Re: Middle Ear Fluid
Initially I was diagnosed with MAV by one dr. Then another Dr. I was diagnosed with fluid trapped in my middle ear. My symptoms began in 2008, which are extreme fullness and pressure in my left ear, lightheadedness, nausea, confusion, shortness of breath & symptom of fainting. Any time and I mean anytime I do anything that causes exertion (walking for more than 10-15 min), these symptoms come and my balance goes off to the point that I can’t walk straight any longer. Then my legs feel heavy to move. I have to find I place to sit until my heart rate goes back down. And also, these symptoms occur due to certain temperatures, especially if a room or outdoors is above or below 70 degrees. No doctor can agree with each other w/ a diagnosed so since 2008, I am still searching for help. Anyways, when reading your post, I was surprised to hear that the Dr. could see the fluid in your middle. What test reflected there was fluid in your middle ear? I would love to get this test. Because as of now I just feel that these drs. are guessing. Even though I was told by several members here who have middle ear fluid (perlymph fistula) and the dr. that originally diagnosed me, the fluid will not show until the ear surgery is done to repair the perlymph fistula and that's even a maybe. The surgery will be considered an exploratory test. It freaks me out when I hear this because it involves stuffing the ear w/ a tiny piece of fat from the earloop in an area that maybe leaking the fluid. And for some I understand that the recovery takes time to heal. But I can say, that since these symptoms started life has really changed and some days are good while others are horrible.
Also, I don't have the symptom of spinning as my symptoms relates to more so lightheadedness like I am about to faint.
And lastly, all other test always come out to be normal which helps a little for me to stay insane. I just keep in mind that it's not life threatening just life altering. But at times this can be difficult to believe. Anywho, I hope everything gets better for you and there are several members on this board "Perlymph Fistula" who are having much of the same symptoms.