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Irritable Bowel Syndrome (IBS) Message Board
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Old 08-01-2001, 10:57 AM   #1
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I thought this was normal

My entire life I have had IBS. I thought everyone went to the bathroom like this. It was not unusual to have to run out of the pool in the middle of the summer to make it to the bathroom in time. I thought everyone had diarrhea like this. I thought everyone must sit on the toilet resting their head on the sink trying to cool down and make it just stop. Sometimes just running water on the wrist or rubbing some on my legs just wouldn't help. The heat always makes it worse. My Dad had it. I never figured to consider that my Mom and sister might not. Like I said, I thought this was normal. I was on Lomotil by the time I was 5 (wonderful drug for the moderate to more severe episodes - see ahead). When I grew up I finally found out people weren't like me. They actually go the bathroom "normally". I've always thought what I did was normal. It is for me. Is there anyone out there that gets these severe epsiodes?
I'm just curious. This IBS seems to be such a vague concept between doctors. If all else fails - you have IBS.
Severe episodes (which I call them ) consist of running to the bathroom just in time to make it - Diarrhea - Profuse sweating - excess saliva just running down your throat ( like you're going to vomit)-The feeling you are going to vomit - or sweat to death into a puddle. They last for 10-30 minutes. When they are over and I instantly cool down - it's heavenly.
Mild episodes (again my description) consist of diarrhea 8+ times a day (where you get to the point that your butt is so sore from (please pardon the descriptions) wiping that it bleeds slightly,
Regular days - diarrhea once or twice a day.
Unusual day - formed bowel movement. I actually called my mother the other day to ask if it was normal to have to push a little to go the bathroom "normally".

You always have to worry where to go the bathroom when you go out. This is embarrassing. The older I get - the less I seem to care what others think. I'm only in my 30's but how long can you care what people think if you have to go the bathroom often.
I have had the mucus thing ( I agree YUK! ). But I have also learned to live with this. I only take lomotil on the days that are above mild episodes (8+).
I try to know where the bathrooms are everywhere (especially if its outdoors and you don't know if there is one). And on the severe episodes I just keep telling myself the whole time - you know it'll stop sooner or later - it always does.
I read that some of you get constipated. I have a great cure for that. When I get constipated, I just worry about it for 15-30 minutes. By then, the worrying turns it to diarrhea. This has always driven my Mom nuts because she gets constipated. I tell her just worry about if for a few minutes. She'll just laugh and say she actually wishes she had my problem instead of hers.
Reading some of your posts made me feel better and sad. It's nice to know I'm not alone. Then again like I said - I always assumed that was the way everyone went to the bathroom until I was told when I was a teenager (no I am not stupid , people just don't talk about this).
I hope you all can find some kind of cure.

PS: Extra fiber - makes it worse for some people I've heard (especially me) COLON BLOW! (That's for the older folks that might remember the good Saturday Night Live).

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Old 08-02-2001, 05:59 PM   #2
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Re: I thought this was normal

Thanks for your post. I totally agree with you on the "i thought this was normal"
I'm 21 and I just realized a few years ago that not everyone has diarhea and has to remove clothing to keep cool while going to the bathroom.

 
Old 08-03-2001, 07:05 AM   #3
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Re: I thought this was normal

Hopefully Orianna will look at this message? Or anyone else that has bad episodes. Just curious - but have you figured any way to cool down besides taking your clothes off? That helps. Running cold water over your wrist helps. (Found that one out from an old Italian lady. I tried it and it actually does help some. If you get as hot as I do when I have a bad episode - what happens when I go through menopause? Spontaneous compustion I assume <IMG SRC="http://www.healthboards.com/ubb/rolleyes.gif">. Does anyone have the same problem of always having to know where a bathroom is? It's embarassing.

 
Old 08-03-2001, 12:11 PM   #4
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Re: I thought this was normal

Sunshine 7,
I can totally relate to the things that you said. I never felt like I was "normal" with my trips to the bathroom, but I guess I had just decided to learn to live with it. Since finding this bulletin board though, I am trying to eat different things. Increasing my fiber intake, and I did start taking the Calcium that was recommended. I just started that yesterday, so it's too soon to tell if it is going to actually help. Increasing the fiber has helped this past week. Only 1 day of the big D, compared to 4+ times DAILY before. I am worried about the constipation factor, but have decided that I am just going to have to experiment with this for awhile until I find the right amount of fiber for my system.
I have definately had some of the same problems as you especially the profuse sweating. I can always tell when I am about to have an attack. My upper lip starts sweating and I feel like I am going to pass out. Then the severe cramping hits and reminds me of labor contractions when I was giving birth. I have found too that when these hit, if I try to breathe through them like I learned in Lamaze class it doesn't make it quite as intense, although it doesn't make it go away. The one thing that I found worsens the pain, is the natural urgency to double over in pain and hold my gut till it passes.
I also have to know where the bathroom is everywhere I go ahead of time. Can't tell you how many times I have been embarrassed to have to make the mad dash to the restroom in the middle of a dinner out, the movie, or even church.
I feel your pain and I wish you the best of luck trying to find something to help. Just knowing that I am not alone with this and that I have found people that I can talk to about it without being embarrassed is a blessing to me.
Good luck,
<p>[This message has been edited by moderator4 (edited 11-01-2001).]

 
Old 08-28-2001, 07:46 AM   #5
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Re: I thought this was normal

Hi, all. Just wanted to share in your misery as an IBS sufferer (primarily urgent diarrhea, cramps, etc.)for at least 20 years (I'm 39). I found this message board and have been so thankful for the help it has given me. I decided to try Linda's recommendation for Caltrate 600 Plus and in the last 4 days of being on it, I feel like I have control over my life again. So far, only 1-2 bouts of urgent, but controllable diarrhea, no cramping, and even some formed stools! WOW! For many years, diarrhea has ruled my life, and I've become very discouraged due to episodes of bowel incontinence because of urgent, explosive diarrhea just shortly after meals. My doc prescribed Bentyl, but I've had limited success with it, and Metamucil doesn't help at all. This condition has worsened since gallbladder removal in '98, and recent Nissen fundoplication for GERD. When I read the message board for Caltrate, I thought "why not give it a try?". I'm amazed at the sudden and positive change! I just hope it continues this way forever. I have a couple questions for others out there using calcium to control IBS - 1) is it toxic to take 3 capsules a day since the recommended dosage is only 2 a day?, and 2) does this "cure" last indefinitely or will my body become immune to the "binding" effects of calcium and return to diarrhea? Thanks for your answers.

 
Old 09-25-2001, 01:32 PM   #6
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Re: I thought this was normal

I can totally relate...I had that same thing, where I 'thought I was normal'. I have really a mix of dir. and const. and, well, you know how it can be mucasy? I always thought that was normal too! Same with that kind of burning sensation you get across your tummy then you have to go to the bathroom. I wish, in the media or in our families, we would talk about what's normal, and not so much what isn't. On the news, you always here bad stuff about 'what is'nt normal'. They should tell you what is, so then if by chance, you're not like that, you can get it checked out. (They won't do that on the news of course because of liability problems, because people tend to listen to the news like it's doctor's advice.)

 
Old 10-01-2001, 01:20 PM   #7
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Re: I thought this was normal

Hi everyone! I have had problems since the birth of my child 6 years ago. I still remember going to the mall with my mom when my daughter was about a month old, we went to Friendly's for lunch and on the way home we had to pull over so I could go in the field. I had to use baby wipes. I don't know if it a good thing or a bad thing we live out in the country. It takes about 25 minutes to get home from "town", so I am usually in a panic to get home. Usually doubled over in pain in the car, and worried I will go in my pants. I have never discussed it with my doctor, too embarrassed. A women I work with told me she thinks it's IBS, because I can not pin point it to any foods. I know that Lettuce does it to me every time. I mostly suffer from Diarhea. Usually everyday. I live with Immodium AD. Unfortunately I have got into a bad habit. I get Diarhea, take Immodium, then I don't go for 2-3 days, then I have terrible stomach cramps and hard painful stool, followed by diarhea, and then the cycle starts all over again. Everytime I go out I plan on getting an attack, usually 10-30 minutes after I eat. Is this what I have to live with for the rest of my life?? Is it worth the hassle of going to a doctor? There is no cure right? I have found articles that discuss what I think I have, but really no cure. It's nice to know I'm not the "only one". But that's how I feel most of the time.

Shel<p>[This message has been edited by Shel (edited 10-01-2001).]

 
Old 10-01-2001, 02:17 PM   #8
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Re: I thought this was normal

Shel,

Lettuce - bad idea. I have the same problem. Even though I love salads. I decide to have salads only if I stay home. Have you tried Lomotil from the doctors instead of Immodium. I started taking Lomotil at a very early age and never had any side effects. My son also has the same problem and he had your problems with the Immodium but none with the Lomotil. The nice thing about the prescription Lomotil (if you are lucky enough to have medical) is that you tell your doctor to give you a year supply. That way it only costs me $10.00 for my copay and I get a years worth. Also the generic for Lomotil ( I think it is Lomax) does not work for me or my son as well as the name brand. I know there's not supposed to be much difference but for us there is. It is the only medicine I insist on name brand.
Hope you get better. Tried the calcium thing - it worked for a while then stopped. I used to worry about bothering other people by needing to be near a bathroom. Now - tough - I need to be near one. That's that. I just hate running out in the middle of a great movie and missing the good parts. My mother finally understands my problem. As does my husband and son. My son has IBS but not as severly. They have learned to accept that this is the way I am. That alone helped me (more mentally than anything else). Plus there's been plenty of times they've needed a bathroom. <IMG SRC="http://www.healthboards.com/ubb/wink.gif">

 
Old 10-01-2001, 03:06 PM   #9
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Re: I thought this was normal

I am new here, to clear that up in case my questions are redundant. I have had all these IBS symptoms for at least the last 10 years, but since I had my baby this past May, it has been unbearable. Today, I went for a colonoscopy which was unsuccessful because I couldn't bear it. They gave me valium but it didn't affect me in the least. He said that from what he saw, which was about 2 minutes worth, that there was no sign of colitis so it is probably irritable bowel syndrome. So my question is this: can IBS be traced to the food you eat? Also, please tell me some of you have not been able to go through the colonoscopy because I am so disappointed in myself...I was so anxious to find a cause or cure for my problem, but now I'm back to square one. He gave me pills called Modulon that I am to take 3 times a day for the next few months. Any one know about Modulon? Thanks for any help that can be given and it is well appreciated.

 
Old 10-01-2001, 03:34 PM   #10
 
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sbw91 HB User
Re: I thought this was normal

I was reading your post and you said you tried calcium and it worked for a while. I was just wondering how long you took it. I have been on it for 2 months and it has worked great for me. Thanks

 
Old 10-02-2001, 08:39 AM   #11
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Re: I thought this was normal

Hi! Well I bought Caltrate 600 Plus last night. I am hoping to see results soon, we are going away this weekend and I don't want to have to worry about it. I have also quit eating salads, which is a bummer because I love them. Thanks for the suggestion on the Lomotil, I will ask my doc about it the next time I go. Which may be soon if this calcium doesn't help.

Thanks:-) Shel

 
Old 10-02-2001, 09:09 AM   #12
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Re: I thought this was normal

I was on the Calcium for a couple months. By 10 weeks it just wasn't cutting it. By 3 months I was back to same old song and dance. Someone asked if foods do affect IBS. Yes. A very popular one that will increase your IBS is tomatoes (especially chunks). I have found that Marinara sauce is the best for the least side effects (usually none). Everyone that I know that has IBS has the same reaction to tomatoes. Don't laugh - I have (by accident) found something that has worked for the last month. I have tested it by stopping for several days and doing it for several days. It has worked so far to get formed stools (what a lovely topic). Tropicana OJ - no pulp - with Calcium and Chocolate covered raisins (Raisinets)! Yes I know this sounds stupid - especially because raisins usually make people go to the bathroom more. I'm not saying it's the healthiest thing. Don't eat and drink them at the same time <IMG SRC="http://www.healthboards.com/ubb/frown.gif"> . I know it sounds dumb but I've had three people try it so far and believe it or not it has worked for them. If anyone finds out it works too let me know. Much better than medicine. Like I said - it has worked for a little over a month for me. The other 2 people I told have actually gone to the bathroom "normal" for the last 2 weeks. (Plus they love the Raisinet part). Told you it sounds dumb - but if you find something that works - you know you won't stop trying it until it doesn't work anymore.

 
Old 10-03-2001, 07:14 AM   #13
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Re: I thought this was normal

Hi
I've had IBS since the birth of my twins(14 years ago) . I had my gallbladder out 3 years ago and since then it has just gotten worse. It was getting to the point that I didn't want to leave my house and concered quitting my job. BuT I found this board and decided to give the caltrate a chance. Since then I haven't had any problems with the exception of the week I have my period. The first month I still bouts during that week. Now I'm on my second month of caltrate I have cut down the doses to 2 a day . I have no more bouts with IBS even during my period. I feel so good now. It's like I'm a different person. Sometimes I still get scared when I'm in a new place and don't know where the bathroom is. I hope you all find something to help you with your IBS if you haven't given it a try I recommend trying Caltrate.

 
Old 10-10-2001, 12:23 PM   #14
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Re: I thought this was normal

Well I have been on Caltrate 600 plus for about 10 days and I have been feeling good. Usually I have an "attack" at least once a day. I have only had one attack since I started taking it, and that was because I had to have Chinese Food. There were other times when I thought I was going to have an attack, my stomach gurgled and did that thing it does, but it never happened. I am so happy. I am curious as to how long it will last, some of you have said it only lasted a short time. My BM's are still not "normal", but I'll take this over what I usually get any day. Thanks for recommending it!

Shel

 
Old 10-11-2001, 12:19 PM   #15
 
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sbw91 HB User
Re: I thought this was normal

I have been taking Caltrate now for 2 months and I have not had any problems. I do not have any of the pains anymore. I can go out to eat now without worring. The person who told me about it said she had been taking it for 3 years and it was still working for her. She posts on the board alot however I havn't seen her post in a while. I am going to keep taking it and hope it keeps working for me. I had my gallbladder removed in 1998 and that's when I started having problems. hope this helps...

 
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