It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Kidney Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-05-2007, 03:05 PM   #1
Senior Member
(female)
 
Join Date: Feb 2004
Posts: 103
Ali04 HB User
when is it time to begin dialysis? gfr of 13

hi, i am 33 years old and had a lupus crisis in july. after spending one month in the hospital, they were not able to save my kidneys. the nephrologist says they function at about 10% (it could be less

i do not know when they actually start the dialysis. i really dont get any straight answer except that function will not come back, and they MUST get the fistula in place. i am very nervous because i have also had one stroke, as well as numerous clots in the upper extremety deep vessels. the surgery has to be done in patient, and they dont know if there is even time for the thing to mature. now they say that in an emergent situation, they will do dialysis in the groin. i am freaking out this was not supposed to happen to me.

i guess my question is this..at what function did they start the dialysis? i am trying to prepare since i am still working.

any advise would be appreciated.

current creatinine at 4.2. tp/creat ratio is 3.5.
total protein in cup urine is 100+ rbc casts greater than 50

 
Old 12-16-2007, 08:17 AM   #2
Member
(female)
 
Join Date: Jul 2005
Posts: 98
deedee1313 HB User
Re: when is it time to begin dialysis? gfr of 13

My husbands doctor said that when function drops to 15% that you have to go on dialysis.They put an HD catheter in his chest to do dialysis.He had that for over a year before they put in a fistula.When they did the fistula it cut off the blood flow to the hand and they had to go in and tie it off.Then he was back to a HD catheter.You also might ask about peritoneal dialysis.That is one that you do at home.My husband did very well on that until he got an infection and they had to remove the catheter.

 
Sponsors Lightbulb
   
Old 12-17-2007, 08:20 AM   #3
Senior Veteran
(female)
 
Join Date: Jan 2005
Location: Canada
Posts: 2,750
Cora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB User
Re: when is it time to begin dialysis? gfr of 13

Quote:
Originally Posted by Ali04 View Post
hi, i am 33 years old and had a lupus crisis in july. after spending one month in the hospital, they were not able to save my kidneys. the nephrologist says they function at about 10% (it could be less

i do not know when they actually start the dialysis. i really dont get any straight answer except that function will not come back, and they MUST get the fistula in place. i am very nervous because i have also had one stroke, as well as numerous clots in the upper extremety deep vessels. the surgery has to be done in patient, and they dont know if there is even time for the thing to mature. now they say that in an emergent situation, they will do dialysis in the groin. i am freaking out this was not supposed to happen to me.

i guess my question is this..at what function did they start the dialysis? i am trying to prepare since i am still working.

any advise would be appreciated.

current creatinine at 4.2. tp/creat ratio is 3.5.
total protein in cup urine is 100+ rbc casts greater than 50
Sorry that it took me a while to respond (I'm in the middle of a move and going a bit nuts LOL). Anyway, there are guidelines, but no real set point. Some people feel horrible at a creatinine level of 3 and others (like myself) didn't start until a much higher level (over 8 in my case). It depends a lot on how you feel, and how your electrolyte and water balance is. Too high potassium can be dangerous so you want to watch that.

Have you thought about peritoneal dialysis? It is quite common here in Canada but not so much in the US. You should investigate it to check out all your options. One of the nice thngs about it is that you can eat much more freely (few if any potassium restrictions) and can travel more easily as well. There are pros and cons to any form of dialysis, but the really good news is that nothing is ever going to be as bad as you imagined.

I was on the opposite coast from where I live when I was forced on dialysis (I knew it was coming) by a sudden case of pneumonia. I had a femoral line (catheter put in through the groin) and later had lines in my neck. I was on hemo for a year (tried peritoneal but it didn't work because of female plumbing issues) and then had a transplant. I know things are scary, but you will be ok.

Take care.

Cora
__________________
Cora
Dxd T1 1966, 2001 dialysis, 2002 kidney transplant, 2003 insulin pump, 2008 pancreas transplant

 
Old 12-21-2007, 05:08 AM   #4
Senior Member
(female)
 
Join Date: Feb 2004
Posts: 103
Ali04 HB User
Re: when is it time to begin dialysis? gfr of 13

thank you so much ladies!
these are the first direct answers i am getting.

i feel good cora. i am glad to hear they just do not do it over the serum levels. i am being controlled for the potassium with lasix, and i am on a lot of bp meds. bp and potassium and phosphorus are my biggest problem.
dr says i am also wasting. i was thin to start, and losing rapidly and now have a bmi under 20.

peritoneal dialysis was brought up to me but i have a lot of issues with peritonitis (and fluid in abdominal cavity) that i am afraid of infection. i think they are as well.

take care. happy holdays, and THANK YOU SO MUCH for answering my post. it was so helpful. now i can share with my husband.

good health to all..
ali

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Dialysis Question Cindy B Kidney Disorders 11 02-16-2011 05:11 PM
Close to dialysis and Scared! Divawriter Kidney Disorders 5 02-15-2011 05:28 AM
with a creatinine clearance of 29 when will dialysis need to be started? glogirl3 Kidney Disorders 16 01-06-2010 07:46 PM
Dialysis asiancandy Kidney Disorders 2 05-26-2009 02:31 PM
Are you on dialysis? sixx788 Kidney Disorders 4 09-01-2006 07:49 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added











All times are GMT -7. The time now is 07:38 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!