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Interstitial Cystitis (IC) Message Board
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Old 09-26-2011, 05:33 AM   #1
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How do you control your urgency?

My urologist keeps dialating me in office. This really hurts and he thinks this is part of the many issues I am having. I am steadily loosing all bladder control. Recently diagnosed with MS as well. Looking for advice that may help. I have about 30 seconds to make it to the bathroom on average. On a good day, about 90 seconds.

 
Old 09-27-2011, 03:54 PM   #2
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Re: How do you control your urgency?

I have IC & when diagnosed several years ago I was told I had a small bladder. Urologist wanted to dilate my bladder & at first I considered it but after thinking about it I decided not to have it done. Urologist also discussed taking out part of my bladder. IC is not only painful but when I'm in a bad flare there is no sleep either.

I'm not giving medical advice but I will tell you the only thing that has helped me but it might not work for you. I was prescribed Neurontin/Gabapentin by my neurologist for seizures & also for nerve pain in my legs. Was I surprised when I realized after the first dose than my bladder pain was also gone along with the urgency & frequency. I could actually sleep part of the night.

There are other similar meds for nerve pain that might work as well but I don't know if a Urologist would prescribe them or not.

Sorry so long a post, but one more thing I have read that helps some with IC is Valium vaginal suppositories. I have not tried this since Neurontin works well for me. Hope you get relief soon.

Last edited by sammi2; 09-27-2011 at 04:05 PM.

 
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Old 09-27-2011, 05:00 PM   #3
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Re: How do you control your urgency?

I have tried the Neurotin and it just made my brain issues worse. I have had a lot of bad side effects with most meds I have tried. Some are reactions to other meds I am on. My Urologist has told me my IC is one of the worse cases he has ever seen. It has taken almost 1 year to get this far. I only get up about 1-2 times at night now most nights.

 
Old 09-27-2011, 08:18 PM   #4
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Re: How do you control your urgency?

When I first started Neurontin it seemed to slow my brain but after I adjusted the drowsy/lethargic side effect wore off. I was so glad to get relief from urinating every 15 min, 24 hrs day, I was willing to put up with the side effects. On my best nights now I still get up at least 3 times. I'm glad you've had improvement & hope it continues.

 
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