Originally Posted by LovesBooks&Bead
I was diagnosed with severe kidney damage about 2 years ago. They are also full of small cysts. My last creatinine was 1.3 in June 2006 and hasn't been checked since. I'm wondering how a person feels when the kidneys start to fail. Over the last couple months I have alot of days when I feel very under the weather - no energy, an effort to do anything, stomach (not abdomen) pain. I'm on meds for my second UTI in the last 3 weeks. Don't know if this is associated with the kidneys or from the UTI or the meds. I've had pretty much continual UTIs for the last 40 years so have taken lots of antibiotics in my lifetime but don't remember them making me feel so bad before. I'd appreciate your comments.
First of all, as someone who has run the gamut (kidney failure, dialysis, and transplant) I have to say that a creatinine of 1.3 is not "severe". You do have damage, but there is a good possibility that it will be many years before you need any sort of intervention. I first had protein in my urine in 1979 and didn't end up on dialysis until late 2001.
As to how you are feeling, one of the things that can make you tired is anemia, which often occurs with kidney damage. Make sure your docs check you for this. You may be prescribed iron (tablets or infusion) and put on some sort of kidney hormone like epo injections.
As for the infections, I can't say for sure, but if you have kidney damage, you are prone to more illness. Not necessarily kidney/bladder related, but just infections in general because you are not in the best of health.
Your feeling under the weather may just be the infection. I hope the antibiotics begin to work soon and you feel better. But I would definitely get more labs done to check on your kidney function as well as to check the anemial.
Best of luck to you and keep us posted.