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Old 03-16-2013, 05:55 PM   #1
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dizzyandsad HB User
Unhappy Advice?

Hi all I haven't been on here in years but I need some advice....I got dizzy in March of 2007 initial dx of VN tried VRT's nothing worked I was housebound and some days even bed ridden which was trying since I had a 3 year old and an 8 month old. after a year of no change I went for a second opinion I saw a few PCP's and ENT's and a few Neuros who told me a variety of things anxiety, Meniere's one ENT berated me for being a bad parent since I am a smoker (outside the home only) I finally got the ok to go to the Mass Eye and Ear institute in Boston and underwent HOURS of testing and told its MAV so for the next few years I slowly started and increased Nortriptyline and started following the migraine diet it took many years for me to get through the dizziness and crippling anxiety, my kids are 6 and 9 now and these past few years I have started a cake business out of my home written a novel and been coaching youth cheerleading for 3 years now this winter I just finished up a cheerleading season where I coached TWO squads I was astounded at how well I was doing I had small symptoms everyday but they were background I had an occasional 'spell' but it was after they gave me caffeinated coffee instead of decaf or something like that and didn't last more than an hour or so. I have low blood pressure and I am prone to fainting if I am worried or reading or thinking about medical stuff and I was worrying about fainting and reading up on it about a week and a half ago and felt faint well that triggered my anxiety and about three days later I got slammed hard with dizziness and vertigo....it hasn't gone away....it hasn't been this hard to deal with or intense since almost the beginning....I suspected I had fluid in my ears cause they have been feeling full and shifting and tingling lately, I went to my PCP and she said I have fluid with bubbles and a clear line on my right side and fluid with bubbles on my left in my middle ear, since it is not an infection I didn't need meds ( I am crazy med sensitive and the thought of taking any med sends me in to a panic) she said it would drain on its own but could take up to 8 weeks, of course I did some research and dizziness is mentioned as only a slight symptom of middle ear fluid so why the hell am I spinning so profoundly?? Im a bit freaked out and this is so hard I have a few moments without the dizziness throughout the day and I try to enjoy those because 20 mins later im feeling so crummy and hopeless....I hate to sound whiney but I want my life back I would be happy with my 80% back....does anyone have any advice? Is it normal to have crazy vertigo, imbalance, and dizziness when there is fluid in the middle ear?? is there a chance I will ever get back to 80%??

 
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Old 04-23-2013, 01:15 PM   #2
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Gautamm62 HB User
Re: Advice?

Quote:
Originally Posted by dizzyandsad View Post
Is it normal to have crazy vertigo, imbalance, and dizziness when there is fluid in the middle ear?? is there a chance I will ever get back to 80%??
Yes! I got VN about early 2012, got to "close to Normal" in Sep 2012 thanks to the great Doc in UK and the customized VRT they prescribed for me. But in Feb 2013, pain the left ear and the 100% was suddenly 80%.

They diagnosed some kind of middle ear infection. My local ENT specialist said (who knew my VN history before) that there is a very good chance that the infection was again causing the dizziness and fluids could do that too. Antibiotics, 3 times a day for 7 days took care the problem and now I am back. Hang in there and do the VRT.

I think that VN comes in 2-3 'waves', each wave of problems is lesser than the previous, but they keep coming for a few times.

Last edited by Gautamm62; 04-23-2013 at 01:16 PM.

 
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Old 04-25-2013, 09:49 PM   #3
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JimB HB User
Re: Advice?

If you have other symptoms of anxiety disorder, Google "Chronic Subjective Dizziness". The University of Pennsylvania has done extensive research on this, and they have successfully treated test subjects with SSRIs.

 
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