Re: Medullary sponged kidneys
I was diagnosised with a spongue kidneys in 1994. Since this time I have been to several urologist that either have no experience with this problem, or think they know and consequently don't! The only specialist that made any sense was the chief of urology at the Lahey Clinic in Mass. This doctor informed me that a sponge kidney was an inherited gift that NO matter what one eats or drinks, they will get stones. The best way to avoid this problem would be to drink a lot of water along with a water retention medicine. Well, this has worked until now....recently I have past 6 stones upto 5cm. Now, a new urologist is informing me to stay on a LOW sodium diet, and drink not so much water.............I'm currently seeking another specialist from Boston. No two doctors can agree.........I expect that someone has done major research on this condition........if anyone know of such a person, please forward!