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Interstitial Cystitis (IC) Message Board
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Old 04-09-2012, 08:10 PM   #1
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Join Date: Apr 2012
Location: nj
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staci lynn HB User
Unhappy ongoing IC symptoms

hi

I been diagnosed with IC since I was 16 I am now 24 .. my gyno was worried why I had a uti just about every day so I went and saw a urologist then he diagnosed me. he gave me installations and seemed to help told me to watch diet and I didn't. I was able to eat drink anything I wanted for almost 2 years til about 9 weeks ago randomly 4 am in the morning my bladder started to burn and still hurting 9 weeks later. I'm miserable !! I went and saw a new urologist he prescribed me with elmiron only been on it for 2 weeks now I heard it takes months to start

also back on my strict diet I take prelief before anything that's little iffy. and AZO pills if really needed. this is my longest flare yet! normally goes away after few days not weeks ! I have lots of anxiety now depression and just at my ends with all of this. every day is a different symptom and I haven't gone out due to this.

I'm going to finish thru with the elmiron bc I heard it really helps but just not knowing when this flare is going to go away or what it's going to be like the next day is scary. I have panic attacks about going to work ( I'm s hairstylist ) so I have to stand and deal with clients all day. it's just breaking me down physically and emotionally. I try to be strong but difficult when I think back bout how long this has been going on for. feels like it's never ending !!!

I wish there's a cure hopefully soon and feel everyone's pain who has to go thru this. sorry for long post.

 
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Old 04-13-2012, 07:16 AM   #2
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Join Date: Apr 2012
Location: Texas
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puggranny HB User
Re: ongoing IC symptoms

I am just in the process of being tested for IC. I have been in pain for more than a month. I have seen a urologist and am taking Elmiron. Been on it since 3/30/12. So far not much help my feelign of everything falling out is some better but constant pain in bladder, urgency to pee and my lower right back is hurting. I had never heard of IC till I went to the urologist. I so feel for you and wish I knew an answer to solve the pain. I just try to make it through each day. I have to get this under control so I can go to work....... Take care and here is a ((((HUG))))

 
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