Diagnosed me rather quickly after he did a Hallpike and some other things. I aswel have Tinnitus.
Do you have any hearing loss at all? That would definelty be significant to minears diseas and or Labs but not associated to VN. Let me know!
Thanks for writing! So, what kind of treatment do you get for Vestibular Neuritis? I have been dealing with this bizarre feeling for about 5 months now and its making me crazy. I really just want to go back to work and get my normal life back. I do not know if I have a significant hearing loss as I haven't really noticed anything myself but I am still on a waiting list for a hearing test so I may have some. The tinnutis is really, really disruptive but motsly it's just the weird, off balance feeling and I guess just the continuous feeling of being disconnected or not really all there. Also I find I get tired very easily. I am hoping to see have the hearing test soon and am going to a dietician so they might be able to offer some help. how have you been coping with your condition? Do you still drive, go to work, etc, like normal? I am so torn as to whether or not to try going back to work. Also I was wondering how bad is your tinnutis? I have been sleeping with a fan on to sort of stop it from keeping me awake too much and that does help a little. Thanks for posting, I really appreciate any help or suggestions.
I know what you mean about the wierd feeling. I had it and still do on occassion. It was terrible. A lot of the time its referred to as brain fog, I know when I was dealing with it I could barely hold a conversation let along an intelligent one. My family would often say that I was just staring off into space. When I drove and still get it on occasion it was like a cloud would come over me and suddenly I had tunnel vision and everything outside the tunnel was a fog. Ive been back to work and the symptoms still hit me at times. I dont necessarily do anything to bring it on it just happens. I have taken A LOT of time off over the last 3 months tho. Where at in NB are you? I know I got a hearing test here in New Glasgow for free and got in riiiight away at connect hearing. I dont know if they have one of those there.
Theres no real treatment for VN. Everyone is effecte differently however the main symptoms seem to be the same from what I can tell... Brain fog, one event of Vertigo and then unbalance that lasts all day, bed spinds while rolling over, dizzy with head movements, the list goes on. The only thing Ive done an it seems the Dr's are willing to provide in VRT (VEstibular Rehabilitation Therapy) It works wonders. Ive been doing it on my own for around 3 weeks at my house. I do it 3 times a day and make the exercises more aggressive as i get more balance back. They make me tired but I contribute that to my brain working overdrive and trying to compensate.
THe only thing that really sets me back in when I exercise. I excersise frequently and aggressively but not for the last 3 months. Once I get so far into a routine My symptoms come back a little, I dont get dizzy but disoriented and lightheaded. And that will stay with me for a few days but then I seem to come back stronger. My ENT says thats normal and can be good. I hope hes right.
Large crowd like the mall ect drive me bananas, bright light ect... but it seems the more Im in them the better things start to get. Hoever it sure takes awhile. Im feeling much better now but by the way things look I still have months of work ahead of me.
My T is very strange. Somedays its loud, somedays its not as loud, Theres usually between 2 and 3 different tones. Mostly a high pithched buzz. Ive tried a ton of things for it, magnesium, ginko, multivits, nothing seems to really work.
Wow Wallbasher, thanks for all the info. I am going back to the doctor tomorrow and Im a little nervous about what he will say. Im still not too sure I am ready to go back to work yet. How long did you have the brain fog feeling that lasted all day? I have had the brain fog feeling for about 2 months but even before the brain fog started I had dizziness for about 2 months previous to that, the brainfog and the dizziness combined was just way too much to handle. I think the foggy feeling might be going away a bit now but I have also been off work for about a month and resting a lot, Im worried if I go back to work it will come back. My tinnutis is exactly the same as yours, some days it is really loud and some days not as loud but there are multiple tones. I am in Moncton, NB so I could probly drive to NS if it meant getting a quick appointment. Is that a private clinic? & Did you have to pay for the appointment? I have been doing a little bit better with going into brightly lit stores although I haven't tried shopping in the mall or anything major like that. One thing I found that did help going into brightly lit fluorescent-light type stores is, I went to a motorcycle shop and bought some special sunglasses, they're the wraparound kind but they also have like a foam lining on the inside of the frame so that it blocks out all the light that could come in from around the sides of the frames. For some reason they really do help, I feel a little silly walking around inside with sunglasses on but it did make a difference.