How great you guys have the option of seeing a specialist (albeit after a hefty payment) promptly! We in Canada are not so lucky. There had been attempts at partial privitization of our healthcare. A few private clinics opened up. They provided non-essential surgery (such as knee & hip replacements) to those patients who could afford the fees. Amid great controversy and a public outcry, for one reason or another, they were forced to shut down. There's only one such clinic left that I am aware of right now. In my opinion, a complete overhaul of our ailing health care system is needed.The waits for outpatient tests and follow up appointments with specialists are horrid.
I have an undiagnosed kidney disease. I also have severe, drug resistant hypertension. It has not been determined whether my hypertension stems from the kidney disease, or vice versa. I have areas of infarcts on the kidneys. They may have been caused by blood clots. Blood clots usually travel to the kidneys from the heart. There should be no blood clots now. I take aspirin and Lipitor. My blood pressure is close to perfect with the help of five antihypertensive drugs. So why is the GFR dropping?
Another good drug to aid the kidneys is an ACE inhibitor. In your research you must have come across that information, Julie. Both Lipitor and an ACE inhibitor help the kidney function. The ACE Inhibitor helps keep the protein down in the urine. (If my memory serves me right) I am on that one as well. There was a time I quit Lipitor because of its side effects. My nephrologist talked me into going back on it again, though I had been taking it to keep my cholesterol (and thus the plaque) in check. All these things go hand in hand and work together. I take no special meds for the kidneys as yet. I guess they'd have to know what I have first before attempting to treat it. (If it can be treated). Many tests later, there's no diagnosis. They were able to eliminate a bunch of things like arterial dissection, renal arterial stenosis, vasculatis and such. The only test left to do is a biopsy. It was rescheduled several times, so I feel certain they don't really want to do it. Perhaps because of my blood pressure, or because they have doubts it would help in the diagnosis. (just my opinion)
Good luck with your appointment!
Please keep in touch and let us know how it goes.