 Looking for ONT1628 for update on daughter
Hi... I was reading your post from December and would like to know what you found out from the nephrologist. I am asking this b/c my 2 yr old daughter is going through the EXACT same thing. She was diagnosed a week and 1/2 ago with a disease called IgA Nephropathy. (or Berger's disease) She also is anemic and has the "good but rather pale" look. She started on oral steroids last week and while the protein is still high in her urine she looks like she might be getting some color back in her cheeks so maybe we're heading into remission. I would REALLY like to talk with you some to find out your daughter's diagnosis. I cannot find anyone other than adults or much older children with the same disease my daughter has. Even if she has a different problem we still may be able to help one another get through the "worries" as we call them.
Hoping for the best for you.
Kristin (mom to Erin... 27 months)
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