I am sorry about your diagnosis,I was MIS-diagnosed with this condition try the urology board there is a bunch of people thaat have it on that board BTW did they give you Elimorn for it?Good luck to you I know this is a aggravting disease take care
I'm sorry to hear about your diagnosis...I was under the impression it could only be diagnosed by a cytoscopy. I hope you see a urologist for your treatment...incontinence could be from other reasons. Do you have urinary tract pain all the time? Did your gyn. rule out stuff like endometriosis, fibroids, etc.? I had most of the same symptoms you do and it didn't show up in my ultrasound...I had to have a laparoscopy to find my endometriosis and fibroid. What did they find in your ultrasound?
I was diagnoised with IC last summer,,I am on elmiron. Sex CAN be painful,,make sure to pee "before" or you will have presure on your bladder.
Sometimes i will have a flare up , maybe b/c of something i ate or drank.
Has your diet changed? Im still learning everyday,,what i can & cannot eat & drink.