Originally Posted by faracrossthesea
I was tested 2 years ago for Celiac disease and came up borderline (the doctor wrote Malabsorption with a question mark). I quickly saw a Gastroenologist who said "You are not thin or Irish, you have IBS".
Oh Dear, FarAcross,
I'm afraid you may have been a victim of old school groupthink. To believe that all celiacs are either Irish or wasting away, a doctor must have a mindset locked in the past century. Recent studies have shown that atypical & silent presentations of celiac disease far outnumber the "classic" wasted /Irish /constant diarrhea presentation.
Celiac disease, and also nonceliac gluten intolerance, can present as anxiety, depression, even schizophrenia. Mostly, it is thought, due to malabsorption of critical nutrients; however, in some folks partially digested gluten (also casein for some) peptides can cross the blood-brain barrier & wreak havoc by binding to the certain receptors in the brain.
IMO, the best way to determine whether there is a common denominator named "gluten" that is causing both your IBS & your anxiety, etc. is to do a very thorough dietary elimination of gluten. You will need to educated yourself carefully, as a Gluten-Free diet is unlike any other common diet; it requires total avoidance of barley, wheat, rye & their derivatives, down to the microscopic ppm level. One great way to get up to speed is to join a Gluten Intolerance Group or Celiac Sprue Association support group. Another way to learn all the ins & outs of the diet is to read an authoritative, current book on the subject such as Living Gluten-Free for Dummies
by Danna Korn.
Alternatively, you could have your previous test results transferred to a more up to date doc for interpretation & perhaps followup. Did you have endocsopy with multiple biopsy? That is considered the "gold standard" for celiac disease.
But there are many people with gluten intolerance who are not outright celiac. I and my 2 kids are among them (one child is a latent celiac; positive blood tests but OK biopsies). This was not discovered until my kids were a little older, and it explained quite a bit, like why we all did so much better with sublingual B vitamins. -- But I would recommend a supplement with the whole "B family," as the group is related & works together synergistically. We are all on lifelong gluten-free diet, and it has been a miracle for us. My only regret is that we didn't figure it out sooner. I had 50 yrs. (since birth ...) of incapacitating IBS spasms, but they are in my past.
A great place to find a doc who is knowledgeable about gluten/IBS /celiac /mental health, would be at one of those local support group meetings ... where people often share, IME, which docs were helpful.
P.S. A thorough thyroid workup can be very helpful for those with severe anxiety. Be sure to get thyroid antibodies checked, as well as the level of free thyroid hormone, free T3. The standard TSH screening test will be less than helpful. Many folks with gluten intolerance have thyroid disorders that can precipitate anxiety so severe it is often misdiagnosed as bipolar disorder...