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Interstitial Cystitis (IC) Message Board

Do you think I have IC?


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Old 03-16-2016, 03:38 PM   #1
Meagbre
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Do you think I have IC?

Hello!

My paternal Grandmother suffers from IC. I am 33-years-old and suffer from recurring UTI's. I urinate more than the average woman and barely anything comes out (even without a UTI). Sometimes I feel so badly that I have to pee I end up needing to lean forward and strain to empty my bladder entirely and even then just moments later I get the urge to pee again. I have almost constant pelvic pain. This morning I woke up and felt like I had another UIT (my last one was just 2 weeks ago). My urinalysis came back negative. I mentioned my Grandma has IC and he said it's a possibility I have it but suggest sending my urine to the lab to see if it is positive in a couple days. He suggested that my bladder could just be irritated from my previous UTI. Do my symptoms sound familiar? Am I at higher risk because my Grandma suffers from this?

TIA!
Meagan

 
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Old 04-18-2016, 12:39 PM   #2
Oldfart51
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Re: Do you think I have IC?

You might.... The only way to tell is to rule out other possibilities. I'd suggest you see a urologist and have your bladder scoped... Not real pleasant, but they would be able to tell a lot by looking. If it is IC, don't despair... There are many treatment options available. Diet is a huge factor... Many foods and drinks irritate the bladder if a person has IC. There are books on IC as well as a website devoted entirely to IC... I've dealt with if for several years and have found controlling my diet to be the most helpful... Pop and artificial Sweeteners are horrible on my bladder. Since I quit both my bladder is 100% better, but everyone is different...

 
Old 04-23-2016, 08:06 PM   #3
carolathequeen
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Re: Do you think I have IC?

I have had IC for 30 years and the pelvic pain is unbearable.You probably

need a cystoscopy. I suggest general anesthesia. I had it down while awake and

it was awful.

 
Old 04-23-2016, 08:09 PM   #4
carolathequeen
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Re: Do you think I have IC?

I have had IC for 30 years and the pelvic pain is unbearable.You probably

need a cystoscopy. I suggest general anesthesia. I had it done while awake

and it was awful. Good luck.Make sure you see a top rated urologist.

Carol

 
Old 04-28-2016, 05:28 PM   #5
cairbair
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Re: Do you think I have IC?

Did you have tests done to confirm your previous uti's? If not, what you think are uti's could actually just be what people with i.c. refer to as a 'flare'. I am 29 now and was diagnosed with interstitial cystitis 4 years ago. I went to a gyno/urology surgeon. He did a laparosopy and did a cystoscopy under general anesthesia. I actually have pictures of the disease on my bladder. Another urologist attempted to do an awake cystoscopy previously, and I was unable to tolerate it. My suggestion is to try to find a doc/surgeon with both specialties (gyno and uro) that way you can be checked for other underlying conditions under anesthesia.
I have a lot of pain in my pelvis, hips, and all the way to my knees. It was suspected that I had endometriosis, and my doc was surprised when he didn't find that. He did, however, find scar tissue wrapped around my RUQ (right upper quadrant) it was pulling on my intestines/colon and was on the verge of rupturing. It was also found that my i.c. causes my pelvic floor muscles to be stronger/tighter than average to compensate for the bladder. This can make it incredibly difficult to void (empty) the bladder. So what you may perceive as frequency could simply be that you are not voiding completely. I am not a doctor, and I can't see what is going on inside of you, all I can say is to find a knowledgeable doctor that will help you get to the bottom of this. The sooner the better, because if it is i.c. it can continue to worsen and eventually cause ulcers on the bladder (called hunner's ulcers). You definitely want to try to avoid aggravating the condition if you do in fact have it to try and stop the progression of symptoms. Best of luck.

 
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