feelbad

sorry to hear this,really.my son went thru this type of nightmare when he just started vomiting up blood one day.it was then we found out he actually had polycystic kidney disease with congenital hepatic fibrosis.have they said whther or not his kidneys have cysts in them?there are other diseases that have the kidney/liver connection but i am the most familiar with of course the PKD type with what appears to be some sort of mutated gene that is secondary to the polycystic kidney disease itself.this is just one possibility or him.

did they actually check his bloodflow thru his portal vein within his liver or do an actual ultrasound on his liver and kidneys?is his spleen also enlarged as well?my sons liver and spleen were extremely enlarged by the time we even found out he was even sick.this happened because the portal vein became closed off from the hepatic scarring going on in his liver.this causes the blood that normally would flow thru the vein to actually back up into the liver and spleen and eventually the stomach and the throat,this is why he started to actually vomit large amounts of blood.

what type of docs is he currently seeing for this?a good pediatric GI doc and nephrologist are really what would work the best for him at this point.one thing about this condition is it usually will present around age ten to twelve.i am hoping this is something else entirely and much more easy to treat than what my son had.he is doing fine now by the way.do you know of any family history on your grandsons either sides of anyone having any sort of a kidney disease or problems?the PKD is an inherited disorder thats why i am asking.i will say a little prayer for your grandson and hope this is an easier to treat type of condition.i wish you all the best.PLEASE keep me posted on how he is doing and what you find out,i really DO want to know how he is doing,Marcia