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Old 06-30-2007, 06:50 PM   #1
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Chronic Renal Tubular Acidosis

Hi guys,

I'm over my raging fit and managed to get thru it without breaking a toe this time. Didn't go out and shoot any doctors either. I'm proud of myself.

I thought I'd throw a new thread out and see if I get any bites. I'm not looking forward to going this one alone too but after a search of the boards, I got a feeling that's the way it's going to be. Anybody ever dealt with this before or have any idea what to expect? All the info I've been able to find seems to apply to those who had doctors who actually treated it fairly early and didn't let it ride for 15 years. You read about how this can happen and that can happen if it's not treated and the problem is this and that are now reality. I'm feeling really lost right now.

Helen

 
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Old 06-30-2007, 08:01 PM   #2
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Re: Chronic Renal Tubular Acidosis

Thanks allie. I've been doing a lot of research on it. I've been doing internet medical research on thyroids for 15 years and can zero in on something in a heartbeat. Problem is all these research papers and such always lack one thing and that's the human element. The people who write these things have never been thru it.

This site is allowed: [url]http://www.medscape.com/viewarticle/410658_3[/url] So's this one: [url]http://www.anaesthesiamcq.com/AcidBaseBook/[/url] Pretty technical but really in depth discussions. My pcp feels that, based on the labs, I have what was formerly known as type 3. They did away with that designation and now consider type 3 a subtype of type 1 but actually a mixture of types 1 and 2.

You're a sweetie. I hope things are going a little better for you. I'm still interested in what you found. I have a tendency to try and read everything I can find.

Helen

 
Old 07-01-2007, 02:15 AM   #3
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Re: Chronic Renal Tubular Acidosis

I read bunches. I could run rings around almost any endo when it comes to the hypothalamic/pituitary/thyroid axis, the role the thyroid plays in metabolism, the various molecular changes that take place at the various levels of each tissue and organ, etc, etc, and I got one big advantage over them, I know how it feels. I kinda play your role on the thyroid board. I know the time and effort involved in reaching out and grabbing someone's hand. Thank you. I appreciate it from the bottom of my heart.

But, I also feel this overwhelming need to talk about it with someone else who knows and can understand. Took me two years following a trail to track down a real live person who's wife has a similar thyroid condition to mine. It's a very rare disorder. He's a compulsive researcher too. We talk on occassion and it helps.

So ifn's y'all don't mind, I'll talk, you listen and perhaps someone, somewhere will come along and I won't feel so alone. RTA not only can cause kidney disease, it can also be a complication of kidney disease. And, then again, it is a kidney disease. This seems like a logical place to start looking. It also looks like I'm going to be dealing with some kidney issues as a result of this now too and it's going to be kinda nice having some experts around to help guide me. This is a whole new world to me.

Oh, I don't have an autoimmune disease. They've pretty much been ruled out over the years. Came to find out I'm IgG deficient instead which also explained a lot of things. RTA (and for that matter, IgG deficiency) can also be a complication of non-autoimmune hyperthyroidism. That, along with the help of some real idiot doctors, I do have.

 
Old 07-01-2007, 09:18 AM   #4
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Re: Chronic Renal Tubular Acidosis

Yeah, I did but it's nice to know that someone cares. If you reread the posting rules, you'll see that that one would have been allowed without preapproval. The .gov sites are. So are a lot of others. I follow the guidelines to a t. They're actually quite clear and I haven't hadn't a lick of problem posting links. When it hits a grey area, I ask.

I thought it was my imagination at first but it seems to happen every time. Has anyone else experienced increased pain after taking lasix? It's been a daily thing and it's putting quite a damper on my mornings. Speaking of which, what is safe to take for pain? I've been a little afraid to take anything so far but this is getting really old.

 
Old 07-02-2007, 02:39 AM   #5
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Re: Chronic Renal Tubular Acidosis

Tylenol's the only thing we've got in the house. I'll try it. Thanks.

 
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