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Interstitial Cystitis (IC) Message Board
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Old 10-21-2012, 11:45 AM   #1
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help please!

I have ic. I've been on elmiron for about 3 months now. The pain seems to get better then just starts hurting again like I'm not taking any medication. It's mainly around my time if the month when that happens. Ive talked to my doctor and he has never had anyone with that issue. So I'm just wondering if this normal??

 
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Old 10-25-2012, 07:45 PM   #2
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Re: help please!

Hang in there. I've had it for 12 years. I do take Elmiron, but it comes and goes. Sometimes it is downright miserable and painful. Then I get rescue treatments instilled in my bladder and they really do help after a couple of weeks. I'm sorry to hear about anyone else having it.

 
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Old 10-25-2012, 08:20 PM   #3
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Re: help please!

What are the rescue treatments?

 
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Old 10-25-2012, 08:55 PM   #4
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Re: help please!

Rescue treatments are done in the urologist's office. They insert a combination of medicines into your bladder through a catheter. Then you hold it in for at least an hour before going to the restroom. My doctor will give them once a week when I'm having a bad few weeks. After 3-4 treatments, it usually improves ALOT.

 
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Old 10-26-2012, 09:21 PM   #5
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Question Re: help please!

Oh ok. Lol my doctor never mentioned that. He just gave the meds and told me is be on them for 6 months.

 
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Old 10-27-2012, 09:09 AM   #6
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Re: help please!

He probably didn't mention it because they like to try everything else first.

 
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