| | Eight month bladder infection along with IC really need HELP?
I am twenty eight and have had IC for eight years now. It has always been bad but I have managed. I have been through the usuall IC meds of Elmiron, Elavil, Lyrica and others with little improvememt. Anyways about eight months ago I developed a horrible bladder infection that would not go away. I have been on at least three rounds each of almost every antibiotic under the sun. Last month I had a PICC line removed which delivered about 1500 mgs of Primaxin. I had those IV antibiotics for about a month and a half. I have been on a preventitive dose of Macrobid for about a month and a half and this keeps the infection in check. I know it is still in there and if I was to quit the antibiotics the infection would quickly return as this has been the case many times before. I have had so many antibiotics that I am allergic to most of them and I have horrible GERD from them tearing up my stomach and throat. I just had a scope the other day and the doc said my bladder was a little irritated but nothing else. I am confused because the pain is so excruciating I thought the camera would pick up on something right away. I have horrid, excruciating spasms and pain and am on heavy duty meds to help with this. I usually lay in bed and cry because the pain is so bad and I can't do a thing. I would like to be able to get off of pain meds and actually function again so I am wondering if anyone with IC or even bad bladder infections can help. I am thinking it is some kind of muscle issue so I am having Urodymamics next week. I am on probiotics, D-Mannose, Uribel, Vit D, Luvena prebiotics and have tried concentrated cranberry capsules. These and the diet modifications have really helped my IC. The problem is that the pain and infection? is now in the urethral, vaginal area. I usually go to bed with a huge ice pack to help the swelling. Going to OBGYN for more input. Does anyone have any ideas or recomendations as I am really suffering with the pain.