It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Interstitial Cystitis (IC) Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-28-2009, 09:22 AM   #1
Senior Veteran
(female)
 
LauraLu's Avatar
 
Join Date: Mar 2004
Location: Gettysburg, PA
Posts: 1,105
LauraLu HB UserLauraLu HB User
Classic Interstitial Cystitis vs Regular IC and treatment

This week was the second time I went to see my new urologist. He performed a cytoscopy, which was extremely painful and diagnosed me with Classic Interstitial Cystitis. I must admit that after the procedure I just wanted to get the hell out of there because I was in SO much pain. He told me my bladder was only capable of holding 200 cc, and a "normal" bladder should hold 400. When I looked on the screen, he showed me all of the areas that were red and inflamed and it was like "finally - a reason for all of this pain." I didn't ask a lot of questions because I wanted to just leave.
He told me that I had two options. I could come in every week for 6 weeks. He would inject a solution and then I would "practice" holding it for as long as possible. This seems very difficult because his practice is an hour away and I'm a teacher, would makes it even more out of the question. Also a $30 copay seems rediculous.
Second option - surgery. He would distend my bladder to 600 cc. This seems a bit drastic, but considering I have been suffering for over a year, I'm leaning towards it.
So, lots of questions, does anyone know what the primary difference is between Classic IC and regular IC? Also, has anyone done either of these two options that I've described?
I'm in dire need of some major help and opinions here. Thanks so much for reading.
Laura
__________________
Laura

 
Old 03-29-2009, 05:40 PM   #2
Senior Veteran
(female)
 
LauraLu's Avatar
 
Join Date: Mar 2004
Location: Gettysburg, PA
Posts: 1,105
LauraLu HB UserLauraLu HB User
Re: Classic Interstitial Cystitis vs Regular IC and treatment

Anybody??? Doesn't anybody on here have this??? I feel like I am ALONE! I really could use some help here as far as treatment is concerned.

Thanks again.
__________________
Laura

 
Sponsors Lightbulb
   
Old 03-30-2009, 02:09 PM   #3
Junior Member
(female)
 
Join Date: Jun 2006
Location: Texas
Posts: 31
jocotter HB User
Re: Classic Interstitial Cystitis vs Regular IC and treatment

I have it and so do alot of people I know. My doctor sort of specializes in it. I think that there are several things to try before doing those procedures that help, but they take a few weeks/months. Elmiron is a medicine that really helps after a few weeks. Also, it helps me to take Detrol when I am having it bad. They can also add Amitriptiline and after awhile that gives you relief.

Using over the counter Pre-relief helps before meals that might bother you. Also sticking to the IC Diet (which you can find on the internet) can help, too. There are a couple of websites with message boards and lots of info dedicated specifically to IC, which are full of info.

Something that really helped me recently is Desert Harvest Aloe Vera (can be found on the internet.) It helped tremendously after 2-3 weeks. The info about IC and how it helps is on their website. My doctor recommended it or else I would have just thought it was another fad vitamin thing.

Good luck and hope you feel better! As far as those instillations, I've only had them once and I didn't think they helped as much as the meds above. But I'm not a doctor.

 
Old 03-30-2009, 04:48 PM   #4
Senior Veteran
(female)
 
LauraLu's Avatar
 
Join Date: Mar 2004
Location: Gettysburg, PA
Posts: 1,105
LauraLu HB UserLauraLu HB User
Re: Classic Interstitial Cystitis vs Regular IC and treatment

Thank you very much for the reply!!! I will definitely check out what you have mentioned. Your information is very much appreciated.
__________________
Laura

 
Old 04-06-2009, 01:39 PM   #5
Junior Member
(female)
 
Join Date: Jun 2006
Location: Texas
Posts: 31
jocotter HB User
Re: Classic Interstitial Cystitis vs Regular IC and treatment

I hope you have found something to help you!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
why do i get interstitial cystitis or urinary tract infections everytime I have sex? elsar2019 Interstitial Cystitis (IC) 5 07-14-2011 09:58 PM
How to select the best treatment? JodiH Multiple Sclerosis 14 04-27-2010 07:11 PM
nutritional help for cystitis, interstitial suzi47cmt Diet & Nutrition 2 05-25-2004 08:21 PM
interstitial cystitis problems suzi47cmt Interstitial Cystitis (IC) 1 05-05-2004 03:37 AM
child with interstitial cystitis and diabetes suzi47cmt Interstitial Cystitis (IC) 0 05-04-2004 11:14 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



donnadb040 (2), aleet7 (2), Ottawa77 (1), Dihyde (1), lavorse (1), JJ (1), Sunsetnan (1), BrakBill (1), blamm0620 (1)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (832), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 07:34 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!