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Irritable Bowel Syndrome (IBS) Message Board
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Old 08-12-2007, 09:07 PM   #1
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mandy28 HB User
Unhappy Suffered for 3 years w/ no dx

I had my gallbladder out in jan 05 laperscope and ever since I have been suffering from massive diharreha (sorry bad speller) and stomach pains I have lost 70 pounds and I feel sick all the time.
Not only do I get diharreha but I also suffer from constipation to. I have had 2 colonoscopys 2 ercps an endoscopy a upper GI series a cat scan a but load of blood work and nothing comes up. They just told me this year that I probably suffer from IBS. All the medicine they put me on makes me majoraly constipated that I have to either take another med to make my self go again Which usaly throws me back into diharreha or I have to stop the meds all together and suffer through it till i get better on my own.
My Ibs is not triggered by any certine food because no matter what I eat bothers me a majority of the time. Even dry cearal that is on my list from the nutrisinist that I saw can but in the bathroom for an hour.
I cant go out when i have an episode. I cry all the time when I have an attack espicaly if I am out. This has ruined my life and I dont know how to fix it . I do not know any body else with this problem.
I feel so alone. I would just like somebody who knows how it feels to talk to for a little bit just to reasure my self that I am not totaly crazy.

Last edited by mandy28; 08-12-2007 at 09:11 PM.

 
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Old 08-13-2007, 12:33 AM   #2
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bellyblues HB User
Re: Suffered for 3 years w/ no dx

Mandy28, you are most definately not alone. We are out here! Actually, we are everywhere but since most folks don't talk about their bowels, you would never know it. It is estimated that 25% of the population suffers with IBS. So you probably meet and talk with folks every day who have some experience of this problem. I personally think 25% is a low estimate. I talk about my tummy constantly! The more I talk about, the more people open up about their own issues. It's just not the easiest topic to discuss!

I've been dealing with IBS for 20 years. I alternate between C and D, with the emphasis on C. I know how frustrating it can be and how it limits your daily activites. That's one of the reasons that I made the decision to just tell friends about my problem. I got tired of making excuses for why I couldn't go out to dinner or camping or long car trips. It's much easier to deal with the people in your life if you're honest. While those who don't have IBS can't really understand the enormous impact it can have on a life, they do tend to offer understanding, which is something we can all appreciate.

I don't take any meds any longer. I use an herbal supplement to keep my system hydrated and moving, but after all these years, I have concluded that western medicine can not treat this problem. The best most of us can hope for is temporary relief by trying a variety of remedies, both pharmaceutical and natural. You might want to consider seeing a naturopath. I am just like you in that it doesn't matter what I eat. I could pop a cracker in my mouth and have the runs for 2 hours. Or, I could eat a bowel of brown rice and be constipated for 2 days. There is no rhyme nor reason for me.

Try not to despair. I know it's hard to feel positive when your belly is at war with you but sinking into depression or anxiety will only exacerbate your symptoms. I have found that using a heating pad on my belly helps alot with the spasms and pain. I also "massage" my gut when it gets bloated and locked up with gas. This is helpful in releasing the pressure. There are also teas like peppermint and fennel that many find helpful.

I hope you hang in there. You are not alone!

 
Old 08-14-2007, 02:54 PM   #3
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philly1 HB User
Re: Suffered for 3 years w/ no dx

Hi Mandy, It took me nearly three years to find out what upsets my bowel and the list is as follows, coffee, all dairy, all sugar even fruit, wheat, all cakes and biscuits. Im not saying I cant have a treat the very odd time but it must be kept to a minimum. I felt like it was never ending but when you get on the right diet its wonderful. You need willpower and backup from friends. Basically I can eat most meals but no desserts or alcohol. The very odd time I will need my medication but if I had listened to my doctor who said diet doesnt matter Id probably be a hospital case by now as I had lost half a stone. I now weigh 9 stone which is great. Hope this is of help. good luck

 
Old 08-14-2007, 10:02 PM   #4
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stomachtrouble HB User
Re: Suffered for 3 years w/ no dx

I had major surgery in sept. 05, which included removing my gall bladder. The dr. that did my surgery said i would have constant diarrhea because the chemical that your gall bladder makes helps with digestion and absobing cholesterol and other fluids, so he put me on a medication called cholestyramine. It is a sandy like substance you mix with water, kinda nasty, but helps with diarrhea some without constipation.

 
Old 08-15-2007, 07:37 PM   #5
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mandy28 HB User
Re: Suffered for 3 years w/ no dx

thank you for the support. I have tried the heating pad before and it worked ok for me. My family and friends all know about my stomack problams and they are as supportive as they can be, but some times I think they get tired of waiting for me to finish or act some times like enough already with the sick act. My doctors have tried all kinds of different kinds of meds including cholestyramine because of my gallblader ( just made me suveraly C) but none work so I pretty much learned to suffer threw it on my own. But it is a guessing game with me because I may be a C today but I can be totaly trown with no warning into D. I am just tring to get my life back. I dont want my IBS to take over and rite know I feel it is

Last edited by mandy28; 08-15-2007 at 07:40 PM.

 
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