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Interstitial Cystitis (IC) Message Board
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Old 12-14-2011, 05:57 PM   #1
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Location: Melbourne. Australia.
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bbrazilian HB User
UTI and IC

I noticed that a thread on this issue was closed, so I thought I would open another one. I believe there is a connection between the two. I was diagnosed with IC via cystoscopy in June this year. My IC started 5 years ago following a genuine UTI infection that responded to antibiotics. I thought that was the end of my problems until I had another bout of what I thought was UTI. However, this did not respond to antibiotics and lasted many weeks until it spontaneously cleared up.

On to about a year later and back comes the urinary urge and frequency which led to the removal of my IUD followed on by trans vaginal ultrasounds and various other medical tests. All of these came back negative and left the doctors scratching their heads in confusion. I subsequently had many flares which were distressing and frustrating.

Eventually I was refered to a urologist who specialised in IC and based on my past history and symptoms, recognised it immediately. This led to my cystoscopy which confirmed her suspicions.

To this day, I believe it was the initial UTI that set this whole thing in motion.

 
Old 03-08-2012, 05:56 AM   #2
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Re: UTI and IC

Hello. I was part of the original thread.

Basically, I had a series of UTI's that eventually triggered symptoms that didn't go away, didn't respond to antibiotics, and weren't caused by bacteria.

They went away after a few months by themselves.

I took an antibiotic after sex since that was my biggest symptom, and cranberry pills. This + less sex helped me to feel good for a while.



Well, I started having more sex and although I didn't get a UTI again (at least not one that showed up), the same thing is back. Urine culture negative, don't respond to Cipro.


At this point, I'm going to have my doctor check for structural abnormalities and mycoplasma. If it's not either of those, I'm going to ask to be put on Elavil or Elmiron. I was afraid of IC diagnosis because it's like a death sentence but at this point I just want the burning and the pain to go away.

Last edited by asgopt; 03-08-2012 at 05:58 AM.

 
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