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Interstitial Cystitis (?)

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Old 02-26-2007, 11:11 PM   #1
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Interstitial Cystitis (?)

Hi anyone and everyone,

My urologist has been giving me tests because I have not UTI, but still hurt when I pee and also, when I am not. My lower abdomen hurts also. It is not my female parts, because I had most of them out about 8 mo. ago.

Can any of you tell me what Interstitial Cystitis (sp) feels like and how yours was diagnosed? The test that would show if I had this, costs about $3,000. and I have a $5,000. deductible. So, I would have to pay it all.

I just want to be more sure, before I have this test and pay all that money. I have not UTI, but do have scars on my bladder. The test is a ? with video and dye and has to be done at a bigger outpatient hospital. There are only 2 of these machines in the Houston area!

Please let me know if any of you have this or have knowledge of this.



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Old 02-27-2007, 07:15 AM   #2
Join Date: Feb 2007
Location: WI
Posts: 70
mama2izzy HB User
Re: Interstitial Cystitis (?)

I had the cystoscopy with hydrodistention done 4 years ago when I was 20, but I've had IC a long time.

My bladder hurts before I void, during, and after.

Last edited by moderator2; 02-27-2007 at 07:33 AM. Reason: Please do not post websites except as described in the posting rules section titled "How to share information"

Old 02-27-2007, 11:24 AM   #3
Join Date: Feb 2007
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mama2izzy HB User
Re: Interstitial Cystitis (?)

Please do a search on Interstitial Cystitis. There is a lot of great information out there, as well as websites dedicated to IC that have a lot of info on diagnosis,symptoms, and treatments.

Old 02-27-2007, 04:25 PM   #4
Join Date: Feb 2007
Location: WI
Posts: 70
mama2izzy HB User
Re: Interstitial Cystitis (?)

The dosage that is recommended now is 400 mg. a day, like you are on. They are finding that the 300mg. dosage is not as effective.

I do not think Elmiron would have had any part in your cancer. Elmiron has the properties of a blood thinner, so I do not think it would have caused a tumor.

Your tumor may have been there for some time without causing symptoms. It could be a long-term result of smoking.

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